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DebNC84

Lets Talk About Coffee Filter Please!

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I have been having an ongoing issue with my DH for the last two months - after getting a good handle on it for over a year. I thought I found the offending food - but then it came back - it acts like I've been injesting whatever it is, on a daily basis..because the itching usually subsides within a day or two after the initial injestion of gluten. It just dawned on me this morning... what about my coffee filters? other paper products in my home have been replaced but I never once thought about coffee filters. Do I feel like a dummy or what! i think i'm going to buy one of those washable strainer type filters.. but does anyone know if there is a brand of paper filters that are gluten-free?

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I have been having an ongoing issue with my DH for the last two months - after getting a good handle on it for over a year. I thought I found the offending food - but then it came back - it acts like I've been injesting whatever it is, on a daily basis..because the itching usually subsides within a day or two after the initial injestion of gluten. It just dawned on me this morning... what about my coffee filters? other paper products in my home have been replaced but I never once thought about coffee filters. Do I feel like a dummy or what! i think i'm going to buy one of those washable strainer type filters.. but does anyone know if there is a brand of paper filters that are gluten-free?

I use the non-bleached, brown coffee filters and have not had any problems whatsoever. As this is a non-food item, I would be highly surprised if there would be any gluten in a coffee filter. You also may be sensitive to something else in your daily diet. Very frustrating as it can take a while to figure it all out. Good luck!

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What kind of coffee do you drink? I had a lot of trouble with Foldgers Custom Roast, I dont know why but I can not drink it at all. I do good with their standard roast. Are you drinking flavored coffee? Do you use creaner and if so is it gluten-free?

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i was drinking Folgers at one time (custom roast) and and had no problems... now i'm drinking maxwell house

no creamer - cut that out several months ago because the hydrogenated oils - just sugar and I've not tried to get into any flavored coffees because I don't know about the gluten aspect. one step at a time.

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well i'm going to get in touch with the company that makes them - just to see.

so far - i'm itching less... tomorrow everything should be better if this was the culprit.

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I have just found out, from a wine labeling company no less, that red wines, some teas and coffee are de-acidified by rinsing them over and over with ....... gluten and/or milk proteins! GEEZ! No wonder I was having problems with "100% Coffee." The article went on to say tha the European Union is going to enforce that if a product uses allergens in its processing it must be on the label. Here in the USA where Cool Whip can label their casein filled product "Dairy Free" I am not holding my breath that our labeling laws will improve.

In the mean time I am avoiding the above products, and now the itchy, cramping, painful abdominal sensations gone. I have read in other gluten free books that caffiene stimulates the frayed nerves left over from the gluten intollerance neuropathies, so they say to avoid any and all caffiene drinks. I use jiaogulan tea as a waker-upper as it opens up blood vessels aiding in the get up and go and brain-fog clearing in the AM. It also lowers blood presure!

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I have just found out, from a wine labeling company no less, that red wines, some teas and coffee are de-acidified by rinsing them over and over with ....... gluten and/or milk proteins! GEEZ! No wonder I was having problems with "100% Coffee." The article went on to say tha the European Union is going to enforce that if a product uses allergens in its processing it must be on the label. Here in the USA where Cool Whip can label their casein filled product "Dairy Free" I am not holding my breath that our labeling laws will improve.

In the mean time I am avoiding the above products, and now the itchy, cramping, painful abdominal sensations gone. I have read in other gluten free books that caffiene stimulates the frayed nerves left over from the gluten intollerance neuropathies, so they say to avoid any and all caffiene drinks. I use jiaogulan tea as a waker-upper as it opens up blood vessels aiding in the get up and go and brain-fog clearing in the AM. It also lowers blood presure!

that is disturbing info.

the coffee filter company said that the filters I'm using ARE in fact gluten free... but I beg to differ. Maybe they test up to a certain ppm and there might be a trace of gluten, not enough to effect most but since I have DH i am more sensitive - I did something stupid this weekend - so stupid that I'm not even going to tell... ok I'll tell... I ate some toppings off of a pizza - :( oh well - my gut will be back in shape in a few days - but it did give me a setback in figuring out if the filters were causing me a problem... so a few more days and we'll see.

If anyone has any info on the testing procedures for products or a link that I can go to that explains the ppm thing... i don't quite understand it and I would appreciate it.

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I have just found out, from a wine labeling company no less, that red wines, some teas and coffee are de-acidified by rinsing them over and over with ....... gluten and/or milk proteins! GEEZ! No wonder I was having problems with "100% Coffee." The article went on to say tha the European Union is going to enforce that if a product uses allergens in its processing it must be on the label. Here in the USA where Cool Whip can label their casein filled product "Dairy Free" I am not holding my breath that our labeling laws will improve.

In the mean time I am avoiding the above products, and now the itchy, cramping, painful abdominal sensations gone. I have read in other gluten free books that caffiene stimulates the frayed nerves left over from the gluten intollerance neuropathies, so they say to avoid any and all caffiene drinks. I use jiaogulan tea as a waker-upper as it opens up blood vessels aiding in the get up and go and brain-fog clearing in the AM. It also lowers blood presure!

Peggy Anne,

Would you mind supporting the information you posted about red wine, teas and coffee, with a link or an article.

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I'm sure you've heard the story about the woman who had a bat in her coffee filter. It was in all the newspapers and on all the TV news last week.

http://www.star-telegram.com/467/story/937831.html

best regards, lm

OMG...That sent shivers all the way down my spine and I'm not sure that I don't need to throw up! Thanks for that larry! <_<

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OMG...That sent shivers all the way down my spine and I'm not sure that I don't need to throw up! Thanks for that larry! <_<

I JUST WANT TO KNOW how the bat got into her coffee maker? huh.... I'm not sure I am believing that one!! :o

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I must agree that if you make a blanket statement about products like wine, coffee and teas that are almost certainly gluten-free, you really HAVE to provide evidence or a contact.

richard

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that is disturbing info.

the coffee filter company said that the filters I'm using ARE in fact gluten free... but I beg to differ. Maybe they test up to a certain ppm and there might be a trace of gluten, not enough to effect most but since I have DH i am more sensitive - I did something stupid this weekend - so stupid that I'm not even going to tell... ok I'll tell... I ate some toppings off of a pizza - :( oh well - my gut will be back in shape in a few days - but it did give me a setback in figuring out if the filters were causing me a problem... so a few more days and we'll see.

If anyone has any info on the testing procedures for products or a link that I can go to that explains the ppm thing... i don't quite understand it and I would appreciate it.

Deb......take a deep breath for a moment. Gluten is a protein and it's food. I cannot imagine there being a protein in a coffee filter. Why do people question a coffee filter? No one would even be doing testing on a coffee filter to see if there was any gluten in it because it's not food. People also need to get off the PPM thing. That would only be pertinent if a FOOD product were being marketed as a gluten free product and testing needed to be done to ensure compliance. I would start looking in the direction of another food intolerance or allergy. Remember, you have to eat it and it has to be a food product (unless you are into ingesting make-up, which would be the one exception I can think of) before you have to start worrying about it. It just might be the coffee itself as coffee is very acidic, especially the supermarket kind, and acid can cause problems in some people.

The coffee, tea and wine post is another one of those posts you have to laugh at. I drink all 3 on a regular basis and have done vineyard tours and questioned the staff on wine-making as it relates to the gluten-free lifestyle and ALL of them adamantly stated there is no gluten in wine, period. There is no part of the process where anything gluten related would be used. I would tend to believe them because every one of my symptoms related to celiac disease have gone and hopefully, will not return. Maybe ripple wine or cheap, floor sweeping coffee contain gluten but if you drink a good brand of any of these things, I wouldn't worry about it. They are naturally gluten-free.....except for some flavored tea's and coffee's! The same is true for cigarettes....even if they did contain any gluten, you would have to eat them to cause a problem.

You really need to do some better research before posting things like this because many people believe everything they hear without looking into the facts and then have a harder time with this lifestyle!

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Deb......take a deep breath for a moment. Gluten is a protein and it's food. I cannot imagine there being a protein in a coffee filter. Why do people question a coffee filter? No one would even be doing testing on a coffee filter to see if there was any gluten in it because it's not food. People also need to get off the PPM thing. That would only be pertinent if a FOOD product were being marketed as a gluten free product and testing needed to be done to ensure compliance. I would start looking in the direction of another food intolerance or allergy. Remember, you have to eat it and it has to be a food product (unless you are into ingesting make-up, which would be the one exception I can think of) before you have to start worrying about it. It just might be the coffee itself as coffee is very acidic, especially the supermarket kind, and acid can cause problems in some people.

The coffee, tea and wine post is another one of those posts you have to laugh at. I drink all 3 on a regular basis and have done vineyard tours and questioned the staff on wine-making as it relates to the gluten-free lifestyle and ALL of them adamantly stated there is no gluten in wine, period. There is no part of the process where anything gluten related would be used. I would tend to believe them because every one of my symptoms related to celiac disease have gone and hopefully, will not return. Maybe ripple wine or cheap, floor sweeping coffee contain gluten but if you drink a good brand of any of these things, I wouldn't worry about it. They are naturally gluten-free.....except for some flavored tea's and coffee's! The same is true for cigarettes....even if they did contain any gluten, you would have to eat them to cause a problem.

You really need to do some better research before posting things like this because many people believe everything they hear without looking into the facts and then have a harder time with this lifestyle!

DO YOU HAVE DH? didn't think so... I'll say more later - maybe. Maybe someone else would like to join in?

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I cannot imagine there being a protein in a coffee filter. Why do people question a coffee filter? No one would even be doing testing on a coffee filter to see if there was

You really need to do some better research before posting things like this because many people believe everything they hear without looking into the facts and then have a harder time with this lifestyle!

Gemini,

OK - I'm back! I have not once named the brand of filters... nor did I say that I was sure. I got on this site for help - support. You aren't offering support - as a matter of fact you and people like you make me look elsewhere for help. I'm not a pro on this and I'm still trying to find answers. I've had a major flare-up of my DH and it's really upsetting to me - try losing handfuls of hair daily - or scratching yourself bleeding in the middle of night - having sickly looking angry looking welts and lesions on your body for the world to see... you'll be begging for help. I managed to stay free of any major setbacks until now and the only thing different that I can tell since I've pretty much been starving myself - AND eliminating any new stuff I've been using.

i don't care what you say - but my facial breakouts around my nose and mouth STOPPED when I started using only bounty for napkins - and other issues STOPPED when I became faithful to charmin tpaper. I'm not eating the paper - I'm using it on my skin - also I am feeding my dog gluten free food - NOW I don't break out where he licks me on my hands.... go figure... i'm not licking his saliva off my hands.. nor am I eating his dog food. hmmm how is it getting in my system to cause my DH - OH maybe it's skin contact with the wheat... hmmm... what an idea... thanks for the help.

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As far as I know, casein and egg white are not uncommon in fining wine. So for someone with additional intolerances, wine could possibly give trouble.

Article for example:

http://www.uark.edu/depts/ifse/grapeprog/a...les/nmc14wg.pdf

...searched a bit more and I did find something about gluten:

http://www.ajevonline.org/cgi/content/abstract/53/4/308

The second one is a study, I don't know if anyone actually uses gluten in wine making, but it has at least been studied as a possible fining agent.

Personally I've had pretty good results sticking to Spanish, Italian and French wines, and not buying the very cheapest ones. Just to be clear, I'm also casein free, so in my case that is probably why I sometimes react to some wines. (Can't afford very expensive ones either but so far so good. :))

Pauliina

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DEbNC84- i def feel for you, as i have DH too... i went a long time with continious breakouts and looking sick and feeling sick, but i did more research on dh, and with the help of my sister we found out that milk is a big culprit in adding to dh flares due to the iodine and salt in dairy products. i cut dairy out and it took a few weeks, but i felt better and saw a difference. maybe look more into what you are eating, as we know gluten can hide anywhere... i often find that if i eat chips or any food that has been manufactured with wheat products, i'll get a small dh flare.

i do agree that i don't think it could be the coffee filters... i've never had a skin reaction to touching something with gluten, i'm not even sure that would be able to happen? but you'd have to ask your dr about that DH only flares if you ingest gluten.

like me, you could have very sensitive skin, so touching certain tissues or napkins with oils on it acn cause a break out or look something like dh.

i haven't had a prob with coffee, wine, or tea

hope you feel better :( , i know what you are going through

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DebNC,

Gemini is usually very accurate in her postings and has been around a long time. She knows her stuff. As with most posts here, you can take it in, and then draw your own conclusions.

With that said, there is a lot of research that needs to be developed with regard to Celiac and DH, hopefully, not too far in the future.

Hope you feel better soon.

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DEbNC84- i def feel for you, as i have DH too... i went a long time with continious breakouts and looking sick

hope you feel better :( , i know what you are going through

thanks - I'm a little embarrassed about my reaction to Gemini's statement...it struck a chord and I kind of had a meltdown last night. I guess I really wanted it to be the filters...because I've exhausted all my ideas. I agree it's not the filters... as I've been without them long enough now and still having breakouts... I will go without dairy and see if it helps... I know about the iodine. I don't want it to be dairy, that is causing my issues - but I don't make those decisions... this rash makes me crazy. I don't eat a lot of dairy but I do binge on cheese every now and then. and the more I think about it - that might be why the DH is flaring and almost going away and flaring again. - I'll let you guys know what happens.

thanks for caring. It really means a lot.

Debbie

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...... - it acts like I've been injesting whatever it is, on a daily basis..because the itching usually subsides within a day or two after the initial injestion of gluten......

I have a comment that I hope may be helpful. I hesitated to post earlier 'cause I don't know enough about DH.

Deb, you felt like it may have been something you were ingesting on a daily basis, and that the itching subsides in a day or two. Well, if it is something you are ingesting on a daily basis, why would it subside in a day or two? The fact that it subsides in a day or two may indicate that it's an occassional gluten ingestion, and not something such as coffee filters that you do use daily. Just an idea.

best regards, lm

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I have a comment that I hope may be helpful. I hesitated to post earlier 'cause I don't know enough about DH.

Deb, you felt like it may have been something you were ingesting on a daily basis, and that the itching subsides in a day or two. Well, if it is something you are ingesting on a daily basis, why would it subside in a day or two? The fact that it subsides in a day or two may indicate that it's an occassional gluten ingestion, and not something such as coffee filters that you do use daily. Just an idea.

best regards, lm

I read that post by me a little while ago and I know it is confusing... what I meant was - normally if I get glutened, it is over in a day or two. I came to the conclusion that this was something I was getting regulary into my system because it wasn't going away. And day by day it just gets worse. My DH symptoms have lessened in the last few days but not completely - I don't know what is happening, I was doing great and all of a sudden it just started and it's getting to the point that I'm scared to eat - just like it was when I first went gluten free last year. I just don't know. I just want to crawl in a hole. I'm really tempted to take the prednizone that my dermatologist prescribed for me before we knew what was going on... she gave me more than I needed that first time just in case I needed them again. Prednizone will knock it out and I can start with a clean slate. I think I will call her and see what she says.

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I completely agree with Gemini. If someone wants to post something saying certain products have gluten, they should provide a link or something to support that. The same goes for Gluten-free products. Don't get upset just because someone told you that you might have another food intolerance. Actually, most people that have Celiac disease have another food disorder, so do YOUR research. And I have DH and I drink coffee and wine all the time, and it has NEVER effected me! So let's learn how to control our tempers people! Act like a grown up!

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I completely agree with Gemini. If someone wants to post something saying certain products have gluten, they should provide a link or something to support that. The same goes for Gluten-free products. Don't get upset just because someone told you that you might have another food intolerance. Actually, most people that have Celiac disease have another food disorder, so do YOUR research. And I have DH and I drink coffee and wine all the time, and it has NEVER effected me! So let's learn how to control our tempers people! Act like a grown up!

Think we got it covered. Thanks. ;)

Sometimes, due to extended illnesses, some days are difficult. We get frustrated. Those are the days when you extend a hand, not judge or scold.

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