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Things Are Getting Better


sugarsue

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sugarsue Enthusiast

A big thank you to those who have posted food advice for us. You have proven to be an invaluable resource. Things are starting to turn around at our house. My daughter is now asking for rice with butter, rice noodles, eggs, asparagus.... She's planning her lunches with fruit and nuts (and plenty of Lays potato chips).

She loves the Bell and Evans chicken nuggets. She's learning to like the Larabars. And she's eating, eating, eating. She can't get enough and she's not crying for her old food.

There's still so much for her to learn to like, but I can really see it opening up for her.

I posted her test results here. If you have any thoughts, I'd love to hear them. I am still waiting to hear what her doctor will think and what our next steps are. It's obvious she is responding to the diet. I am interested in getting further testing done. Any thoughts about Enterolabs and their genetic and stool testing?

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Susan

Mom to almost 6 yr old, really totally gluten free for 1 week


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CeliacMom2008 Enthusiast

How wonderful! The eating thing amazed me - the quantity. I always thought my son was a big eater. Then we went gluten free - OH MY! I would pack his lunch box jammed full! And my mom would take him lunch twice a week to give her extra big meals. They don't get very long for lunch and she would come home laughing about how the other kids talk and carry on and he just eats, eats, eats! It tapered off after a month or so. But in that time he also grew like a weed! I think they call it catch up growth. It's awesome to experience because you know they finally feel good and are finally getting the nutrition their little bodies so need!

Good luck with the lifestyle. Keep it creative, keep it fun, keep it positive and you'll all be great!!

dandelionmom Enthusiast

Wonderful! And the eating like crazy thing tapers off eventually! :)

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    • Rogol72
      @HAUS, I was at an event in the UK a few years back. I remember ringing the restaurant ahead to inquire about the gluten free options. All I wanted was a few gluten free sandwiches, which they provided and they were delicious. The gluten-free bread they used was Warbutons white bread and I remember mentioning it on this site before. No harm in trying it once. It's fortified with Calcium and Iron. https://www.warburtonsglutenfree.com/warbs_products/white-loaf/ The only other gluten-free bread that I've come across that is fortified is Schar with Iodized salt, nothing else.
    • Scott Adams
      In the U.S., most regular wheat breads are required to be enriched with certain B-vitamins and iron, but gluten-free breads are not required to be. Since many gluten-free products are not enriched, we usually encourage people with celiac disease to consider a multivitamin.  In the early 1900s, refined white flour replaced whole grains, and people began developing serious vitamin-deficiency diseases: Beriberi → caused by a lack of thiamin (vitamin B1) Pellagra → caused by a lack of niacin (vitamin B3) Anemia → linked to low iron and lack of folate By the 1930s–40s, these problems were common in the U.S., especially in poorer regions. Public-health officials responded by requiring wheat flour and the breads made from it to be “enriched” with thiamin, riboflavin, niacin, and iron. Folic acid was added later (1998) to prevent neural-tube birth defects. Why gluten-free bread isn’t required to be enriched? The U.S. enrichment standards were written specifically for wheat flour. Gluten-free breads use rice, tapioca, corn, sorghum, etc.—so they fall outside that rule—but they probably should be for the same reason wheat products are.
    • Scott Adams
      Keep in mind that there are drawbacks to a formal diagnosis, for example more expensive life and private health insurance, as well as possibly needing to disclose it on job applications. Normally I am in favor of the formal diagnosis process, but if you've already figured out that you can't tolerate gluten and will likely stay gluten-free anyway, I wanted to at least mention the possible negative sides of having a formal diagnosis. While I understand wanting a formal diagnosis, it sounds like she will likely remain gluten-free either way, even if she should test negative for celiac disease (Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If her symptoms go away on a gluten-free diet, it would likely signal NCGS).        
    • JoJo0611
    • deanna1ynne
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