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Finding A Knowledgable Supportive Practitioner In Nh

jkpg

By jkpg
in Doctors

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jkpg Newbie
jkpg
Posted

Hello all - I am new to the list and it sounds like quite a bit of time occurs between symptoms and diagnosis and some misdiagnois as well. I was wondering if there is a list of knowledgable and supportive medical practitioners categorized by state?

About 15 years ago when I was in my late 20's, I developed a large purplish thick patch on my breast which was biopsied. About the same time I had a bout of arthritis - every single joint in my body was inflammed, I could barely walk. I was told I had scleroderma - the patch disappeared and after a week the arthritis basically resolved - flaring up only occassionally.

Last October, I started having *episodes* when I was in big box stores - mainly at the grocery store at checkout. I felt like I was going to pass out. I was having alot of knee and foot pain as well. I attributed this to low blood sugar or too much caffeine. I cut out the caffeine and made sure I drank water and ate before I went out. But the *episodes* continued to happen.

Then in January I suffered a very traumatic loss - my husband died of a heart attack. The episodes started occurring more frequently and more severe. At one point I was taken to the emergency.

I feel like I have had every sort of test you can have - Cat scan, MRI, balance test, heart tests, table tilt test, blood tests ..... I was offered medication for anxiety but since the episodes had occurred prior to the trauma, I didn't feel that this would solve the problem. My blood did come back elevated for autoimmune disease and the rheumatologist said I had scleroderma (later she admitted that her diagnosis was based on previous history and that the blood test can't specify what autoimmune disease I had).

I did see a naturopath and she suggested a gluten free diet - she didn't recommend any testing. I have been on it for several months now although I must say I haven't been strict. I do feel much better and have not had an episode since I have been on the gluten-free diet. I have decided that I am going to be more strict and just recently purchased some fascinating books and cook books.

However, I would really like to confirm the diagnosis of gluten intolerance or celiac disease. This hasn't been suggested or mentioned at all by the medical doctors (I have seen 5 or 6 at least).

Does anyone have any recommendations for practitioners in the Lakes Region of NH to assist with diagnosis?

jkpg

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happygirl Collaborator
happygirl
Posted

Hi jkpg,

Welcome to the board. I hope you are able to find some much needed answers.

In order for proper testing of Celiac, you must be eating a normal gluten filled diet.

If no one has a doctor that they recommend, it may help to contact local support groups for ideas.

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Another option is to go to a doctor you trust, discuss Celiac with them and ask them to test you for it.

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