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New Here, Pre-diagnosis.

LIS-Guy

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LIS-Guy Rookie
LIS-Guy
Posted

Hi,

I'm a 45 year-old male who has been struggling for about five years now with debilitating fatigue.

I have had chronic diarrhea since childhood, often uncontrollable, that led to many episodes of 'not making it to the bathroom in time', even into my early teens. I suffered with terrible hay fever as a child that could not be controlled with any amount of medication. When I was 12 I got mononucleosis and had to be hospitalized due to its severity. I don't know what, if anything, these may have to do with Celiac, but I mention these because frankly my immune system has never been quite right since.

Through my twenties and thirties the chronic diarrhea remained but I did learn to live with it. I have recurrent ear and sinus infections and take antibiotics an average of four times per year. I've now become allergic to keflex and sulfa drugs. About five years ago I moved into a new apartment in an old house and developed a sinus infection within a month. I still have it to this day. Even sinus surgery did not relieve it and I've been told it's just 'one of those things'. This is when the fatigue started and has worsened ever since.

Last year my landlord was required to have a health inspection done of the premises. The health inspector was concerned enough by the findings to call me at home and tell me to 'move out of the house as soon as possible'. Apparently the mold was so bad the apartment was unfit to live in. The house had a wet dirt floor in the basement, forced-air heating, and open return-air vents thru which you could see the basement floor. I had been breathing all that in for four years. I moved immediately into modern housing which is very clean and well-maintained, but the fatigue never went away.

I don't have the best insurance right now and frankly my doctor thinks I'm a nutjob. I've been told it's just depression, and I also have low levels of several vitamins, and was prescribed antidepressants and vitamin supplements. Interestingly, several months ago I went on a low-carb diet to lose weight and was suprised to find my symptoms got a little better. I didn't put two and two together at the time, but when you do low-carb you virtually eliminate grains.

Questions: Could I have Celiac's? Could my exposure to the mold have triggered it to get worse?

Thanks for any help,

LIS

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CarlaB Enthusiast
CarlaB
Posted

I would check out this website. www.biotoxin.info Just because you remove the mold exposure does not mean your body was able to detox the toxins. Gluten produces a similar biotoxin to mold, so you could have a problem with gluten (including celiac) in addition to having a problem with the mold toxins.

There are some great webcasts on that website. The doctor there is considered an expert in biotoxin treatment and even mentions gluten/celiac in the webcasts.

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MELINE Enthusiast
MELINE
Posted

Hello

check candida...

antibiotics trigger it, mold makes it worse, and fatigue is a main symptom......

Meline

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nora-n Rookie
nora-n
Posted

Yes you could have had celiac all the time.

Were any tests run?

Be aware now that celiac tests are very unreliable after being low-carb.

happened to me.

In order to test positive on conventional celiac tests and endoscopy, one has to consume at least 0,3 g gluten per kg weight for at least 6 weeks, better for at least 3 months before testing.

If you want a more sensitive test, you can do the enterolab tests, the stool test and the gene test. But they cannot diagnose celiac, because their tests are too sensitive and detect the antibodies long before they get so bad they enter the blood stream.

nora

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LIS-Guy Rookie
LIS-Guy
  • Author
Posted

Thank you for the valuable information.

I guess it's been about 3 months since I was on the low-carb diet. I only stuck with it for a few weeks however and my chronic diarrhea returned almost immediately upon discontinuing it. I then went to the other extreme and attempted a vegetarian diet thinking it might help my vitamin deficiency and other symptoms. I knew nothing about Celiac at the time... I just thought a vegetarian diet seemed healthier overall. Needless to say I ate a LOT of grains for the thirty days I was vegetarian, and felt absolutely miserable.

I'm going to try and get an appointment to see a gastroenterologist asap. I talked to my primary care doctor's nurse yesterday and found out that my insurance does not require a referral from him if I choose to see a specialist that is in-network. I'll kinda feel like I'm going behind his back, and he won't be happy about it, but at this point I just want answers.

LIS

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ravenwoodglass Mentor
ravenwoodglass
Posted
Thank you for the valuable information.

I guess it's been about 3 months since I was on the low-carb diet. I only stuck with it for a few weeks however and my chronic diarrhea returned almost immediately upon discontinuing it. I then went to the other extreme and attempted a vegetarian diet thinking it might help my vitamin deficiency and other symptoms. I knew nothing about Celiac at the time... I just thought a vegetarian diet seemed healthier overall. Needless to say I ate a LOT of grains for the thirty days I was vegetarian, and felt absolutely miserable.

I'm going to try and get an appointment to see a gastroenterologist asap. I talked to my primary care doctor's nurse yesterday and found out that my insurance does not require a referral from him if I choose to see a specialist that is in-network. I'll kinda feel like I'm going behind his back, and he won't be happy about it, but at this point I just want answers.

LIS

You could start by calling your GP's office and asking him to order a celiac panel for you. If your doctor knows of your long term history of D he should not have a problem with ordering it. There is a chance your blood panel may show up positive and if it does your doctor could significantly cut your waiting time for an endo by contacting the gastro. No definates there but worth a shot.

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LIS-Guy Rookie
LIS-Guy
  • Author
Posted

Good news.

I have an appointment to see a gastroenterologist on the 30th of this month, it's covered by my insurance, and I'm told she is well-versed in Celiac's. Twenty-seven days doesn't seem like that long to wait for a specialist, does it? To be honest I didn't expect to get in so soon. The hardest part will be continuing to eat gluten till the end of the month while I'm feeling like such crap, but I'll just have to buck up and keep pounding down the bread and pasta while I wait.

Thanks for the help,

LIS

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