Jump to content
  • Join Our Community!

    Do you have questions about celiac disease or the gluten-free diet?


Anyone Biopsied W/in 6 Mo. Off Gluten? Plus Fertility ?s

Rate this topic

Recommended Posts

I am reading Peter Green's 2006 book "Celiac Disease: A Hidden Epidemic." I was surprised to read he feels you can biopsy w/in first 6 months off gluten, that it takes 6 mo. to 1 yr. for the tissue to heal. Well I'm about 4 mo. to the day and had written off a chance at a biopsy 'til now. I just wonder if others hear conflicting info about this time frame, or actually got a positive dx during this window. I need to decide what to do fast. I'll be unavailable for it from Oct. 15 through at least early Nov., and then will be 5 mo. into gluten-free. I *really* don't want to biopsy and have them pull up nothing if something's there 'cause I'll wonder and wonder, did they just miss the right spot? How many sites do they grab from? Can they see that they're getting the areas most likely to be damaged first, etc.? If I could have celiac without villi atrophy yet, should I bother? Shouln't the gene test come 1st? If no genes, no biopsy.

My main concern is much resolution of bloating/distention on gluten-free (though not completely, it's clearly a lot better and I'm working on other food problems like dairy, potatoes ...), and regular periods almost 5 mo. straight for the first time at age 46 (never wanted to get pregnant). I was always treated for PCOS though I always seemed somewhat on the periphery of that symptom cluster, even told my ovaries were not enlarged or polycystic. Green's book is quite objective and he readily says when a condition doesn't have good research support for a relationship with celiac, but the fertility issue gets treated like osteoporosis, DH, malignancies, etc., i.e., as something that is likely more than just an intolerance. I can't find anywhere an indication that non-celiac gluten intolerance can mess with fertility. Anyone else?

So how many of you would go with the biopsy asap? How many wouldn't? I know I really have to decide for myself.

What does it cost if my ins. won't pay?

Share this post

Link to post
Share on other sites

Join the conversation

You can post now and register later. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.

Reply to this topic...

×   Pasted as rich text.   Paste as plain text instead

  Only 75 emoji are allowed.

×   Your link has been automatically embedded.   Display as a link instead

×   Your previous content has been restored.   Clear editor

×   You cannot paste images directly. Upload or insert images from URL.

  • Top Posters +

  • Upcoming Events

    • May 22, 2019 04:00 PM Until 08:00 AM
      Celiac Emotional Healing Support Group
      Again you are invited to join Johnny Patout, LCSW for Baton Rouge's first emotional healing support group meeting to assist those living with celiac disease manage the emotional challenges so many of us face. Most often the emotional disturbances include depression, disinterest in normal activities, insomnia, grief, mood changes, anxiety, inability to concentrate, extreme concern about managing a gluten-free lifestyle and other emotional and behavioral challenges.
      The professionals at Jamestown Avenue Counseling Center created the emotional healing support group to give us a safe place to begin to process our emotions and support each other as we heal emotionally while managing celiac disease and the resulting autoimmune disorders.
      The emotional healing support group meets every Thursday, 6:00-7:00pm, at the Jamestown Avenue Counseling Center of Baton Rouge. Jamestown Avenue Counseling Center is located at 4637 Jamestown Avenue, Baton Rouge, Suite B-1. Suite B-1 is upstairs.
      The support group is free and open everyone managing celiac disease. For more information: emotionalhealingforceliacs@hotmail.com
    • June 01, 2019 Until June 02, 2019
      Nourished Festival is a family-friendly event with 10 locations across the US. Attendees will be able to sample food, health and beauty products, meet with companies, learn about the most current food lifestyles, receive coupons and attend educational sessions with industry experts. 
      Nourished Festival, managed by The Nourished Group and presented by Enjoy Life Foods, is the largest gluten-free, allergy-friendly and specialty diet event in the US, with 10 locations including.
      Managed by The Nourished Group, formerly The Gluten Free Media Group, The Nourished Festivals are the largest and fastest growing special diet consumer events in the United States. Started in 2007, the events have expanded from one to ten cities throughout the country. The festivals cater to anyone looking to lead a healthier lifestyle or those who follow a specialty diet due to autoimmune conditions, food sensitivities, allergies or intolerances. Offerings including Paleo, Keto, Plant-Based, Gluten-Free, Allergen-Friendly and Nut-Free products. The events provide the opportunity for attendees to sample and purchase new products, receive coupons, meet with brand ambassadors and attend educational classes with industry experts. For more information, visit http://www.nourishedfestival.com 
    • July 07, 2019 Until August 03, 2019
      For more information, visit www.kefss.com or call (407) 255-6550. info@kefss.com 

      KEF USA Summer Camps Announces the New KEF Gluten-Free Camp in Orlando, Florida for Youths with Celiac Disease.

      [Orlando, FL February 6, 2019]-KEF USA is excited to announce that we will offer a new 100% gluten-free camp program to give kids and teens with Celiac Disease a safe, exciting and healthy summer. KEF USA programs offer fun and unique experiences that can only be found in Orlando, Florida. Campers explore the theme parks and local attractions, make new friends, discover new interests and create memories that last a lifetime.

  • Create New...