Jump to content
  • Join Our Community!

    Do you have questions about celiac disease or the gluten-free diet?

genuis boy

Fatigue & Exhaustion

Rate this topic

Recommended Posts

Have you had your Thyroid tested? Iron and Ferritin? B12?

Are you Celiac or Gluten Intolerant? If so are you 100% gluten free?

Please tell us more about yourself so we can help you.

Share this post

Link to post
Share on other sites

A lot of us have had to struggle with this. How long have you been gluten-free? Are you still consuming dairy? What have you already tried to help with this issue?

For some a sublingual B12 can be very helpful for energy. Try to eat as cleanly and as much naturally gluten free food as you can. Try to keep to a routine for sleeping, go to bed and get up at the same time every day. A warm bath or shower with a lavender scented soap can help as can a eye pillow filled with lavender. Try not to have anything with a lot of sugar of caffine after 12pm noon and try to get some excercise on a regular basis. Before bed try to get a routine down so your body and mind knows it is time to sleep. Do something quiet and relaxing whether it is reading a book or listening to some soft music or watching a nonstimulating TV program.

Welcome to the board and I hope you get some relief soon.

Share this post

Link to post
Share on other sites

I am celiac for 7 yrs. I probably am casein intolerant rather than lactose, that has gone on for 30 yrs. Yes I do cheat and consume some diary, mostly yogurt and mozzarella cheese. I was thinking of doing the CBC blood test, so I guess I will try to do thyroid and b12 later depending on cost. I am currently on an antidepressant. I am also a full time student so my hours tend to vary. I will try the lavender before bed as I have gotten interested in aromatherapy. I only have begone to consume a bottle of tea at about 1030 in the morning or at noon with lunch. Before that I never consumed caffeine after becoming celiac. I just tried some b-12 before I went to bed last night and I felt like I actually got some sleep when I got up. I have done b12 in the morning along with zinc and calcium 3 times a day. Thanks very much for your help and support.

Share this post

Link to post
Share on other sites

If you suspect you're casein intolerant, you should try cutting out all dairy products for a while. I know it's a pain, but that might well be keeping you feeling tired, I know if I would have dairy even just now and then I wouldn't be getting out of bed. It can also make you slightly depressed.


Share this post

Link to post
Share on other sites

Discuss with your doctor


Dig Liver Dis. 2007 Oct;39(10):922-8. Epub 2007 Aug 10. Links

L-Carnitine in the treatment of fatigue in adult celiac disease patients: a pilot study.Ciacci C, Peluso G, Iannoni E, Siniscalchi M, Iovino P, Rispo A, Tortora R, Bucci C, Zingone F, Margarucci S, Calvani M.

Gastrointestinal Unit, Department of Clinical and Experimental Medicine, University Federico II, Naples, Italy. ciacci@unina.it

BACKGROUND: Fatigue is common in celiac disease. L-Carnitine blood levels are low in untreated celiac disease. L-Carnitine therapy was shown to improve muscular fatigue in several diseases. AIM: To evaluate the effect of L-carnitine treatment in fatigue in adult celiac patients. METHODS: Randomised double-blind versus placebo parallel study. Thirty celiac disease patients received 2 g daily, 180 days (L-carnitine group) and 30 were assigned to the placebo group (P group). The patients underwent clinical investigation and questionnaires (Scott-Huskisson Visual Analogue Scale for Asthenia, Verbal Scale for Asthenia, Zung Depression Scale, SF-36 Health Status Survey, EuroQoL). OCTN2 levels, the specific carnitine transporter, were detected in intestinal tissue. RESULTS: Fatigue measured by Scott-Huskisson Visual Analogue Scale for Asthenia was significantly reduced in the L-carnitine group compared with the placebo group (p=0.0021). OCTN2 was decreased in celiac patients when compared to normal subjects (-134.67% in jejunum), and increased after diet in both celiac disease treatments. The other scales used did not show any significant difference between the two celiac disease treatment groups. CONCLUSION: L-Carnitine therapy is safe and effective in ameliorating fatigue in celiac disease. Since L-carnitine is involved in muscle energy production its decreased absorption due to OCTN2 reduction might explain muscular symptoms in celiac disease patients. The diet-induced OCTN2 increase, improving carnitine absorption, might explain the L-carnitine treatment efficacy.

Share this post

Link to post
Share on other sites

Just get your thyroid checked before trying L-Carnitine. It can worsen a hypothyroid condition. Google it. Learn before you try.

Share this post

Link to post
Share on other sites

Sorry I haven't got back to anyone, I have been studying for 5 tests this week. I was taking b12 3 times a day and that seemed to wind me up, so I am doing two a day now. That does seem to help. I did try L-Carnitine a couple of months ago, but that didn't seem to do anything. I think that the best place to start is with some blood work. They place by me has a fatigue panel, but I think I will try a CBC first. I'll hav eto get brave and eliminate dairy for a while and see what happens. :(

Share this post

Link to post
Share on other sites

Join the conversation

You can post now and register later. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.

Reply to this topic...

×   Pasted as rich text.   Paste as plain text instead

  Only 75 emoji are allowed.

×   Your link has been automatically embedded.   Display as a link instead

×   Your previous content has been restored.   Clear editor

×   You cannot paste images directly. Upload or insert images from URL.

  • Top Posters +

  • Upcoming Events

    • May 29, 2019 04:00 PM Until 08:00 AM
      Celiac Emotional Healing Support Group
      Again you are invited to join Johnny Patout, LCSW for Baton Rouge's first emotional healing support group meeting to assist those living with celiac disease manage the emotional challenges so many of us face. Most often the emotional disturbances include depression, disinterest in normal activities, insomnia, grief, mood changes, anxiety, inability to concentrate, extreme concern about managing a gluten-free lifestyle and other emotional and behavioral challenges.
      The professionals at Jamestown Avenue Counseling Center created the emotional healing support group to give us a safe place to begin to process our emotions and support each other as we heal emotionally while managing celiac disease and the resulting autoimmune disorders.
      The emotional healing support group meets every Thursday, 6:00-7:00pm, at the Jamestown Avenue Counseling Center of Baton Rouge. Jamestown Avenue Counseling Center is located at 4637 Jamestown Avenue, Baton Rouge, Suite B-1. Suite B-1 is upstairs.
      The support group is free and open everyone managing celiac disease. For more information: emotionalhealingforceliacs@hotmail.com
    • June 01, 2019 Until June 02, 2019
      Nourished Festival is a family-friendly event with 10 locations across the US. Attendees will be able to sample food, health and beauty products, meet with companies, learn about the most current food lifestyles, receive coupons and attend educational sessions with industry experts. 
      Nourished Festival, managed by The Nourished Group and presented by Enjoy Life Foods, is the largest gluten-free, allergy-friendly and specialty diet event in the US, with 10 locations including.
      Managed by The Nourished Group, formerly The Gluten Free Media Group, The Nourished Festivals are the largest and fastest growing special diet consumer events in the United States. Started in 2007, the events have expanded from one to ten cities throughout the country. The festivals cater to anyone looking to lead a healthier lifestyle or those who follow a specialty diet due to autoimmune conditions, food sensitivities, allergies or intolerances. Offerings including Paleo, Keto, Plant-Based, Gluten-Free, Allergen-Friendly and Nut-Free products. The events provide the opportunity for attendees to sample and purchase new products, receive coupons, meet with brand ambassadors and attend educational classes with industry experts. For more information, visit http://www.nourishedfestival.com 
    • July 07, 2019 Until August 03, 2019
      For more information, visit www.kefss.com or call (407) 255-6550. info@kefss.com 

      KEF USA Summer Camps Announces the New KEF Gluten-Free Camp in Orlando, Florida for Youths with Celiac Disease.

      [Orlando, FL February 6, 2019]-KEF USA is excited to announce that we will offer a new 100% gluten-free camp program to give kids and teens with Celiac Disease a safe, exciting and healthy summer. KEF USA programs offer fun and unique experiences that can only be found in Orlando, Florida. Campers explore the theme parks and local attractions, make new friends, discover new interests and create memories that last a lifetime.

  • Member Statistics

    • Total Members
    • Most Online

    Newest Member
    Maria 1952
  • Forum Statistics

    • Total Topics
    • Total Posts
  • Who's Online (See full list)

  • Forum Discussions

    Thank you for all of the suggestions and information.  I will see a lot of the symptoms that I have that I didn't mention listed caused by lack of certain enzymes.  I have blood tests every 3 months. That is when I noticed my cholesterol, etc. not in check.  I eat too many carbohydrates because it causes less diarrhea than a lot of vegetables.  But in talking to 3 of my sisters they are already on medication for the problem.   One has Celiacs the other has Sjorgrens which I also have.  I'm conce
    For the fog and memory, it can be many things, the brain requires certain ratios and amounts of fat to function, it also requires b-vitamins the full spectrum among other amino acids, minerals and vitamins, nerve functions require magnesium, potassium and other things to fire right.  Celiac can hamper the ability to break down and absorb nutrients, digestive issues and enzymes can further complicate this, and trying to eat the right ratios of foods. I supplement with Liquid Health Mega B-compl
    I am interested in your comments about losing your memory.  I have Celiacs and IBS, etc.   Very difficult to eat a healthy diet.  One goes against the other.  The past year I have noticed a marked difference in my memory and was very concerned about it because my mother had Alzheimer's.  I had a brain scan but that is not the problem at least it doesn't show up on the MRI.  All of my blood enzymes are way out of line for my size and I'm thinking it's the diet and inability to do extensive exerci
  • Blog Entries

  • Create New...