Jump to content
  • Join Our Community!

    Do you have questions about celiac disease or the gluten-free diet?

Rate this topic

Recommended Posts

So I definitly want to stay gluten-free even though I was never diagnosed...but then there is the other side of me constantly debating this....knawing at me.....

I already have been through the pros and cons of doing a gluten challenge. (To me there seems to be more cons!!!)

I am just curious if there is anyone here who was on a gluten-free diet and then went back on gluten to get tested....

if so could you just tell me:

1. how long you were gluten-free

2. how long you stayed on gluten for the challange

3. and what your results were???

Thanks so much!

Share this post

Link to post
Share on other sites

I have done 2, once when I added gluten back in on the doctor assisted elimination diet and then again 2 months later for the GI doctor. The first lasted 3 days before I reacted with violent D and a resergence of my other symptoms. The second was done when the GI doctor demanded one before he would biopsy. They were about 2 months apart and I had been gluten-free total for 3 months. The first challenge was bad and my allergist told me to stop and never touch gluten again, then step in my GI doctor who demanded a week long challenge then changed it to 3 days because I was afraid to do it at all. I should have gone with my gut feelings on that one as when it came time to leave for the appointment for the biopsy I was prostrate on the bathroom floor bleeding from my intestines. IMHO challenges are good for telling if you are reacting, if done correctly but they should be stopped at the point when we react. I got my doctor derived official diagnosis but it was at a high cost. I would never do it again.

Share this post

Link to post
Share on other sites

I just joined this forum, but like most of you I have soooo many questions. I have been having symptoms, D and stomach pain for a long time but it has worsened in the last 4-5 years. I have had 2 colonoscopies in which the docs said I had IBS. "What is IBS?" I asked my GP. He basically told me it's a diagnosis for when they don't really know what's wrong with you. OMG, now I feel better!

Anyway, I tried every elimination diet I could think of, added fiber to my diet, etc... Nothing worked. Then I tried going gluten-free for 2 weeks and I actually started feeling some relief. Then again, I don't know if it was just the placebo effect because I want so badly to find out what's wrong. Eating gluten-free really wasn't that bad (except for lunch). I would be happy to do it, if it solves the problems.

I called my gastroenterologist, made an appt (in 3 weeks), and started eating gluten again.

Any advice about what to ask the dr. would be appreciated.

Thanks in advance!

Share this post

Link to post
Share on other sites

I did a gluten challenge for my biopsy. I was initially diagnosed by my GP, via very positive bloodwork. Here in Canada, there are song long wait times to see specialists, especially GI docs, so I had a four month wait before I could have my biopsy. My doctor suggested I go gluten free as long as I could, since I was feeling much better on the diet, and then back on gluten for 8 weeks prior to the test.

I started eating gluten again pn July 23. I ended up having my biopsy on October 2. It actually took me a while (maybe a week?) to start reacting to the gluten, but everyone is different. Near the end of my challenge, I was getting VERY sick - the day of my biopsy I ended going to the bathroom at least 30 times (sorry if TMI).

On the other hand, now I have no question that I can't eat gluten, it's not lingering as a doubt in the back of my mind. And my cravings for gluten containing foods are mostly gone right now - I see a piece of cake and think about how sick it will make me!

Feel free to ask me any more questions if you like.

Share this post

Link to post
Share on other sites

Join the conversation

You can post now and register later. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.

Reply to this topic...

×   Pasted as rich text.   Paste as plain text instead

  Only 75 emoji are allowed.

×   Your link has been automatically embedded.   Display as a link instead

×   Your previous content has been restored.   Clear editor

×   You cannot paste images directly. Upload or insert images from URL.

  • Top Posters +

  • Upcoming Events

    • May 29, 2019 04:00 PM Until 08:00 AM
      Celiac Emotional Healing Support Group
      Again you are invited to join Johnny Patout, LCSW for Baton Rouge's first emotional healing support group meeting to assist those living with celiac disease manage the emotional challenges so many of us face. Most often the emotional disturbances include depression, disinterest in normal activities, insomnia, grief, mood changes, anxiety, inability to concentrate, extreme concern about managing a gluten-free lifestyle and other emotional and behavioral challenges.
      The professionals at Jamestown Avenue Counseling Center created the emotional healing support group to give us a safe place to begin to process our emotions and support each other as we heal emotionally while managing celiac disease and the resulting autoimmune disorders.
      The emotional healing support group meets every Thursday, 6:00-7:00pm, at the Jamestown Avenue Counseling Center of Baton Rouge. Jamestown Avenue Counseling Center is located at 4637 Jamestown Avenue, Baton Rouge, Suite B-1. Suite B-1 is upstairs.
      The support group is free and open everyone managing celiac disease. For more information: emotionalhealingforceliacs@hotmail.com
    • June 01, 2019 Until June 02, 2019
      Nourished Festival is a family-friendly event with 10 locations across the US. Attendees will be able to sample food, health and beauty products, meet with companies, learn about the most current food lifestyles, receive coupons and attend educational sessions with industry experts. 
      Nourished Festival, managed by The Nourished Group and presented by Enjoy Life Foods, is the largest gluten-free, allergy-friendly and specialty diet event in the US, with 10 locations including.
      Managed by The Nourished Group, formerly The Gluten Free Media Group, The Nourished Festivals are the largest and fastest growing special diet consumer events in the United States. Started in 2007, the events have expanded from one to ten cities throughout the country. The festivals cater to anyone looking to lead a healthier lifestyle or those who follow a specialty diet due to autoimmune conditions, food sensitivities, allergies or intolerances. Offerings including Paleo, Keto, Plant-Based, Gluten-Free, Allergen-Friendly and Nut-Free products. The events provide the opportunity for attendees to sample and purchase new products, receive coupons, meet with brand ambassadors and attend educational classes with industry experts. For more information, visit http://www.nourishedfestival.com 
    • July 07, 2019 Until August 03, 2019
      For more information, visit www.kefss.com or call (407) 255-6550. info@kefss.com 

      KEF USA Summer Camps Announces the New KEF Gluten-Free Camp in Orlando, Florida for Youths with Celiac Disease.

      [Orlando, FL February 6, 2019]-KEF USA is excited to announce that we will offer a new 100% gluten-free camp program to give kids and teens with Celiac Disease a safe, exciting and healthy summer. KEF USA programs offer fun and unique experiences that can only be found in Orlando, Florida. Campers explore the theme parks and local attractions, make new friends, discover new interests and create memories that last a lifetime.

  • Create New...