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crunchy_mama

Symptoms Worse Instead Of Better- How Much Longer- Please!

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My 4y.o. is going on day 8 of being gluten-free/cf. His symptoms (behavioral) are way worse instead of better. He was sporadically peeing the bed when he had something to drink right before bed, now it has been nearly every day. He has also started peeing himself out of defiance and has just been a nightmare. The stools got better and then worse. I am thinking there are other issues going on w/ perservatives and colors etcf(we are going to be starting the feingold diet as soon as it comes in the mail). But I am also wondering what the range is for symptoms to subside. This week has been so hard. I do have to add that it seems we are having a harder issue getting the casein out. We had some chocolate chips for a few days that were marked as cf but then we got a recall notice. He got some gum one day and then yesterday 2 bites of ham w/ trace dairy. Please! Please! Tell me about your child's recovery.

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So sorry it is worse for you right now. Keep in mind there is a "de-tox" period from gluten (and casein). The proteins in these foods fit into the "opiate" receptors in our brains. Which means they are addictive. He is going through withdrawal and it can last a week or 2. It was about 2 weeks for me. I didnt notice improvements in the BM's for 6 weeks. So hang in there!!!

Meanwhile make double sure nothing he eats has GLUTEN. And if cutting the dairy too...you have to be very diligent.

It does get better. Promise.

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My son was about two weeks before we noticed any difference. His tummy aches stopped (more or less) after that but he had no energy for about six weeks. We are just starting to notice his concentration improving four months later.

It takes a while and it is hard, but keep at it. Once you're through this rough patch things will improve. I expected immediate changes but it doesn't always work like that.

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