Jump to content
  • Join Our Community!

    Do you have questions about celiac disease or the gluten-free diet?

ABQturkey

Low-level Allergy To Milk

Rate this topic

Recommended Posts

I'm going to post this in more than one forum because I need as many answers as I can get. My 6yo daughter was diagnosed w/celiac in mid-July and we've been doing the gluten-free thing since then. Her behavior has gotten worse since then and she still has stomach-aches, so the doctor ran an allergy panel and the only thing that came back elevated was milk. It was a low-level reading (0.63H - low level is between 0.35-0.70). Her regular pediatrician is out on medical leave so I was left with many questions. She's been drinking Lactaid and taking the Lactaid pills before she eats cheese and such. Are we supposed to stop all milk - even Lactaid milk? Does this encompass all dairy foods or just milk? I'm not sure what we should be avoiding and what's ok at this level. Please help!

Share this post


Link to post
Share on other sites

Welcome,

I would revisit her gluten free diet. Have you checked your used toaster, wooden cutting boards and spoons, lotions, shampoo, meds, vitamins or any contact she may have with her mouth.

Contamination at school is very difficult to avoid, with personal contact with food and other children. Are her school supplies safe. Play Doh is not. Have you met with her teachers and discussed her diet?

It's so difficult with children, especially when they are out of our watchful eyes during the day.

Share this post


Link to post
Share on other sites

I don't know about the allergy testing, but if your daughter is allergic to casein (milk protein) instead of lactose (milk sugar) you should eliminate all dairy products from her diet... milk, cheese, and whey are the big ones. Taking Lactaid doesn't help. Anything marked Kosher "pareve" is fine as long as it's also gluten-free. I'm leery of cheese substitutes (soy, rice) because I'm kind of a cheese snob :P (I grew up in Wisconsin), but soy milk and almond milk are good on cereal. Soy yogurt is good too. Rice milk... except for Rice Dream... is also fine, but I don't like the taste as much.

Share this post


Link to post
Share on other sites

That is really low (Class 1) It's lower than what my son's was and we were told we didn't have to do anything. However, I'm not your doctor so you should check with them. In the meantime, here is a website that gives a little more info so you can see just how low it is . . .

http://www.oregonallergy.com/id17.html

My son was a Class 2 and the nurse said sometimes what they want (for the low level allergies) is for any type of "milk" ingredient to be at least third or fourth on the list of a product . . . but like I've said, our doc gave us no restrictions.

Also, like Momma Goose said . . . I'd take another look around for inadvertant gluten consumption.

Share this post


Link to post
Share on other sites

Lactaid won't eliminate the casein and that's what she's allergic to. Yes, eliminate it. Be sure to watch for things like canned soups, margarine, canned icing, etc. Lots of things contain dairy.

Share this post


Link to post
Share on other sites
I'm going to post this in more than one forum because I need as many answers as I can get. My 6yo daughter was diagnosed w/celiac in mid-July and we've been doing the gluten-free thing since then. Her behavior has gotten worse since then and she still has stomach-aches, so the doctor ran an allergy panel and the only thing that came back elevated was milk. It was a low-level reading (0.63H - low level is between 0.35-0.70). Her regular pediatrician is out on medical leave so I was left with many questions. She's been drinking Lactaid and taking the Lactaid pills before she eats cheese and such. Are we supposed to stop all milk - even Lactaid milk? Does this encompass all dairy foods or just milk? I'm not sure what we should be avoiding and what's ok at this level. Please help!

I would do a two week elimination on all milk products to see if it helps. Milk products are the catalyst to really bad behavour in our family. We prefer homemade almond milk as a replacement and we make a vegan cheese with cashews and nutritional yeast that is extremely yummy. Is she getting enough fiber. Store bought gluten free stuff and mixes are all practically fiberless. Adding veggies and ground flax seeds to muffins is a nice and tasty fiber boost. I add ground gluten free oats to all of my baking, peanut butter oatmeal cookies are especially popular. Organic coconut oil works especially well as a butter replacement and is a very healthy addition to a celiac's diet because of the higher risk of thyroid issues.

Share this post


Link to post
Share on other sites

Join the conversation

You can post now and register later. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.

Guest
Reply to this topic...

×   Pasted as rich text.   Paste as plain text instead

  Only 75 emoji are allowed.

×   Your link has been automatically embedded.   Display as a link instead

×   Your previous content has been restored.   Clear editor

×   You cannot paste images directly. Upload or insert images from URL.


  • Top Posters +

  • Upcoming Events

    • May 29, 2019 04:00 PM Until 08:00 AM
      0  
       
       
       
      Celiac Emotional Healing Support Group
       
       
       
      Again you are invited to join Johnny Patout, LCSW for Baton Rouge's first emotional healing support group meeting to assist those living with celiac disease manage the emotional challenges so many of us face. Most often the emotional disturbances include depression, disinterest in normal activities, insomnia, grief, mood changes, anxiety, inability to concentrate, extreme concern about managing a gluten-free lifestyle and other emotional and behavioral challenges.
       
      The professionals at Jamestown Avenue Counseling Center created the emotional healing support group to give us a safe place to begin to process our emotions and support each other as we heal emotionally while managing celiac disease and the resulting autoimmune disorders.
       
      The emotional healing support group meets every Thursday, 6:00-7:00pm, at the Jamestown Avenue Counseling Center of Baton Rouge. Jamestown Avenue Counseling Center is located at 4637 Jamestown Avenue, Baton Rouge, Suite B-1. Suite B-1 is upstairs.
       
      The support group is free and open everyone managing celiac disease. For more information: emotionalhealingforceliacs@hotmail.com
    • June 01, 2019 Until June 02, 2019
      0  
      Nourished Festival is a family-friendly event with 10 locations across the US. Attendees will be able to sample food, health and beauty products, meet with companies, learn about the most current food lifestyles, receive coupons and attend educational sessions with industry experts. 
      Nourished Festival, managed by The Nourished Group and presented by Enjoy Life Foods, is the largest gluten-free, allergy-friendly and specialty diet event in the US, with 10 locations including.
      ABOUT THE NOURISHED FESTIVALS
      Managed by The Nourished Group, formerly The Gluten Free Media Group, The Nourished Festivals are the largest and fastest growing special diet consumer events in the United States. Started in 2007, the events have expanded from one to ten cities throughout the country. The festivals cater to anyone looking to lead a healthier lifestyle or those who follow a specialty diet due to autoimmune conditions, food sensitivities, allergies or intolerances. Offerings including Paleo, Keto, Plant-Based, Gluten-Free, Allergen-Friendly and Nut-Free products. The events provide the opportunity for attendees to sample and purchase new products, receive coupons, meet with brand ambassadors and attend educational classes with industry experts. For more information, visit http://www.nourishedfestival.com 
       
    • July 07, 2019 Until August 03, 2019
      0  
      For more information, visit www.kefss.com or call (407) 255-6550. info@kefss.com 

      KEF USA Summer Camps Announces the New KEF Gluten-Free Camp in Orlando, Florida for Youths with Celiac Disease.

      [Orlando, FL February 6, 2019]-KEF USA is excited to announce that we will offer a new 100% gluten-free camp program to give kids and teens with Celiac Disease a safe, exciting and healthy summer. KEF USA programs offer fun and unique experiences that can only be found in Orlando, Florida. Campers explore the theme parks and local attractions, make new friends, discover new interests and create memories that last a lifetime.


×
×
  • Create New...