Jump to content
  • Join Our Community!

    Do you have questions about celiac disease or the gluten-free diet?

Guest scully

Is This Dh? (photos)

Rate this topic

Recommended Posts

Guest scully

About a year and a half ago, I got this HORRIBLE rash on my arms around my elbows, inner elbows, and some on my inner knees, though my arms were the worst. After it healed, it scarred, and the pigmentation lasted for a long time. The skin became very inflamed, reddish-purplish and almost LEATHERY. I tried corticosteroid creams, Eucerin, even SHAVING the dry skin and scabs off because I thought it was just an exfoliation issue. I always thought this was "winter itch", I even thought it was a wool allergy and got rid of all my wool sweaters. I started worrying that people were going to think I was one of those people who thinks they have bugs crawling on them and pick their skin to death. :rolleyes: Totally embarrassing.

Then, I got it in the spring, in the summer, in the fall, when the rest of my skin wasn't dry. ALWAYS on the sides of my elbows or in the crease, and much more often on the left arm than the right. It itches and burns at the same time, and wakes me up sometimes. After the itching goes away, it just burns, like I have turned a hot hair dryer on fresh skin. I have a patch right now and this is what it looks like. Apologies that it is healing, but my husband thought it would be a good idea to just post it anyway.

You can't tell from the photo, but the skin around these scabby areas looks like red goosebumps. This literally will pop up overnight. I will go to bed without it and wake up in the morning scratching my arms to death.



Please tell me what this is, I had no idea this seemingly inocuous and annoying rash could be linked to my GI problems. I am UNDIAGNOSED as of yet. Monday is my EGD and biopsy.



Share this post

Link to post
Share on other sites

Judging by the other posts of similar pics, I think it could be DH. Some get a little tiny "peak" in the center of the red spots, others don't.

Share this post

Link to post
Share on other sites

scully...I found this site really helpful (8 whole pages of pics)


It shows many variations of DH rashes in regular people. Mine is exactly like pics 72-74, of the womans upper back, shoulders, both upper arms & I have all those lovely hypopigmentations left behind too.

It is hard to see in pics but your scratched up red bumps do look just like my scratched off red bumps.. lol.... maybe here you can see the stages of development that we just can't always catch on camera.

Share this post

Link to post
Share on other sites
Guest scully

Now THAT'S what I'm TALKING about! Mine look like photos #33, #69, and #95, in its various stages.

It starts out looking like #95 and ends up like #33 or #69. And dry and flaky, too. Like I said, too, sometimes the skin gets so irritated and inflamed that it gets thickened and leathery, like photo #85. I just thought it was dry winter skin, or that I had a wool allergy. I even went so far as to get rid of all my wool sweaters!!! :rolleyes: Oh well.

What I have is healing up, so I think I will have to wait for another outbreak before I see a dermatologist.

Good grief. :P

Share this post

Link to post
Share on other sites
What I have is healing up, so I think I will have to wait for another outbreak before I see a dermatologist.

Good grief. :P

No need to wait, just eat alot of Wheat ..bread, shredded wheat, cream of wheat, wheat farina, add wheat germ (yuck)

you'll be itchy, flaring and miserable in no time at all. I have read here that consuming iodine will help bring it out.

I never bothered to biopsed my rash ...I figured out what it was the first time I went gluten-free for gastro problems, I was surprised by the end of the week I wasn't itching anymore, and no one was yelling at me to stop scratching. Went back to gluten for testing & rash came back. Those tests were positive so I dont feel the need to pursue it.

I understand it is hard to find a dermatologist who knows how to do it right... biopsy next to the lesion, not on it. I hope you can find a good derm.

Share this post

Link to post
Share on other sites

Thanks for posting that link. Those are the first pictures that finally match up to my rashes, I knew what they were but it's nice to have the confirmation. I wish I had found those when my friend was trying to ID her grandchild's rashes. We did find others but your find was better, I thought. I have another friend who's son's rash I'm sure is DH. She resistant but did take him to the dermatologist. If she gets the run around, I'm going to show her those pictures.

Share this post

Link to post
Share on other sites

Join the conversation

You can post now and register later. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.

Reply to this topic...

×   Pasted as rich text.   Paste as plain text instead

  Only 75 emoji are allowed.

×   Your link has been automatically embedded.   Display as a link instead

×   Your previous content has been restored.   Clear editor

×   You cannot paste images directly. Upload or insert images from URL.

  • Top Posters +

  • Upcoming Events

    • May 29, 2019 04:00 PM Until 08:00 AM
      Celiac Emotional Healing Support Group
      Again you are invited to join Johnny Patout, LCSW for Baton Rouge's first emotional healing support group meeting to assist those living with celiac disease manage the emotional challenges so many of us face. Most often the emotional disturbances include depression, disinterest in normal activities, insomnia, grief, mood changes, anxiety, inability to concentrate, extreme concern about managing a gluten-free lifestyle and other emotional and behavioral challenges.
      The professionals at Jamestown Avenue Counseling Center created the emotional healing support group to give us a safe place to begin to process our emotions and support each other as we heal emotionally while managing celiac disease and the resulting autoimmune disorders.
      The emotional healing support group meets every Thursday, 6:00-7:00pm, at the Jamestown Avenue Counseling Center of Baton Rouge. Jamestown Avenue Counseling Center is located at 4637 Jamestown Avenue, Baton Rouge, Suite B-1. Suite B-1 is upstairs.
      The support group is free and open everyone managing celiac disease. For more information: emotionalhealingforceliacs@hotmail.com
    • June 01, 2019 Until June 02, 2019
      Nourished Festival is a family-friendly event with 10 locations across the US. Attendees will be able to sample food, health and beauty products, meet with companies, learn about the most current food lifestyles, receive coupons and attend educational sessions with industry experts. 
      Nourished Festival, managed by The Nourished Group and presented by Enjoy Life Foods, is the largest gluten-free, allergy-friendly and specialty diet event in the US, with 10 locations including.
      Managed by The Nourished Group, formerly The Gluten Free Media Group, The Nourished Festivals are the largest and fastest growing special diet consumer events in the United States. Started in 2007, the events have expanded from one to ten cities throughout the country. The festivals cater to anyone looking to lead a healthier lifestyle or those who follow a specialty diet due to autoimmune conditions, food sensitivities, allergies or intolerances. Offerings including Paleo, Keto, Plant-Based, Gluten-Free, Allergen-Friendly and Nut-Free products. The events provide the opportunity for attendees to sample and purchase new products, receive coupons, meet with brand ambassadors and attend educational classes with industry experts. For more information, visit http://www.nourishedfestival.com 
    • July 07, 2019 Until August 03, 2019
      For more information, visit www.kefss.com or call (407) 255-6550. info@kefss.com 

      KEF USA Summer Camps Announces the New KEF Gluten-Free Camp in Orlando, Florida for Youths with Celiac Disease.

      [Orlando, FL February 6, 2019]-KEF USA is excited to announce that we will offer a new 100% gluten-free camp program to give kids and teens with Celiac Disease a safe, exciting and healthy summer. KEF USA programs offer fun and unique experiences that can only be found in Orlando, Florida. Campers explore the theme parks and local attractions, make new friends, discover new interests and create memories that last a lifetime.

  • Member Statistics

    • Total Members
    • Most Online

    Newest Member
    Maria 1952
  • Forum Statistics

    • Total Topics
    • Total Posts
  • Who's Online (See full list)

  • Forum Discussions

    Thank you for all of the suggestions and information.  I will see a lot of the symptoms that I have that I didn't mention listed caused by lack of certain enzymes.  I have blood tests every 3 months. That is when I noticed my cholesterol, etc. not in check.  I eat too many carbohydrates because it causes less diarrhea than a lot of vegetables.  But in talking to 3 of my sisters they are already on medication for the problem.   One has Celiacs the other has Sjorgrens which I also have.  I'm conce
    For the fog and memory, it can be many things, the brain requires certain ratios and amounts of fat to function, it also requires b-vitamins the full spectrum among other amino acids, minerals and vitamins, nerve functions require magnesium, potassium and other things to fire right.  Celiac can hamper the ability to break down and absorb nutrients, digestive issues and enzymes can further complicate this, and trying to eat the right ratios of foods. I supplement with Liquid Health Mega B-compl
    I am interested in your comments about losing your memory.  I have Celiacs and IBS, etc.   Very difficult to eat a healthy diet.  One goes against the other.  The past year I have noticed a marked difference in my memory and was very concerned about it because my mother had Alzheimer's.  I had a brain scan but that is not the problem at least it doesn't show up on the MRI.  All of my blood enzymes are way out of line for my size and I'm thinking it's the diet and inability to do extensive exerci
  • Blog Entries

  • Create New...