Jump to content
  • Join Our Community!

    Do you have questions about celiac disease or the gluten-free diet?


Validity Of Stool Test?

Rate this topic

Recommended Posts

My two daughters were diagnosed with Celiac this year with blood tests and intestinal biopsies. The rest of the family tested negative on the blood test so the doctors said not to worry about gluten. However, we tested my husband and myself with the stool test through Entero Lab at www.enterolab.com and our results came back positive for gluten sensitivity.

Who do we trust - the doctors or the stool test results? My husband has symptoms for gluten sensitivity but I don't (at least none I know of).

The doctor said the stool test is not reliable.

Any experience with the validity of the test?

Share this post

Link to post
Share on other sites

Doctors are always resistant to anything new or unpublished. Dont forget it wasnt that long ago that Cigarettes were "just what the doctor ordered". That's right doctors used to prescribe cigarettes. They know a lot, but they dont know everything.

I believe Enterolab to be reliable and I know MANY in here will agree. I did a genetic test also with Enterolab and with Kimball Labs. The were consistent. Kimball is used by doctors.

THE MOST RELIABLE THING IS......POSITIVE RESPONSE TO THE DIET. Hands down this is the single best way to determine gluten intolerance. It doesnt dx Celiac, but leaves no doubt about gluten.

There are quite a few people who didnt think they had symptoms related to gluten, but when they went on the diet were amazed. Oh....those brittle fingernails are gone. Or I no longer get zits right before my period. In my case, I no longer get migraines mid cycle or before my period. I thought that was just hormonal. Well it was because the gluten was messing up my hormones.

If it were me and mine, I would make the WHOLE family gluten-free. First of all it is way easier considering both your daughters have Celiac to prepare meals that everyone can eat. PLUS there will be no worries about CC (cross contamination). Secondly, it is a VERY HEALTHY diet if you include lots of veggies, lean meats, fruits and other whole grains like brown rice.

And you can just watch everyone get better.

Make sure you kitchen is gluten-free. Old scratched Teflon must go, old wooden spoons and cutting boards too. A new toaster is in order. Clean out the pantry, fridge and freezer. Stock it up with healthy gluten-free items.

Your home should be the one place your girls can feel safe. So taking the whole family gluten-free would create this haven for them.

They got the genes from one of you or both. So if your DH is showing signs of gluten sensitivity already, it might be the beginnings of Celiac. Too early for it to show up on bloodwork or biopsy, but not too early for it to be causing damage and symptoms.

Share this post

Link to post
Share on other sites

Currently the Celiac Disease Foundation and Celiac Sprue Association do not recognize stool testing as a legitimate means of diagnoses.

Some people here have been satisfied with their result from Enterolabs. Enterolabs can show sensitivity, but they cannot diagnose for Celiac Disease.

Your daughters tested positive, therefore you or your husband (or both) carry the gene. Not all blood works is accurate. Testing can rule Celiac in, but it cannot rule it out.

Share this post

Link to post
Share on other sites

I had the Enterolab testing done and my results were positive as well.

I had a negative tTG blood test prior so when the GI refused to scope me, I had no other option.

Enterolab supported what my doctor and I believed already to be true - that I had a problem with gluten. Whether it is Celiac or just gluten sensitivity/intolerance doesn't matter, the treatment is the same. And I have had amazing results.

Share this post

Link to post
Share on other sites

my enterolab test was positive, my diet results supported it.

My daughter's test were negative, so they do not always come back positive.

Share this post

Link to post
Share on other sites

Join the conversation

You can post now and register later. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.

Reply to this topic...

×   Pasted as rich text.   Paste as plain text instead

  Only 75 emoji are allowed.

×   Your link has been automatically embedded.   Display as a link instead

×   Your previous content has been restored.   Clear editor

×   You cannot paste images directly. Upload or insert images from URL.

  • Top Posters +

  • Upcoming Events

    • May 22, 2019 04:00 PM Until 08:00 AM
      Celiac Emotional Healing Support Group
      Again you are invited to join Johnny Patout, LCSW for Baton Rouge's first emotional healing support group meeting to assist those living with celiac disease manage the emotional challenges so many of us face. Most often the emotional disturbances include depression, disinterest in normal activities, insomnia, grief, mood changes, anxiety, inability to concentrate, extreme concern about managing a gluten-free lifestyle and other emotional and behavioral challenges.
      The professionals at Jamestown Avenue Counseling Center created the emotional healing support group to give us a safe place to begin to process our emotions and support each other as we heal emotionally while managing celiac disease and the resulting autoimmune disorders.
      The emotional healing support group meets every Thursday, 6:00-7:00pm, at the Jamestown Avenue Counseling Center of Baton Rouge. Jamestown Avenue Counseling Center is located at 4637 Jamestown Avenue, Baton Rouge, Suite B-1. Suite B-1 is upstairs.
      The support group is free and open everyone managing celiac disease. For more information: emotionalhealingforceliacs@hotmail.com
    • June 01, 2019 Until June 02, 2019
      Nourished Festival is a family-friendly event with 10 locations across the US. Attendees will be able to sample food, health and beauty products, meet with companies, learn about the most current food lifestyles, receive coupons and attend educational sessions with industry experts. 
      Nourished Festival, managed by The Nourished Group and presented by Enjoy Life Foods, is the largest gluten-free, allergy-friendly and specialty diet event in the US, with 10 locations including.
      Managed by The Nourished Group, formerly The Gluten Free Media Group, The Nourished Festivals are the largest and fastest growing special diet consumer events in the United States. Started in 2007, the events have expanded from one to ten cities throughout the country. The festivals cater to anyone looking to lead a healthier lifestyle or those who follow a specialty diet due to autoimmune conditions, food sensitivities, allergies or intolerances. Offerings including Paleo, Keto, Plant-Based, Gluten-Free, Allergen-Friendly and Nut-Free products. The events provide the opportunity for attendees to sample and purchase new products, receive coupons, meet with brand ambassadors and attend educational classes with industry experts. For more information, visit http://www.nourishedfestival.com 
    • July 07, 2019 Until August 03, 2019
      For more information, visit www.kefss.com or call (407) 255-6550. info@kefss.com 

      KEF USA Summer Camps Announces the New KEF Gluten-Free Camp in Orlando, Florida for Youths with Celiac Disease.

      [Orlando, FL February 6, 2019]-KEF USA is excited to announce that we will offer a new 100% gluten-free camp program to give kids and teens with Celiac Disease a safe, exciting and healthy summer. KEF USA programs offer fun and unique experiences that can only be found in Orlando, Florida. Campers explore the theme parks and local attractions, make new friends, discover new interests and create memories that last a lifetime.

  • Create New...