Jump to content
  • Join Our Community!

    Do you have questions about celiac disease or the gluten-free diet?


18 Month Old Just Tested

Rate this topic

Recommended Posts


My 18 month old was just tested yesterday for celiac disease. They did the Celiac Panel. If it is negative,( I havent gotton the test results back yet.) How accurate are the results? I have read about false negatives. At what age are they more conclusive? The Symptoms she is having... MILK Allergy and Bloated belly. And I just got diagnosed as well, about 1 month ago. That's why the Doc wanted to test her for it. Thanks for any feedback:)

Share this post

Link to post
Share on other sites


My daughter was tested for celiac disease several times in her blood work and was negative all 4 times they did it. She did end up havng biopsies done and it shows early warning signs of it.....

Hope this helps. I still question this diagnosis and am waiting for another biopsy to confirm that she is getting better after 6 months of no glutten...

Share this post

Link to post
Share on other sites

Our dd was 4 when she was tested, the only noticable symptoms were bloated belly and severe cramps after eating a high gluten meal, her blood tests were positive and her biopsy was visually positive (pathology confirmed), BUT, our son was tested at 2yo, he had no symptoms other than he was growing at a very slow rate maintaining 10% in height and weight. At 2.5yo he developed chronic D multiple times a day for almost a month. I took him off gluten without talking to the dr 1st and he responded very well. We put him back on gluten for almost 2 weeks before the biopsy, since he was only off gluten for 2-3weeks. Visually the dr said it was suspect, but the positive response he had before was enough for me and he was gluten-free from that day on. Turns out, the biopsy was negative but our GI diagnosed him from a "significantly positive dietary response" we may revisit the sitation later if he's sneaking gluten at school-re-do the tests.

So, I guess my point is, just because the tests come back negative, doesn't necessarily mean there isn't a problem.

Share this post

Link to post
Share on other sites

My two year old was tested by blood 2 times and they both came back negative. He had the diaherra, projectile vomiting, bloated belly, short stature, abnormal liver function tests, and failure to thrive. The dna test came back positive. We had a bioposy done and it was very positive. I think that the blood work is not accurate for children under 2 yrs old. Hope this helps.

Share this post

Link to post
Share on other sites


Thank you for your replies. Your info was all very helpful. I am bringing my daughter back to the Dr. tomorrow for a routine vaccination. Hopefully they will have the test results back by then. (They drew the blood on Monday). If the results are negative then I will probably do the gene test, Since I have celiac disease.Iam just concerned with how other family members are going to react to this. They don't know that the results could be negative and she "could" still have the disease. (Please don't think that I am hoping she has this) I just want to make sure she is healthy.

Back to the other family members. They still have a hard time with the her milk allergy ( Her bottom gets really red and the poo is this orangy color and she screams when we wipe her) But they are upset when they can't give her Ice cream. So I can only imagine how they will get if she can't have gluten. The "they" I am talking about are the grandparents so naturally they want to spoil her with food. But they are also her caregivers when I work. I guess well just have to see and get on the same page when we get the results back and go from there. Thanks for letting me vent.:)

Share this post

Link to post
Share on other sites

Join the conversation

You can post now and register later. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.

Reply to this topic...

×   Pasted as rich text.   Paste as plain text instead

  Only 75 emoji are allowed.

×   Your link has been automatically embedded.   Display as a link instead

×   Your previous content has been restored.   Clear editor

×   You cannot paste images directly. Upload or insert images from URL.

  • Top Posters +

  • Upcoming Events

    • May 22, 2019 04:00 PM Until 08:00 AM
      Celiac Emotional Healing Support Group
      Again you are invited to join Johnny Patout, LCSW for Baton Rouge's first emotional healing support group meeting to assist those living with celiac disease manage the emotional challenges so many of us face. Most often the emotional disturbances include depression, disinterest in normal activities, insomnia, grief, mood changes, anxiety, inability to concentrate, extreme concern about managing a gluten-free lifestyle and other emotional and behavioral challenges.
      The professionals at Jamestown Avenue Counseling Center created the emotional healing support group to give us a safe place to begin to process our emotions and support each other as we heal emotionally while managing celiac disease and the resulting autoimmune disorders.
      The emotional healing support group meets every Thursday, 6:00-7:00pm, at the Jamestown Avenue Counseling Center of Baton Rouge. Jamestown Avenue Counseling Center is located at 4637 Jamestown Avenue, Baton Rouge, Suite B-1. Suite B-1 is upstairs.
      The support group is free and open everyone managing celiac disease. For more information: emotionalhealingforceliacs@hotmail.com
    • June 01, 2019 Until June 02, 2019
      Nourished Festival is a family-friendly event with 10 locations across the US. Attendees will be able to sample food, health and beauty products, meet with companies, learn about the most current food lifestyles, receive coupons and attend educational sessions with industry experts. 
      Nourished Festival, managed by The Nourished Group and presented by Enjoy Life Foods, is the largest gluten-free, allergy-friendly and specialty diet event in the US, with 10 locations including.
      Managed by The Nourished Group, formerly The Gluten Free Media Group, The Nourished Festivals are the largest and fastest growing special diet consumer events in the United States. Started in 2007, the events have expanded from one to ten cities throughout the country. The festivals cater to anyone looking to lead a healthier lifestyle or those who follow a specialty diet due to autoimmune conditions, food sensitivities, allergies or intolerances. Offerings including Paleo, Keto, Plant-Based, Gluten-Free, Allergen-Friendly and Nut-Free products. The events provide the opportunity for attendees to sample and purchase new products, receive coupons, meet with brand ambassadors and attend educational classes with industry experts. For more information, visit http://www.nourishedfestival.com 
    • July 07, 2019 Until August 03, 2019
      For more information, visit www.kefss.com or call (407) 255-6550. info@kefss.com 

      KEF USA Summer Camps Announces the New KEF Gluten-Free Camp in Orlando, Florida for Youths with Celiac Disease.

      [Orlando, FL February 6, 2019]-KEF USA is excited to announce that we will offer a new 100% gluten-free camp program to give kids and teens with Celiac Disease a safe, exciting and healthy summer. KEF USA programs offer fun and unique experiences that can only be found in Orlando, Florida. Campers explore the theme parks and local attractions, make new friends, discover new interests and create memories that last a lifetime.

  • Member Statistics

    • Total Members
    • Most Online

    Newest Member
  • Forum Statistics

    • Total Topics
    • Total Posts
  • Who's Online (See full list)

  • Forum Discussions

    Wow - it just blows my mind to think this is something we’ve all had struggles with since childhood and never knew.  I remember being slightly anxious as a child and was a nail biter.  Was told it was a bad habit.  I have learned it is partly due to gluten.  When I eat large quantities of it, I feel the urge to pick at my nails.  Being so thin that people thought I never ate, and I ate ALOT of food.  Was probably malabsorption all along.  I have low vitamin D, magnesium, potassium, and low white
    Hi Ennis, You should be able to get a medical marijuana RX in Texas.  They passed a revision to their law that allows it for UC.  Passed in April-2019. https://klaq.com/new-texas-medical-marijuana-bill-passes/ .... Conditions which would now qualify for participation in TCUP include cancer, autism, PTSD, and neurological conditions such as Alzheimer’s, Parkinson’s, Huntington’s disease, amyotrophic lateral sclerosis, and Tourrette syndrome. Other diseases include Crohn’s, ulc
    I do not know where this falls in, but we have had issues with members getting sick from kissing, and I recall someone mentioning a shared drink straw in a gluten-free drink while their partner was eating a gluten meal.  Going by those two I would say just keep your own. >.> better yet just make a Gluten Free edibles. Try taking the weed and using a mortar and pedestal grind it into a fine powder, and mix it in with coconut oil and warm it up (not boiling just keep it on the lowest st
  • Blog Entries

  • Create New...