Jump to content
  • Join Our Community!

    Do you have questions about celiac disease or the gluten-free diet?

imagine22

3yr Old Negative Blood Test Results For Celiac But Severe Vitamin D Deficiency Found? Any Ideas

Rate this topic

Recommended Posts

I have celiac disease so I had my 3yr old tested recently (she has had the gene test in the past and does have the genes). The blood test came back negative but she has a severe vitamin D deficiency (despite being outside a lot (but with sunscreen 95% of the time - its australia!) and having particularly fair skin!)?

is this related to celiac disease? or unrelated?

She is asymptomatic apart from the fact she has gone from 50% percentil fro height from year 0-2yrs (when gluten free) and from age 2-3 has been at 20th percentile for height (she started gluten at age 2yrs with no obvious reactions).

any ideas appreciated.

Share this post


Link to post
Share on other sites

Children under the age of 5 often do not show up in blood work. If you are a diagnosed celiac then the chances of her also being impacted are strong. The fact that she has dropped so much in height is significant. If you plan on her getting an endo do not make her gluten free yet, if you don't then I would get her on the diet asap.

Share this post


Link to post
Share on other sites
I have celiac disease so I had my 3yr old tested recently (she has had the gene test in the past and does have the genes). The blood test came back negative but she has a severe vitamin D deficiency (despite being outside a lot (but with sunscreen 95% of the time - its australia!) and having particularly fair skin!)?

is this related to celiac disease? or unrelated?

She is asymptomatic apart from the fact she has gone from 50% percentil fro height from year 0-2yrs (when gluten free) and from age 2-3 has been at 20th percentile for height (she started gluten at age 2yrs with no obvious reactions).

any ideas appreciated.

Hi, my oldest son is now being tested for celiac due to a finding of low vit D. However he breaks bones and so they are looking for reasons that he is not absorbing calcium. One of his brothers is the celiac.

I think that there is an aus study that found that using lots of sunscreen has led to problems with vit D.

Sun Screen and Vitamin D

With the hot days of summer, many people use sunscreen thinking they are doing something good for themselves. Most sunscreen is designed blocks UVB sun radiation, which allows your body to create Vitamin D. Some times they do not provide the block for the UVA radiation, which is responsible for sunburn and skin cancer. When you do need a good sunscreen make sure it blocks both UVB and UVA, since both UVA and UVB cause tanning and burning.

Fiona

Share this post


Link to post
Share on other sites

Nora posted a really useful link about vitamin D...

http://www.vitamindcouncil.org/

It convinced me to start taking a supplement! I think skin cancer is a legitimate concern when you have fair skin and live in Australia... my dad has had several basal cell cancers removed from his face. Instead of more sun, I would try giving your daughter a supplement. It wouldn't interfere with testing for celiac and could do her a lot of good while you're sorting out her other problem(s). B)

Share this post


Link to post
Share on other sites

I don't know abou the vitamin d. But I have 4 year old who was gluten free until age 2. We gave her gluten, she showed no real symptoms, negative blood test. Except for the slowed growth. By the time she reached 3, it was no growth. Took a few months glutne and diary free to get her gorwing again, an it's still slow. Sigh. Now the endocrinologist wants to do lots of tests, since her bloodwork was negative. How this helps, I don't know. But I wish we had gotten the biopsy when she was still on gluten, though I a unwilling to put her back on it now since she is at least growing some. If you are already gluten free, it's not so hard, and see if her growth picks back up. That could be an easy answer.

good luck,

Patty

Share this post


Link to post
Share on other sites

I too have a severe vit D difficiency (though I'm 28 not 3 :) My Dr. had me tested and had claimed that no amount of sun or dairy products can make up for a lack of vit D. I've read that the lack of vit. D absorption is a symptom of gluten intolerance. Vit D also related to your mood as well, so a lack of it can create a moody streak.

Share this post


Link to post
Share on other sites

I just had a biopsy done and it came back negative for celiac sprue but I had labs done the same day showing vit D deficiency as well. I recently started taking Vit D 2000 IU a day and will get tested again in a few months to see if it helped.

Share this post


Link to post
Share on other sites

Join the conversation

You can post now and register later. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.

Guest
Reply to this topic...

×   Pasted as rich text.   Paste as plain text instead

  Only 75 emoji are allowed.

×   Your link has been automatically embedded.   Display as a link instead

×   Your previous content has been restored.   Clear editor

×   You cannot paste images directly. Upload or insert images from URL.


  • Top Posters +

  • Upcoming Events

    • May 18, 2019 Until May 19, 2019
      0  
      Nourished Festival is a family-friendly event with 10 locations across the US. Attendees will be able to sample food, health and beauty products, meet with companies, learn about the most current food lifestyles, receive coupons and attend educational sessions with industry experts. 
      Nourished Festival, managed by The Nourished Group and presented by Enjoy Life Foods, is the largest gluten-free, allergy-friendly and specialty diet event in the US, with 10 locations including.
      ABOUT THE NOURISHED FESTIVALS
      Managed by The Nourished Group, formerly The Gluten Free Media Group, The Nourished Festivals are the largest and fastest growing special diet consumer events in the United States. Started in 2007, the events have expanded from one to ten cities throughout the country. The festivals cater to anyone looking to lead a healthier lifestyle or those who follow a specialty diet due to autoimmune conditions, food sensitivities, allergies or intolerances. Offerings including Paleo, Keto, Plant-Based, Gluten-Free, Allergen-Friendly and Nut-Free products. The events provide the opportunity for attendees to sample and purchase new products, receive coupons, meet with brand ambassadors and attend educational classes with industry experts. For more information, visit http://www.nourishedfestival.com 
       
    • May 22, 2019 04:00 PM Until 08:00 AM
      0  
       
       
       
      Celiac Emotional Healing Support Group
       
       
       
      Again you are invited to join Johnny Patout, LCSW for Baton Rouge's first emotional healing support group meeting to assist those living with celiac disease manage the emotional challenges so many of us face. Most often the emotional disturbances include depression, disinterest in normal activities, insomnia, grief, mood changes, anxiety, inability to concentrate, extreme concern about managing a gluten-free lifestyle and other emotional and behavioral challenges.
       
      The professionals at Jamestown Avenue Counseling Center created the emotional healing support group to give us a safe place to begin to process our emotions and support each other as we heal emotionally while managing celiac disease and the resulting autoimmune disorders.
       
      The emotional healing support group meets every Thursday, 6:00-7:00pm, at the Jamestown Avenue Counseling Center of Baton Rouge. Jamestown Avenue Counseling Center is located at 4637 Jamestown Avenue, Baton Rouge, Suite B-1. Suite B-1 is upstairs.
       
      The support group is free and open everyone managing celiac disease. For more information: emotionalhealingforceliacs@hotmail.com
    • June 01, 2019 Until June 02, 2019
      0  
      Nourished Festival is a family-friendly event with 10 locations across the US. Attendees will be able to sample food, health and beauty products, meet with companies, learn about the most current food lifestyles, receive coupons and attend educational sessions with industry experts. 
      Nourished Festival, managed by The Nourished Group and presented by Enjoy Life Foods, is the largest gluten-free, allergy-friendly and specialty diet event in the US, with 10 locations including.
      ABOUT THE NOURISHED FESTIVALS
      Managed by The Nourished Group, formerly The Gluten Free Media Group, The Nourished Festivals are the largest and fastest growing special diet consumer events in the United States. Started in 2007, the events have expanded from one to ten cities throughout the country. The festivals cater to anyone looking to lead a healthier lifestyle or those who follow a specialty diet due to autoimmune conditions, food sensitivities, allergies or intolerances. Offerings including Paleo, Keto, Plant-Based, Gluten-Free, Allergen-Friendly and Nut-Free products. The events provide the opportunity for attendees to sample and purchase new products, receive coupons, meet with brand ambassadors and attend educational classes with industry experts. For more information, visit http://www.nourishedfestival.com 
       
×
×
  • Create New...