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Autoimmune Polyglandular Syndrome

HAK1031

By HAK1031
in Related Issues & Disorders

Recommended Posts

HAK1031 Enthusiast
HAK1031
Posted

Hey all,

I stumbled across this on discovery health's mystery diagnosis ;) But is sounded like something a lot of us here should be interested in. Here is link that explains it well:

Open Original Shared Link

I think this is something I might want to ask the doctor about, but I wanted to know anyone's opinions, especially those who are familiar with it. From what I've read candidiasis is one of the main symptoms, and I don't know if I had it as a child but I suspect I have it in my nailbeds now. I also don't menstruate (well, ovulate...I have very light infrequent menstruation) on my own and have been on birth control. I also have low blood pressure, CFS, numbness/poor circulation in extremities, and a history of low calcium (I broke 7 bones as a child). And, of course, all of the intestinal/celiac stuff.

But I feel a bit like I may be overreacting. I also have had my thyroid tested numerous times and it was normal...does anyone know if they test for PTH as well? Heh, I would hate coming into the doctor with an unfounded TV/internet self-diagnosis :) any thoughts?

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Mother of Jibril Enthusiast
Mother of Jibril
Posted

Yes... I've done a fair amount of reading about this. There are basically three kinds of PAS.

Type 1 is rare and usually develops in childhood; the main features are Addison's disease and hypoparathyroidism, both caused by autoimmune organ damage

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Type 2 is also called "Schmidt's syndrome" and involves Addison's plus type 1 diabetes and/or an autoimmune thyroid condition

Open Original Shared Link

Type 3 involves an autoimmune thyroid condition plus at least one other autoimmune disorder (celiac, vitiligo, Sjogren's, RA, etc...) but not type I diabetes or Addison's; this is most common among adults and is probably the most common type of PAS overall

Open Original Shared Link

I'm pretty sure I have Type III PAS... I bet a lot of people on this forum do :(

redwolfgirl Newbie
redwolfgirl
Posted

My husband has alopecia and hypothyroidism and I did some research to see if it is linked to Celiac's because he was having some digestive issues. In doing so, I stumbled upon Polyglandular Autoimmune Syndrome, Type III. He is being tested for Celiacs and then we will know for sure. I have read that some with alopecia have "silent celiac" in that they do not have any symptoms. He has never had gastro symptoms until the last 6 months.

georgie Enthusiast
georgie
Posted

This is me - right to the possible Myasthenia Gravis dx of Type 2. I have Addisons but Drs cannot prove if its Primary or Secondary .. <_< So cannot get the PAS dx yet.

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