Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Celiac.com!
    eNewsletter
    Donate

Need Help With My Daughter

Guhlia

Recommended Posts

Guhlia Rising Star
Guhlia
  • Author
Posted
Don't feed her junk. Try adding more fatty meats (dark meat instead of light, for example), try the coconut milk, try putting a little bit of canola oil in her cereal, etc.

Also have a look at how much fat she has on her body. Does she have the fat pad on her bottom? A little on her abdomen? If those are not there, then she really does need more calories, if those are fine, then you can make small changes in her diet to see if a little more fat starts her growing quicker.

I started putting 1/2 tsp canola in her quinoa this morning (also added some extra choco chips for good measure since she gets no other treats really. I will also start frying her chicken on occasion. She looks healthy, just small. She has a small amount of fat on her belly and a nice round bottom. LOL She looks great, just really tiny all around.

Have they checked her thyroid and other hormone levels? It may not be diet-related at all.

Just a thought!

No, she hasn't had any bloodwork yet, but I will write that on my list of questions to ask. I hadn't even thought of that, so thank you!

In response to your question about fat (b/c I can't the quote thingy to work, lol)........

I would suggest cutting out the soy milk, and getting fat from other sources. Coconut oil is easy to add in, and has 14g of healthy saturated fat per tbsp. (sounds like an oxymoron, but it is actually good for you!) I spread coconut oil on pancakes, waffles, banana bread, etc...pretty much anything that I would use butter on. Coconut milk has 14g of fat per 2oz, so a cup of that a day will give you a healthy amount of fat.

Like someone else said, if she'll eat red meat....you could do a chuck roast, or a beef stew drizzled with olive oil. What about bacon? She may bit a bit young for that, but you could chop it up small for her. Avocados are a primo fat source, and usually well tolerated. You could mash an avocado up in a brownie mix, or try giving one to her plain w/ olive oil and a little salt/pepper.

Will she eat rice pudding? You could make that with a mix of coconut milk and Vance's (I do this with my kids, they don't like a strong coconut taste)

Just some ideas for ya.....hopefully taking out the soy milk will help, I know it definately inhibited weight gain in my own kids. If you do some digging on soy milk, you'll find some surprising info that will probably make you feel better about taking it out of your dd's diet. Good luck to you!

I am going to add coconut as soon as I'm positive she's not having any reaction to quinoa and choco chips. We have such a delayed reaction time that it's really hard to be sure, we like to wait 2 weeks. Should be sometime next week when we can try assuming she isn't having a reaction. I've cut her soy milk and added canola oil wherever practical. We also started giving her meat for breakfast today. She wasn't thrilled, but she ate a little which I guess is better than none.

I may try to find an uncured bacon that I can puree. I'll bet she'd love that. Pork doesn't seem to be an issue for her, so that's a good idea. After coconut I think we're going to try eggs to see what happens. Once we get her off soy I expect (read: hope) to be able to add things in quicker than once every two weeks. Hopefully eventually she'll be able to tolerate rice or some other grain so I can bake things for her.

Link to comment
Share on other sites
Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


jerseyangel Proficient
jerseyangel
Posted
Hopefully eventually she'll be able to tolerate rice or some other grain so I can bake things for her.

Ang--Sounds like a good plan. I have a recipe that I made up (based on one I found) for chocolate chip cookies using potato starch (no grains). If/when you ever want it, let me know.

Link to comment
Share on other sites
Guhlia Rising Star
Guhlia
  • Author
Posted
Ang--Sounds like a good plan. I have a recipe that I made up (based on one I found) for chocolate chip cookies using potato starch (no grains). If/when you ever want it, let me know.

Oh my goodness, Patti, yes yes YES!!! I really need a travel snack and I imagine I could just reduce the sugar and choco chips. Also, it would be nice for her to have a treat on Christmas. She never gets anything special other than choco chips. :(

Link to comment
Share on other sites
zeta-lilly Apprentice
zeta-lilly
Posted

Wow, I never thought about candy having corn in it! Corn is probably as hard an allergy to have as gluten. I still think you should add some extra sugar and fat to her diet. I know you want her diet to be healthy, but there's nothing wrong with a healthy diet with just a little bit of junk. The reason junk food is bad is that it's devoid of nutrition and makes you gain weight. Shes obviously getting enough nutrition, and gaining some weight would be a good thing for her. It's what our nutritionist told us to do. Which reminds me...

Have you been seeing a nutritionist or trying to do this on your own? We saw a nutritionist for a long time and it was so helpful. I would hate to think you're pulling your hair out trying to do it all on your own. Your child will most likely qualify for first steps or whatever program you have in your area. Your pediatrician should have the information. Good luck!

Link to comment
Share on other sites
jerseyangel Proficient
jerseyangel
Posted
Oh my goodness, Patti, yes yes YES!!! I really need a travel snack and I imagine I could just reduce the sugar and choco chips. Also, it would be nice for her to have a treat on Christmas. She never gets anything special other than choco chips. :(

I hope this will work as a treat for her :D

Preheat oven to 375.

Combine 1/2 cup brown sugar, 1/2 cup shortening, 1 egg and 1 tsp. vanilla. Add 1/2 tsp. salt, 1/2 tsp. baking soda, 1 and 1/4 cups potato starch and 1 cup chocolate chips.

Drop from teaspoonfulls onto ungreased cookie sheet and bake for about 8 minutes (or until lightly golden).

Link to comment
Share on other sites
Guhlia Rising Star
Guhlia
  • Author
Posted
I hope this will work as a treat for her :D

Preheat oven to 375.

Combine 1/2 cup brown sugar, 1/2 cup shortening, 1 egg and 1 tsp. vanilla. Add 1/2 tsp. salt, 1/2 tsp. baking soda, 1 and 1/4 cups potato starch and 1 cup chocolate chips.

Drop from teaspoonfulls onto ungreased cookie sheet and bake for about 8 minutes (or until lightly golden).

Any clue what could be used instead of egg without using Ener-G egg sub? She hasn't had eggs yet. Is baking soda something she could react to or is that relatively hypoallergenic?

Link to comment
Share on other sites
jerseyangel Proficient
jerseyangel
Posted
Any clue what could be used instead of egg without using Ener-G egg sub? She hasn't had eggs yet. Is baking soda something she could react to or is that relatively hypoallergenic?

I've never heard of baking soda being a problem as far as allergies or sensitivites (except for salt issues), but I also wouldn't say there's no way she could be intolerant to it. (big help that was.....)

For the egg, you could use a tablespoon of baby food strained apricots or gelatin mixed with warm water and added right before mixing.

Link to comment
Share on other sites
Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Guhlia Rising Star
Guhlia
  • Author
Posted
I've never heard of baking soda being a problem as far as allergies or sensitivites (except for salt issues), but I also wouldn't say there's no way she could be intolerant to it. (big help that was.....)

For the egg, you could use a tablespoon of baby food strained apricots or gelatin mixed with warm water and added right before mixing.

THANK YOU!!! We still have some baby food laying around. I'll try that and see how it turns out. The poor thing is overdue for some yummy treats. Perhaps I'll even be able to make veggie flavored "bread" for her snacks. Think it would work without the sugar?

Link to comment
Share on other sites
jerseyangel Proficient
jerseyangel
Posted
THANK YOU!!! We still have some baby food laying around. I'll try that and see how it turns out. The poor thing is overdue for some yummy treats. Perhaps I'll even be able to make veggie flavored "bread" for her snacks. Think it would work without the sugar?

I would think that using some strained fruit in place of sugar would be fine (a sweeter fruit that she can tolerate). You may have to play around with some of this, but I'll bet you can come up with a few things she can eat! Let me know if I can help you brainstorm :D

Link to comment
Share on other sites
Guhlia Rising Star
Guhlia
  • Author
Posted

Thanks Patti! And thanks to everyone else who gave me ideas. We've been able to add a fair amount of fat in through beef and canola oil. She is FINALLY trying some new things. Well, same food, but in different combinations. Hopefully this will open her up to trying new things that the doctor wants her to try. I guess we'll see what happens with the weight issue. For now, I'm going to try not to worry since she looks healthy and is happy. I've upped her fat, cut her soy intake, and I'm going to try Patti's recipe, so I think at this point I'm doing what I can. At least until we see the gi. I feel comfortable that I'm acting on things. We'll see what happens. Thanks everyone!

Link to comment
Share on other sites
Chelsea-A Rookie
Chelsea-A
Posted

My little celiac boy is 20 months old. His weight is also at the 3rd percentile. Probiotics have really helped his digestion. When I started probiotics his stool finally smelled and looked normal. I think it really helped his absorption. I started at 1billion/day and worked up to 3 billion/day. Adding olive oil to foods also gives some good fat for weight gain and brain development.

There are other malabsorption disorders that need to be ruled out.

Link to comment
Share on other sites

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. plumbago
      - plumbago replied to Suzi374's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      Lots of tests

      I'm also a nurse, but one who has worked in chronic care, and to some extent, it is more satisfying to see patients through to a diagnosis (as opposed to working in the ED), but an accurate diagnosis does not occur not as often as it should! Your posting presents a lot of information. But a couple of things I can respond to. One, celiac disease is diagnosed...
    2. trents
      - trents replied to Suzi374's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      Lots of tests

      Was a biopsy done when you had your gastroscopy? Concerning your anemia, are you B12 deficient? It's nearly impossible to get sufficient B12 if you are a vegetarian unless you take supplements.
    3. Suzi374
      - Suzi374 replied to Suzi374's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      Lots of tests

      And I’m anaemic, however I’m also female and vegetarian. I had an iron trans a couple of years ago however it’s starting to dwindle and taking supplements doesn’t seem to work. I can’t seem to absorb it.
    4. Suzi374
      - Suzi374 posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      Lots of tests

      Hi, I attended a neurologist appt last Tuesday, which I nearly cancelled, due to ongoing numbness and tingling in toes to mid foot. One of the first things he asked was ‘are you celiac’. I’m not. He thought all reflexes were ok but at the last minute decided on nerve conduction tests which were low normal. He was a little confused as he felt they should be be...
    5. Peace lily
      - Peace lily posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      0

      Would like to gain weight

      Im still not gaining weight I’m on a gluten free diet . And still having issues with constapation started priobiocs figured it would help been over two weeks . I guess it’s going to be a long road for me .
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      121,226
    • Most Online (within 30 mins)
      7,748
    NYKaren
    Newest Member
    NYKaren
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      120.3k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • plumbago
      Lots of tests

      By plumbago · Posted

      I'm also a nurse, but one who has worked in chronic care, and to some extent, it is more satisfying to see patients through to a diagnosis (as opposed to working in the ED), but an accurate diagnosis does not occur not as often as it should! Your posting presents a lot of information. But a couple of things I can respond to. One, celiac disease is diagnosed by endoscopy and biopsy of the duodenum. So, pathology will need to weigh in. It's not diagnosed on gastroscopy. (At least, not as far as I know). Two, did you get blood tests for celiac disease? You will need to be eating gluten in order for those to be accurate. Three, where was the CT angiogram (of what)? I could go on and on, but thought I'd start there.
    • trents
      Lots of tests

      By trents · Posted

      Was a biopsy done when you had your gastroscopy? Concerning your anemia, are you B12 deficient? It's nearly impossible to get sufficient B12 if you are a vegetarian unless you take supplements.
    • Suzi374
      Lots of tests

      By Suzi374 · Posted

      And I’m anaemic, however I’m also female and vegetarian. I had an iron trans a couple of years ago however it’s starting to dwindle and taking supplements doesn’t seem to work. I can’t seem to absorb it. 
    • Suzi374
      Lots of tests

      By Suzi374 · Posted

      Hi, I attended a neurologist appt last Tuesday, which I nearly cancelled, due to ongoing numbness and tingling in toes to mid foot. One of the first things he asked was ‘are you celiac’. I’m not. He thought all reflexes were ok but at the last minute decided on nerve conduction tests which were low normal. He was a little confused as he felt they should be better and tried a new set of probs, all the time, giving me multiple shocks which were not enjoyable lol. Anyway, he’s now ordered tests for myeloma, and all the vitaminy things that so many of you mention on here, also tests looking for autoimmune responses. I already have Hashimotos. Interestingly, to me, but maybe someone out there can relate or knows more than i do, although I was a nurse, but ED not ‘weird symptoms’  nurse. Anyway back to the interesting thing, I took duramine in 2013 to lose weight which caused a massive panic attack when I stopped taking it and half my hair fell out. I only took it for a week but it was horrible and I regret it. It triggered ongoing panic attacks which are horrendous. So I feel like I’m a bit crazy. Then in 2020 I had this sudden onset of horrible pain when trying to eat a cinnamon roll. It continued and I lost around 20 kgs. I had two gastroscopes and a colonoscopy and they were all normal. I scored a barium swallow and CT angiogram. All normal. The pain subsided a little but I was left with reflux and an awful feeling that I couldn’t get air when I ate some foods. This was not anxiety.  The anxiety was separate and I still maintain this. This was something to do with eating. It was like the air was thick but I wasn’t short of breath. I just had the sensation I was, then it triggered anxiety. Anyway, I had other weird things- couldn’t bend knees to shave legs in shower lol. Knees felt stiff and swollen but they weren’t. Knee WOUld swell up randomly but mri showed minimal issues. A bit of a meniscus degeneration but insignificant. Then the buzzing sensations in my head, the feeling like someone was stabbing me with something sharp. So now, I pre empted his tests, although I don’t think I’m celiac because it should have come up on gastroscopy, I’ve gone off gluten. Since Tuesday last week so 9 days. Since then I don’t appear to be as constipated, I realised I got through today without a nap and I’m not tired, maybe it’s just today and not related but I get very tired normally and sleep straight after work often, I can bend my knees and shave my legs lol, the buzzing vibrating has gone from my head, I had to call and ambulance as my heart decided we were off on a run, but we weren’t running and I’ve been a bit twitchy at bed time when trying to sleep, reflux is improving, I did get the weird suffocating feeling a bit when eating today but not as bad normall. Tingling and numbness still present and I felt like it moved up my legs a bit today but I’m a bit jittery. So I don’t know if it’s celiac disease or a gluten intolerance but I think, and it may be wishful thinking because my symptoms do make life a bit challenging, but maybe I’m feeling better. I don’t feel as cloudy. My thinking feels crisper. Like there’s no buzzing and I’m not fighting to break through the cloudiness now. I hope so much that this may help me feel a bit better moving forward. It would be a miracle as I really have struggled to work and parent and keep the house clean and I’m always anxious and exhausted.  If you get this far, please tell me if you you can relate to any of the above. Oh and tonsils out 5 years ago but before that antibiotics multiple times a year, sometimes intramuscular because they were so bad.  Op was meant to take 30 mins, it took 1.5 hours due to size of them. 
    • Peace lily
      Would like to gain weight

      By Peace lily · Posted

      Im still not gaining weight I’m on a gluten free diet . And still having issues with constapation started priobiocs figured it would help been over two weeks . I guess it’s going to be a long road for me .
×
×
  • Create New...