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New Here From Shreveport Louisiana


Twinboyzmomma

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Twinboyzmomma Newbie

Hello all! I was born with celiac and outgrew it in my elementary years. I got it back during my pregnancy with identical twin boys. My twins are 5 now and so far symptom free. My symptoms are not the normal dirreah and indegestion most celiac sufferes experience. I have to take iron, b12, folic acid vitamens daily and have been to ER 3 times now with critically low potasium. I go back to doctor tomorrow for severe RLS that has returned and circulation problems in my legs at night. I haven't slept in 3 nights and have to walk all night to keep blood flowing. I also struggle with very low blood presure and fainting spells. In addition I have endometriosis and I am trying to conceive despite my body's effort to defy me lol. I hope to find this a place of support.


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missy'smom Collaborator

Welcome! You've come to the right place. I hope you will find it as supportive as I have.

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    • trents
      Although it is true that FDA regulations don't require gluten to be included in allergy info, it does require wheat and ingredients made from wheat to be listed. Of course, that doesn't preclude gluten from barley being found in a product.
    • ognam
      I had a lot of weird/random symptoms for a few months after going gluten free. But eventually they evened out and I felt SO MUCH BETTER. The person above wrote a very detailed message that looks helpful. I'd add don't forget to check for gluten in places like medicine. Advil liquigels, for example, have gluten. It's very frustrating trying to figure out if things are gluten free as us law doesn't require it to be declared. The only labeling rule is that if the product says gluten free, it must have less than 20ppm gluten.
    • Scott Adams
      You had the wrong link to the menu, so I fixed that for you 😉. Trying to eat gluten-free at Chili's is risky due to cross-contamination, even if you go with items marked gluten-free on their menu. Every person with celiac disease has a different level of sensitivity, and you've not mentioned anything about your situation in that regard. Whenever I eat out I take GliadinX (a sponsor here), but of course, the best option would be to avoid eating out. 
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      She has had problems with constipation, they actually prescribed miralax for her but I have changed some other things about her diet that seemed to have helped, so I never gave it to her..but she still doesn’t always go daily 
    • trents
      @Nicbent35, are there any other symptoms besides altered mood when your daughter gets "glutened"? Behavior like that in children often belies physical discomfort of some kind. Does she complain of stomach aches? Is she constipated?
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