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dogle

Oh My God I Feel So Bad, Stress, Sad, Angry, Etc

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This how I've been feeling for the past 4 months. I can't go to bed early, I always go to bed between 3 to 4 am, I don't want to go early. I haven't been able to find a job though I'm trying right now. I haven't had the biopsy but I'm improving with the diet though I know I will have to go back to eating gluten so that the biopsy comes out positive. These months have been so difficult, I feel sad about having lost my job, there are memories, that come into my head, of times when I was being affected by this problem and I didn't know what I was going through. Like flashbacks when I had to say NO to invitations, good times, girfriends, trips, parties, projects, family reunions, etc; oh God I feel so bad remembering how much pain and suffering I was having for so many years, I miss my teenage years, my twenties, I've could have done a lot of things, I was feeling terrible, I swear. I did finish my career, that is a big plus, but it's like the world I'm around doesn't understand what I have gone through and the way I am right now, my habits, everything is the result of living undiagnosed, and now I just can't accept it, I have lost years, oh God I feel so sad. All my friends lived their youth pretty well, I did not. I'm alone but still hoping. I know I'm not depressed it's just that too many things happened in a short period of time. My job loss, celiac disease (positive antiobdies), my flashbacks of so many things that were not done the way I would have liked to, my fight with the world to make them understand this is something important, and try to change my diet habits, it's too much, I'm sarcastic kind of bittered sometimes, I know there is so much hope and things will get better but, right now, I'm just trying to make my way out of this hole, it isn't easy. I will keep coming here for relief. I just needed to write. :(

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This will get better. The diet is a challenge at first, but you can master label-reading and knowing how to handle situations when you have to eat out. I have been diagnosed since April of 2007 and now I feel like a normal person! Even a year out, I didn't think it possible, because I was still not healed. I would have to say I was fortunate, because I did not have the psychological symptoms, like depression-but do understand that depression is a symptom of the disease!! You have had alot happen to you....know that there is a a way for you to feel better and you can do this.

Have you considered not going through the biopsy? Many people on the board have not even had positive antibody tests, but know that gluten is the poison, and have proceeded from there. I am one that was so sick, when the antibody test came back positive, I went for total gluten and dairy free without the biospy. I also saw enough of a change on the diet to feel confident in that decision. Of course it is very personal.

I am sorry that you are feeling so upset. Please know that I understand and have felt your pain. I only wish the best for you.

Molly

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Your not alone. We understand. Many of us deal with the same anger, thoughts and regrets. The loss for many of us goes far beyond just the hours spent sick. You have a right to be angry and to grieve. Don't give yourself a hard time about that but also try not to let the grieving process and the anger hamper your moving forward. I hope the world brightens for you soon.

((((((((((((hugs)))))))))))))

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I hope in time you will see your positive blood test as your liberation papers. You are now in charge of your health. Stay on the gluten free diet. An "official" diagnoses is not neccessary. It could cause health coverage or insurance policy problems.

It would have been nice to find this out when you were younger, but your second chance finally came. Yesterday is gone and today is what matters, and is what you need to focus on. Heal now and get out there and do what you wanted to do. People out there have it a lot worse, believe me.

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Hey dogle,

I think all of us can say we've been there to some degree. You can't change what has already happened, BUT you can change the present and the future. Make peace with the past and know that today is your new beginning. You can start making postive memories right this minute. Don't waste another minute all the bad stuff, focus everything you have on what you can change and make it happen. Do "1" postive thing today and make a difference in your life as well as someone else's.

Best wishes,

Jennifer

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Hi dogle,

I suffered from the psychological effects of celiac disease, and some of the things you say sound very familiar to me. I can still get depressed if I happen to be glutened (I usually feel it around 36-48 hours after being glutened, and it lasts about 24 hours). When I'm in the middle of it, there's little I can do to feel better. But if you can get on the diet and stick with it for at least a few weeks, you'll start to feel better. It didn't take me very long (Vitamin D helped me a lot, too).

You're on the right track, keep going and you'll feel WAAYY better!

Jlinc

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I want to second what jlinc said--start taking vitamin D3. Most celiacs are short on vitamin D--as a matter of fact they are finding that a lot of people are. It helps depression--really helped mine-- and your immune system. And--especially if you are female--start taking calcium and magnesium. Celiacs run short on those too.

Hang on. I was kind of relieved to find out I had celiac disease, that there was a reason for the problems I was having, and that I could improve things. It sure would have been nice to skip twenty years of sprinting to public restrooms though...Good luck with your job search.

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Thank you so much for everyone's kind words and advices; this is my world today, this forum is the place where I can get so much support, I also want to be helping people once my life takes form again. I'm still with the psycological effects of this ailment. I know there's so much hope, but, as I said before, sometimes one accumulates so much pressure that one finally bursts. I'm feeling better. I'm wishing everyone a happy 2009, this is the year where all of us will see very postive changes in our health, life, future, etc, I really hope so. I will keep in contact. :)

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Thank you so much for everyone's kind words and advices; this is my world today, this forum is the place where I can get so much support, I also want to be helping people once my life takes form again. I'm still with the psycological effects of this ailment. I know there's so much hope, but, as I said before, sometimes one accumulates so much pressure that one finally bursts. I'm feeling better. I'm wishing everyone a happy 2009, this is the year where all of us will see very postive changes in our health, life, future, etc, I really hope so. I will keep in contact. :)

Start taking Vitamin D, calcium, magnesium like the PP said, plus take Vitamin B12 "sublingual" (under the tongue). You can find sublingual B12 at healthfood stores, just make sure all of these are gluten-free. For D, magnesium and calcium I use Nature Made. For sublingual B12 I use Trader Joe's.

Celiacs are deficient in these vitaminus (usually) because the body just doesn't absorb it. Taking extra will help while you heal. Good luck.

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This how I've been feeling for the past 4 months. I can't go to bed early, I always go to bed between 3 to 4 am, I don't want to go early. I haven't been able to find a job though I'm trying right now. I haven't had the biopsy but I'm improving with the diet though I know I will have to go back to eating gluten so that the biopsy comes out positive. These months have been so difficult, I feel sad about having lost my job, there are memories, that come into my head, of times when I was being affected by this problem and I didn't know what I was going through. Like flashbacks when I had to say NO to invitations, good times, girfriends, trips, parties, projects, family reunions, etc; oh God I feel so bad remembering how much pain and suffering I was having for so many years, I miss my teenage years, my twenties, I've could have done a lot of things, I was feeling terrible, I swear. I did finish my career, that is a big plus, but it's like the world I'm around doesn't understand what I have gone through and the way I am right now, my habits, everything is the result of living undiagnosed, and now I just can't accept it, I have lost years, oh God I feel so sad. All my friends lived their youth pretty well, I did not. I'm alone but still hoping. I know I'm not depressed it's just that too many things happened in a short period of time. My job loss, celiac disease (positive antiobdies), my flashbacks of so many things that were not done the way I would have liked to, my fight with the world to make them understand this is something important, and try to change my diet habits, it's too much, I'm sarcastic kind of bittered sometimes, I know there is so much hope and things will get better but, right now, I'm just trying to make my way out of this hole, it isn't easy. I will keep coming here for relief. I just needed to write. :(

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I am just the opposite. I am so tired by 8:30-9:00, I usually just crash after I put my children to bed. But then I'm up at 5:00-5:30 when my stomach starts to rumble. I also have the extreme depression and sometimes feel like I'm dying...seriously. I've only been gluten free for a couple months and I see little improvement. It took doctors (4 of them) 9 months to figure out what was wrong with me. Therapy was suggested because they thought it was all in my head. Now they also think I may have Crohn's (had the colonoscopy last week and should know the results next week). I'm also considering the depressing thought that I may have lymphoma because I have pain in my groin and armpit, as well as tightness in my throat, aching legs, and of course fatigue. I feel your pain and anger! The medical community needs to be more aware of this disease and the possible side effects it can cause. I am only 36 years old and the thought of dying and leaving my 3 young children behind scares the hell out of me. :(

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    Jefferson Adams
    Celiac.com 06/16/2018 - Summer is the time for chips and salsa. This fresh salsa recipe relies on cabbage, yes, cabbage, as a secret ingredient. The cabbage brings a delicious flavor and helps the salsa hold together nicely for scooping with your favorite chips. The result is a fresh, tasty salsa that goes great with guacamole.
    Ingredients:
    3 cups ripe fresh tomatoes, diced 1 cup shredded green cabbage ½ cup diced yellow onion ¼ cup chopped fresh cilantro 1 jalapeno, seeded 1 Serrano pepper, seeded 2 tablespoons lemon juice 2 tablespoons red wine vinegar 2 garlic cloves, minced salt to taste black pepper, to taste Directions:
    Purée all ingredients together in a blender.
    Cover and refrigerate for at least 1 hour. 
    Adjust seasoning with salt and pepper, as desired. 
    Serve is a bowl with tortilla chips and guacamole.

    Dr. Ron Hoggan, Ed.D.
    Celiac.com 06/15/2018 - There seems to be widespread agreement in the published medical research reports that stuttering is driven by abnormalities in the brain. Sometimes these are the result of brain injuries resulting from a stroke. Other types of brain injuries can also result in stuttering. Patients with Parkinson’s disease who were treated with stimulation of the subthalamic nucleus, an area of the brain that regulates some motor functions, experienced a return or worsening of stuttering that improved when the stimulation was turned off (1). Similarly, stroke has also been reported in association with acquired stuttering (2). While there are some reports of psychological mechanisms underlying stuttering, a majority of reports seem to favor altered brain morphology and/or function as the root of stuttering (3). Reports of structural differences between the brain hemispheres that are absent in those who do not stutter are also common (4). About 5% of children stutter, beginning sometime around age 3, during the phase of speech acquisition. However, about 75% of these cases resolve without intervention, before reaching their teens (5). Some cases of aphasia, a loss of speech production or understanding, have been reported in association with damage or changes to one or more of the language centers of the brain (6). Stuttering may sometimes arise from changes or damage to these same language centers (7). Thus, many stutterers have abnormalities in the same regions of the brain similar to those seen in aphasia.
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    My own experience with stuttering is limited. I stuttered as a child when I became nervous, upset, or self-conscious. Although I have been gluten free for many years, I haven’t noticed any impact on my inclination to stutter when upset. I don’t know if they are related, but I have also had challenges with speaking when distressed and I have noticed a substantial improvement in this area since removing gluten from my diet. Nonetheless, I have long wondered if there is a connection between gluten consumption and stuttering. Having done the research for this article, I would now encourage stutterers to try a gluten free diet for six months to see if it will reduce or eliminate their stutter. Meanwhile, I hope that some investigator out there will research this matter, publish her findings, and start the ball rolling toward getting some definitive answers to this question.
    Sources:
    1. Toft M, Dietrichs E. Aggravated stuttering following subthalamic deep brain stimulation in Parkinson’s disease--two cases. BMC Neurol. 2011 Apr 8;11:44.
    2. Tani T, Sakai Y. Stuttering after right cerebellar infarction: a case study. J Fluency Disord. 2010 Jun;35(2):141-5. Epub 2010 Mar 15.
    3. Lundgren K, Helm-Estabrooks N, Klein R. Stuttering Following Acquired Brain Damage: A Review of the Literature. J Neurolinguistics. 2010 Sep 1;23(5):447-454.
    4. Jäncke L, Hänggi J, Steinmetz H. Morphological brain differences between adult stutterers and non-stutterers. BMC Neurol. 2004 Dec 10;4(1):23.
    5. Kell CA, Neumann K, von Kriegstein K, Posenenske C, von Gudenberg AW, Euler H, Giraud AL. How the brain repairs stuttering. Brain. 2009 Oct;132(Pt 10):2747-60. Epub 2009 Aug 26.
    6. Galantucci S, Tartaglia MC, Wilson SM, Henry ML, Filippi M, Agosta F, Dronkers NF, Henry RG, Ogar JM, Miller BL, Gorno-Tempini ML. White matter damage in primary progressive aphasias: a diffusion tensor tractography study. Brain. 2011 Jun 11.
    7. Lundgren K, Helm-Estabrooks N, Klein R. Stuttering Following Acquired Brain Damage: A Review of the Literature. J Neurolinguistics. 2010 Sep 1;23(5):447-454.
    8. [No authors listed] Case records of the Massachusetts General Hospital. Weekly clinicopathological exercises. Case 43-1988. A 52-year-old man with persistent watery diarrhea and aphasia. N Engl J Med. 1988 Oct 27;319(17):1139-48
    9. Molteni N, Bardella MT, Baldassarri AR, Bianchi PA. Celiac disease associated with epilepsy and intracranial calcifications: report of two patients. Am J Gastroenterol. 1988 Sep;83(9):992-4.
    10. http://ezinearticles.com/?Food-Allergy-and-Stuttering-Link&id=1235725 
    11. http://www.craig.copperleife.com/health/stuttering_allergies.htm 
    12. https://www.celiac.com/forums/topic/73362-any-help-is-appreciated/
    13. Ford RP. The gluten syndrome: a neurological disease. Med Hypotheses. 2009 Sep;73(3):438-40. Epub 2009 Apr 29.
    14. Hadjivassiliou M, Gibson A, Davies-Jones GA, Lobo AJ, Stephenson TJ, Milford-Ward A. Does cryptic gluten sensitivity play a part in neurological illness? Lancet. 1996 Feb 10;347(8998):369-71.

    Jefferson Adams
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    Journal of Clinical Pathologyhttp://dx.doi.org/10.1136/jclinpath-2018-205023

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    Alimentary Pharmacology & Therapeutics

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