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Where To Now?

DgAvon

By DgAvon
in Doctors

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DgAvon Newbie
DgAvon
Posted

Who do I go see now that I have had my second endoscopy and nothing has changed? Yes, I have been diagnosed with Celiac! My GI doc said to come back if I have problems! Duh! DH is really the most problem i have with the Celiac.

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flourgirl Apprentice
flourgirl
Posted

Personally I think This is where you need to be now. There is a lot of information here. You have the diagnosis, it's up to you to learn and to take control. I don't think many doctors out there really know or understand just what you are dealing with. You do. My advice...read up on posts here, and the many sites that are out there that will help you to help yourself. Good luck to you...heal fast!

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whitball Explorer
whitball
Posted

The important thing is now you have a diagnosis. If you are like the rest of us, it has taken years to get an answer to why you have been sick. This forum has been a life saver for me. There is lots of information here that can help you learn to care for yourself. There are lots of experienced people with good ideas and can offer support when you need it. Good luck to you.

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ang1e0251 Contributor
ang1e0251
Posted

Welcome to the forum. You are in the right place for infomation and friendly advice. Since you are dx'd, now is the time to start the gluten free diet, if you haven't already. You said your main symptom is DH, but you may find, like I did that many other health issues you never imagined could be related to gluten improve or resolve completely when you are gluten-free.

Don't think a biopsy can't miss damage in the small intestine. It can happen as your dx proves. Read up on this site. It is the best spot for the info your dr doesn't know or doesn't have time to tell you. Questions? Ask away. Venting? We'll listen. We've been in your spot, starting out as Celiac "babies" with a lot to learn.

I'm glad you've found the site and good luck in your new gluten-free life.

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