Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Negative Ttg And Neg Biospy


Gfresh404

Recommended Posts

Gfresh404 Enthusiast

At my first year at college I got really sick to the point where I lost 35 pounds (I was already pretty skinny) and could not eat. I had all these tests run and everything came back normal. I even had the tTG test and a small duodenal biopsy: both of which came back negative. So I started messing around with my diet and removed milk, noticed have my symptoms went away - It is not the lactose that bothers me, I believe it is the casein. Continued messing around with my diet and noticed even far greater improvements with the removal of gluten. When I do accidentally consume gluten I get all bloated and depressed and feel sick for a couple of days. I also have intense cravings for all foods cannot stop eating until I am completely full. It's a strange feeling. - Only occurs with consumption of gluten.

Could I still have Celiac? Or do you guys just think it's a gluten sensitivity or intolerance. Any input is greatly appreciated. Thank you.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Mother of Jibril Enthusiast

Welcome to the group!

How much gluten were you eating when you were tested? For a lot of people, it only takes a few weeks on a gluten-free diet for tests to come back negative.

Also... do you know if they tested your total IgA? It that's too low, you could be half-dead and your blood test would still come back negative. Endoscopies are notoriously unreliable, especially if they don't take enough biopsies (damage can be patchy). Plus it seems like a lot of doctors are unwilling to diagnose someone with celiac disease unless the damage is REALLY obvious.

That being said... no matter what part of your body is being affected, gluten intolerance is no joke. If you feel better being off gluten and casein, stick with it! You certainly don't them to be healthy.

rinne Apprentice
.....When I do accidentally consume gluten I get all bloated and depressed and feel sick for a couple of days. I also have intense cravings for all foods cannot stop eating until I am completely full. It's a strange feeling. - Only occurs with consumption of gluten.

Could I still have Celiac? Or do you guys just think it's a gluten sensitivity or intolerance. Any input is greatly appreciated. Thank you.

Hi. :)

If you have some time, check out the signatures of some of the regular posters, you will see years of ill health, various illnesses diagnosed, fibro, diabetes, arthritis, depression.....long list and then you will see Celiac. The testing is notoriously inaccurate.

It may or not be Celiac but for sure your digestion is struggling and when we don't digest our food properly it leads to many other problems. It is really important.

The "intense cravings...." I know that so well, I described it recently as feeling like the part of my brain that knows I am full just shuts off and I am a food monster. I haven't had that happen in nearly three years since I went gluten free.

What is your health history like? Did this begin after taking anti-biotics?

ravenwoodglass Mentor
Hi. :)

If you have some time, check out the signatures of some of the regular posters, you will see years of ill health, various illnesses diagnosed, fibro, diabetes, arthritis, depression.....long list and then you will see Celiac. The testing is notoriously inaccurate.

I'm one of the ones she is referring to. The NIH estimates that 30% of us will show up negative on blood tests and biopsies are really hit and miss if the damage is patchy. There are also changes that precede full vilii destruction that are often not recognized as being from gluten. Doctors seem very reluctant to diagnose celiac until the villi are totally destroyed.

Gfresh404 Enthusiast
Welcome to the group!

How much gluten were you eating when you were tested? For a lot of people, it only takes a few weeks on a gluten-free diet for tests to come back negative.

Also... do you know if they tested your total IgA? It that's too low, you could be half-dead and your blood test would still come back negative. Endoscopies are notoriously unreliable, especially if they don't take enough biopsies (damage can be patchy). Plus it seems like a lot of doctors are unwilling to diagnose someone with celiac disease unless the damage is REALLY obvious.

That being said... no matter what part of your body is being affected, gluten intolerance is no joke. If you feel better being off gluten and casein, stick with it! You certainly don't them to be healthy.

I don't remember starting the gluten-free diet until well after the biopsy but I do remember that during the blood tests I was barely eating.

I do believe they tested total IgA but I will double check on that.

Gfresh404 Enthusiast
Hi. :)

If you have some time, check out the signatures of some of the regular posters, you will see years of ill health, various illnesses diagnosed, fibro, diabetes, arthritis, depression.....long list and then you will see Celiac. The testing is notoriously inaccurate.

It may or not be Celiac but for sure your digestion is struggling and when we don't digest our food properly it leads to many other problems. It is really important.

The "intense cravings...." I know that so well, I described it recently as feeling like the part of my brain that knows I am full just shuts off and I am a food monster. I haven't had that happen in nearly three years since I went gluten free.

What is your health history like? Did this begin after taking anti-biotics?

It began after eating a big meal, I mean a big big meal, at least for me and then I had a bout of gastritis and I took some anti-nausea med, but never any anti biotics.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Wheatwacked replied to Nicbent35's topic in Related Issues & Disorders
      8

      3 year old gluten intolerance?

    2. - Visionaerie replied to ARSTONE's topic in Gluten-Free Foods, Products, Shopping & Medications
      5

      Feel Good gluten free chicken soup dumplings

    3. - ognam posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      0

      Glutening symptom? oily stool

    4. - plumbago replied to plumbago's topic in Related Issues & Disorders
      9

      Anyone else with very high HDL?

    5. - ognam replied to Tyoung's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      5

      Increasing symptoms after going gluten free


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      127,944
    • Most Online (within 30 mins)
      7,748

    Visionaerie
    Newest Member
    Visionaerie
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121k
    • Total Posts
      70.5k

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Wheatwacked
      Yes.  Proportionately a small piece to a toddler is like a whole slice to an adult.  This is an important clue.  She was doing well, accidentally ate gluten and later the old behavior returned. I remember reading posts here of people reacting to a kiss from someone who had just eaten gluten. Recent research indicates that 40% of first degree relatives of someone with Celiac have undiagnosed Celiac Disease.  Father, mother, siblings.  There is a whole list of symtoms of "silent celiac".  Here is an article of symptoms possibly mistaken for other causes than Celiac Disease.  When I finally stopped gluten at 63 years old, I counted 19 things that improved, including lifelong mouthbreathing.  I never smelled bad things, so I as a kid, I learned to respond to the other kid's response in order to not seem weird. I really recommend you pursue testing for all the family if you can, and the whole family following GFD.  It is difficult at first, but the benefits will be worth it.  
    • Visionaerie
      I get these but where we are, they are called chicken potstickers. I would obviously suggest that it is the ginger in the product that is causing a stimulative digestive effect! So you might want to do what I do, just cook one of them with the rest of your meal so you don't have the same effect. I love the Feel Good products but they are on the expensive side. (I also drink Reed's ginger brew so in general, ginger is a friend of mine..when delivered at the right dose). Hope this helps and have a warm healthy week!
    • ognam
      Has anyone had Steatorrhea (oily/fatty poop) as a temporary glutening symptom or should I be concerned I've introduced chronic gluten somewhere (like in meds)? I haven't gotten Steatorrhea since before I went gluten free. However, I moved in the past few weeks and haven't been as careful - I've eaten at restauraunts with cross contamination but only experienced minor symptoms like headache. The past week, I ate only gluten free food at home except I went to Red Robin and got fries (told them gluten-free; allergy). The next day I had Steatorrhea and the day after that.   I know it's a symptom of malabsorption so I was wondering if it was the kind of thing that could be caused by one event or if it was due to a more chronic issue. Of course I will speak to a GI but I recently moved and need to find one.   Thank you for any info
    • plumbago
      A relative has opened another door for me on this issue -- the possibility of menopause raising HDL. Most studies suggest that menopause decreases HDL-C, however, one study found that often it's increased. "Surprisingly, HDL cholesterol was higher (p < 0.001) in postmenopausal women by 11%. Further, the number of women who had low HDL cholesterol was higher in pre vs. postmenopausal women. The range of ages were 26–49 years for pre-menopausal and 51–74 years for postmenopausal women. "This interesting finding has also been observed by other investigators. It is possible that the observed increase in HDL-C in postmenopausal women could be due to a protective mechanism to counterbalance the deleterious effects of biomarkers associated with menopause. However, further studies are needed to confirm this theory. And to the point raised earlier about functionality: "...some patients with elevated HDL-C concentrations could remain at risk for coronary events if HDL is not functional and some authors have suggested that this could be the case for menopausal women." Postmenopausal Women Have Higher HDL and Decreased Incidence of Low HDL than Premenopausal Women with Metabolic Syndrome. By no means to I think this is definitive, rather food for thought.
    • ognam
      Yes, lots of delicious things have barley malt. It also doesn't include rye. And there are a number of grains commonly cross contaminated such as oats.   Additionally, wheat allergies are different from gluten allergies as wheat allergies are a reaction to a wheat protein. So something *could* contain wheat gluten without causing a wheat allergic response (though realistically,  I don't know how likely that is to occur)
×
×
  • Create New...