Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Confused From Self-diagnosing/reading


IChaseFrisbees

Recommended Posts

IChaseFrisbees Explorer

Hey everybody, so my story goes that after I started having symptoms that persisted for a few months I went to a naturopath who ordered a stool test for me to check for bacteria/parasites etc. A week or so later I took a stool test from enterolab to check for gluten intolerance.

I got the bacteria results back, and what it said was that I had 0 good bacteria, I had normal ranges of most of the naturally occurring bad bacteria that we all have, and I had a bad one called C-Diff.

Now me resenting my parents obsession with alternative medicine (an ignorant 18 year old tired of "remedies" and "herbal tinctures" and craving what I thought would be some hardcore western curative medicine) I told my MD that I between the two options the naturopath gave me, which were antibiotic and some sort of grapefruit/garlic/herbal treatment of things the C-diff had tested weak to, I wanted the antibiotic because I though "I'll just nuke that sucker and be good to go."

Boy, do I feel stupid now.

Anyway, I took the course of the antibiotic and didn't get any better, and then when my test results for gluten came back I thought "Ahh! So I killed the C-diff, but it turns out the rel problem was gluten!" So I went gluten free.

I improved mildly, but still had a lot of issues. I followed a food diary and learned to cut out all sugars including fruit, as well as most grains or carby-foods, sort of in the vein of a candida diet. I eat meat, eggs, nuts and veggies. My upper problems got drastically better, less intestinal gas and that "gurgly" feeling and cramps were gone as well as far fewer BM's per day. However, the consistency, smell etc. of the BM's (sorry if this is TMI) isn't better at all.

So now I just want to straighten everything out:

My gluten intolerance was diagnosed by...

Fecal Antigliadin IgA 24 (Normal Range <10 Units)

Can someone tell me what that means?

And then can C-diff cause gluten intolerance, or can it cause some sort of "leaky-gut" syndrome that either causes gluten intolerance or leads to digestive symptoms even when I go gluten free?

Basically I'm wondering if my gluten intolerance is permanent given this set of data, and if it is then why going gluten, carb and sugar free isn't helping. Could the C-diff still be there, could I have some other syndrome like Crohn's, what are the possible scenarios?

Sorry this is a little scattered, thanks a lot just for taking a look and if anyone has experience with this c-diff or any of these situations I'd really appreciate your insight.

Thanks again


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Fiddle-Faddle Community Regular

There are quite a few members here who I think do know a lot about C diff.

Unfortunately, I'm not one of them.

But what I would do is do a bit more research and find out if the antibiotic you were given is the correct one for C diff, or if your doctor just gave a basic antibiotic to shut you up (sorry, some docs actually do that, they've been doing it for years with colds and ear infections).

You also might want to look on www.lymenet.com and research Lyme disease--I'm not sure, but I think C diff might be a coinfection of Lyme? Hopefully, some of the resident Lyme experts here will weigh in on that one.

I think you are coming to much more logical questions/answers from your internet research than most people here got from their doctors.

ravenwoodglass Mentor

C-diff is not something I know a great deal about but I do know that it is hard to get rid of and sometimes needs repeat courses of treatment. Have you had another stool culture done to check if the antibiotic helped? Are you taking any probiotics or eating live culture yogurt or saurkraut on a regular basis. They can help repopulate the gut with the good bacteria that often gets wacked out when they treat the c-diff.

  • 2 months later...
JodiC Apprentice

c diff is extremely contagious so I hope you are protecting the ones around you. Listen to your doctor. Contrary to what you may be told on this site, they are still the ones who know. Of course they put you on the proper antibiotic. Take some probiotics along with any antibiotic. I don't recommend looking on the internet for answers. Not all the info is there...that's why doctors go to school for years. Many conditions can look like Celiac...you need to look at the big picture...that's what doctors do. Sometimes people want answers so bad they are not seeing the forest for the trees. Please stop self diagnosing as you could be missing something your doctor will catch.

mushroom Proficient

I missed this thread when you initially posted. I had c.Diff many years ago, diagnosed through Great Smokies Lab (now Genova), testing which was ordered by a western practitioner of Chinese medicine. He referred me to an integrative MD for treatment. (I had gone this route since my PCP had no clue what to do.) The Great Smokies report gave treatment suggestions based on their testing as to what it was sensitive to. (By the way, I also had major candida infection after a six-month course of various antibiotics for a resistant sinus infection.) So the treatment suggestions for c.Diff were either a specific antibiotic (can't remember which one now), or a gentian formulation. Naturally I chose the gentian because more antibiotics was the last thing I needed, having created the problem in the first place. I also was given massive doses of all kinds of supplements in addition to cure the candida and repopulate my gut with the good guys. I am happy to report that it all worked! And I know that I no longer have it because I had stool testing done last year by Diagnos-Techs. Interestingly, the c.Diff occurred about the time that my major digestive issues worsened all around, even though the c.Diff and candida were gone, so whether it not it was a major contributor to my gluten intolerance, I don't know. It is interesting to speculate on these things. It sure didn't do my gut any good :(

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to Sarah Grace's topic in Related Issues & Disorders
      26

      Headaches / Migraines and Hypoglycaemia

    2. - knitty kitty replied to Sarah Grace's topic in Related Issues & Disorders
      26

      Headaches / Migraines and Hypoglycaemia

    3. - trents replied to Sarah Grace's topic in Related Issues & Disorders
      26

      Headaches / Migraines and Hypoglycaemia

    4. - Scott Adams replied to Russ H's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      1

      KAN-101 Treatment for Coeliac Disease

    5. - Scott Adams replied to miguel54b's topic in Related Issues & Disorders
      1

      Body dysmorphia experience


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,155
    • Most Online (within 30 mins)
      7,748

    lfedas
    Newest Member
    lfedas
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
      This article does not address migraines at all.  Yes, red wine and sulfites are often mentioned in connection with migraine triggers. With me, any kind of alcoholic beverage in very modest amounts will reliably produce a migraine. Nitrous oxide generators, which are vaso dialators, also will give me migraines reliably. So, I think most of my migraines are tied to fluctuations vascular tension and blood flow to the brain. That's why the sumatriptan works so well. It is a vaso constrictor. 
    • knitty kitty
      Excessive dietary tyrosine can cause problems.  Everything in moderation.   Sulfites can also trigger migraines. Sulfites are found in fermented, pickled and aged foods, like cheese.  Sulfites cause a high histamine release.  High histamine levels are found in migraine.  Following a low histamine diet like the low histamine Autoimmune Protocol diet, a Paleo diet, helps immensely.    Sulfites and other migraine trigger foods can cause changes in the gut microbiome.  These bad bacteria can increase the incidence of migraines, increasing histamine and inflammation leading to increased gut permeability (leaky gut), SIBO, and higher systemic inflammation.   A Ketogenic diet can reduce the incidence of migraine.  A Paleo diet like the AIP diet, that restricts carbohydrates (like from starchy vegetables) becomes a ketogenic diet.  This diet also changes the microbiome, eliminating the bad bacteria and SIBO that cause an increase in histamine, inflammation and migraine.  Fewer bad bacteria reduces inflammation, lowers migraine frequency, and improves leaky gut. Since I started following the low histamine ketogenic AIP paleo diet, I rarely get migraine.  Yes, I do eat carbs occasionally now, rice or potato, but still no migraines.  Feed your body right, feed your intestinal bacteria right, you'll feel better.  Good intestinal bacteria actually make your mental health better, too.  I had to decide to change my diet drastically in order to feel better all the time, not just to satisfy my taste buds.  I chose to eat so I would feel better all the time.  I do like dark chocolate (a migraine trigger), but now I can indulge occasionally without a migraine after.   Microbiota alterations are related to migraine food triggers and inflammatory markers in chronic migraine patients with medication overuse headache https://pmc.ncbi.nlm.nih.gov/articles/PMC11546420/  
    • trents
      Then we would need to cut out all meat and fish as they are richer sources of tyrosine than nuts and cheese. Something else about certain tyrosine rich foods must be the actual culprit. 
    • Scott Adams
      I agree that KAN-101 looks promising, and hope the fast track is approved. From our article below: "KAN-101 shows promise as an immune tolerance therapy aiming to retrain the immune system, potentially allowing safe gluten exposure in the future, but more clinical data is needed to confirm long-term effects."  
    • Scott Adams
      Thank you so much for having the courage to share this incredibly vivid and personal experience; it's a powerful reminder of how physical ailments can disrupt our fundamental sense of self. What you're describing sounds less like a purely psychological body dysmorphia and more like a distinct neurological event, likely triggered by the immense physical stress and inflammation that uncontrolled celiac disease can inflict on the entire body, including the nervous system. It makes complete sense that the specific sensory input—the pressure points of your elbows on your knees—created a temporary, distorted body map in your brain, and the fact that it ceased once you adopted a gluten-free diet is a crucial detail. Your intuition to document this is absolutely right; it's not "crazy" but rather a significant anecdotal data point that underscores the mysterious and far-reaching ways gluten can affect individuals. Your theory about sensory triggers from the feet for others is also a thoughtful insight, and sharing this story could indeed be validating for others who have had similar, unexplainable sensory disturbances, helping them feel less alone in their journey.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.