Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Gluten Intolerance Or Ibs?


browneyedsue

Recommended Posts

browneyedsue Newbie

Hello Everyone,

I am new to this site. I have had digestive issues for the past 15 years. I have had every test known to man (except for celiac testing) and all have come back normal. My doctor diagnosed me with IBS and told me to try and control stress, excersie, drink plenty of water and eat a lot of fibre.

I have done all these things for years and years but am unable to get relief. My biggest complaint is Bloating, distention, pressure and constipation with no urge.

Does my history sound familiar to any of you that are gluten sensitive? I'm not convinced I have celiac disease but am thinking I may be sensitive to gluten. Any information you could give me would be helpful, I have begun trying to eliminate gluten but as you know it lurks in just about everything. Some getting started tips would be nice.

Thank you in advance for all who respond. I just want to feel better!!!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



rinne Apprentice

Hi. :) If you have had the same doctor for fifteen years and they have done every test except Celiac then I would suggest finding another doctor.

The simplest thing to do to see if changing your diet will make you feel better is to change it radically for a period of time. Bloating and C say that your digestion is challenged and so many foods are challenging to digest, dairy, nightshades, soy and corn to mention a few. I suggest going to a very basic diet (meat, chicken, fish and veggies) for a week and then introducing foods back in and seeing how you react to them. If you google elimination diets or paleo diets lots of information will come up.

My feeling is that unless we take responsibility for our health we won't have it. Doctors know very little about diet and the real impact it has on our health. They are trained to run tests and if the tests don't show anything they have nothing to offer. Stop! They have antidepressants!

I too had tests run that didn't show anything but in my case I have a sister and brother diagnosed with Celiac by endoscopy and so going gluten free was a no-brainer. Plus, I always knew I had a problem with wheat and mostly avoided it.

I think many people may be suffering digestive disorders today because of antibiotic use years ago, I think it takes time for the bad bacteria to over run the gut. That may be true for you rather than Celiac but in either case a gluten free diet will bring relief and that is a good place to start. :)

Fiddle-Faddle Community Regular

IBS is a syndrome (that's what the "S" stands for--"Syndrome). A syndrome is a collection of symptoms whose cause is not yet known or understood.

If you compare the symptoms of IBS and the symptoms of celiac disease/gluten intolerance, you'll find that the symptoms are identical. Not similar. IDENTICAL.

Unfortunately, your experience is the norm--the doctor diagnoses IBS and prescribes medication to mask the symptoms. Not to address the cause, mind you, but to mask the symptoms.

Now, this doesn't mean that ALL cases of IBS are caused by gluten. Some are caused by other food intolerances. Some are caused by vaccines making the immune system go crazy. Some are caused by intestinal parasites, bacterial infections, or Lyme disease.

But a whopping number are caused by GLUTEN. And doctors ought to lose their jobs for failing to rule it out, as it's the easiest one to rule out. You don't even need blood work to rule it out. You can just try the diet and see if it works.

But be aware that, if you DO want blood work or a biopsy to "prove" on paper that you have celiac, you do need to be eating gluten up until the test, as being gluten-free makes you stop producing the antibodies to gluten.

On the other hand, some here have opted out of a written diagnosis, as the insurance companies have been known to use a diagnosis of celiac disease to deny coverage.

browneyedsue Newbie

Once beginning a gluten free diet how long before I should see a change in my gut?

Also, I worry about inadvertently consuming gluten in products that I am unaware it is lurking in like maybe gum, breath mints, coffee creamer, etc. I know label reading will become second nature and the gluten ingredients will jump out at me, I guess practice will make perfect.

Any suggestions on big NO NO items that I may fall prey to without knowing it? Thanks

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to Sarah Grace's topic in Related Issues & Disorders
      26

      Headaches / Migraines and Hypoglycaemia

    2. - knitty kitty replied to Sarah Grace's topic in Related Issues & Disorders
      26

      Headaches / Migraines and Hypoglycaemia

    3. - trents replied to Sarah Grace's topic in Related Issues & Disorders
      26

      Headaches / Migraines and Hypoglycaemia

    4. - Scott Adams replied to Russ H's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      1

      KAN-101 Treatment for Coeliac Disease

    5. - Scott Adams replied to miguel54b's topic in Related Issues & Disorders
      1

      Body dysmorphia experience


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,152
    • Most Online (within 30 mins)
      7,748

    denise.milillo
    Newest Member
    denise.milillo
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
      This article does not address migraines at all.  Yes, red wine and sulfites are often mentioned in connection with migraine triggers. With me, any kind of alcoholic beverage in very modest amounts will reliably produce a migraine. Nitrous oxide generators, which are vaso dialators, also will give me migraines reliably. So, I think most of my migraines are tied to fluctuations vascular tension and blood flow to the brain. That's why the sumatriptan works so well. It is a vaso constrictor. 
    • knitty kitty
      Excessive dietary tyrosine can cause problems.  Everything in moderation.   Sulfites can also trigger migraines. Sulfites are found in fermented, pickled and aged foods, like cheese.  Sulfites cause a high histamine release.  High histamine levels are found in migraine.  Following a low histamine diet like the low histamine Autoimmune Protocol diet, a Paleo diet, helps immensely.    Sulfites and other migraine trigger foods can cause changes in the gut microbiome.  These bad bacteria can increase the incidence of migraines, increasing histamine and inflammation leading to increased gut permeability (leaky gut), SIBO, and higher systemic inflammation.   A Ketogenic diet can reduce the incidence of migraine.  A Paleo diet like the AIP diet, that restricts carbohydrates (like from starchy vegetables) becomes a ketogenic diet.  This diet also changes the microbiome, eliminating the bad bacteria and SIBO that cause an increase in histamine, inflammation and migraine.  Fewer bad bacteria reduces inflammation, lowers migraine frequency, and improves leaky gut. Since I started following the low histamine ketogenic AIP paleo diet, I rarely get migraine.  Yes, I do eat carbs occasionally now, rice or potato, but still no migraines.  Feed your body right, feed your intestinal bacteria right, you'll feel better.  Good intestinal bacteria actually make your mental health better, too.  I had to decide to change my diet drastically in order to feel better all the time, not just to satisfy my taste buds.  I chose to eat so I would feel better all the time.  I do like dark chocolate (a migraine trigger), but now I can indulge occasionally without a migraine after.   Microbiota alterations are related to migraine food triggers and inflammatory markers in chronic migraine patients with medication overuse headache https://pmc.ncbi.nlm.nih.gov/articles/PMC11546420/  
    • trents
      Then we would need to cut out all meat and fish as they are richer sources of tyrosine than nuts and cheese. Something else about certain tyrosine rich foods must be the actual culprit. 
    • Scott Adams
      I agree that KAN-101 looks promising, and hope the fast track is approved. From our article below: "KAN-101 shows promise as an immune tolerance therapy aiming to retrain the immune system, potentially allowing safe gluten exposure in the future, but more clinical data is needed to confirm long-term effects."  
    • Scott Adams
      Thank you so much for having the courage to share this incredibly vivid and personal experience; it's a powerful reminder of how physical ailments can disrupt our fundamental sense of self. What you're describing sounds less like a purely psychological body dysmorphia and more like a distinct neurological event, likely triggered by the immense physical stress and inflammation that uncontrolled celiac disease can inflict on the entire body, including the nervous system. It makes complete sense that the specific sensory input—the pressure points of your elbows on your knees—created a temporary, distorted body map in your brain, and the fact that it ceased once you adopted a gluten-free diet is a crucial detail. Your intuition to document this is absolutely right; it's not "crazy" but rather a significant anecdotal data point that underscores the mysterious and far-reaching ways gluten can affect individuals. Your theory about sensory triggers from the feet for others is also a thoughtful insight, and sharing this story could indeed be validating for others who have had similar, unexplainable sensory disturbances, helping them feel less alone in their journey.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.