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Gerri

Any Celiac(s) From Canada

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I am new to Celiac (54 year old female), even though I have watched what I ate for many years. I had Gluten problems for many years. Always sick at Christmas, and holidays, acid reflux problems getting worse, vitamin D deficiency, vitamin B12 low, and a list of other health issues getting worse.

Last year my doctor at the time told me to go Gluten Free for the rest of my life. He hoped it would stop the progression of other autoimmune diseases. Since going gluten free my diabetes is controlled, and my sleep apnea's pressure is coming down. I have since been diagnosed with Celiac.

I am from Ontario Canada, and wonder if there are there are others from Canada here.

Hugs

Gerri

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Hi.

There are a number of Canadians on here. I'm in Toronto here at work.

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I am in Kitchener, just west of Toronto. I see a naturopath in Toronto, and hopefully soon a Rheumy.

Don't work too hard. Hoping to talk again soon.

Hugs

Gerri

Hi.

There are a number of Canadians on here. I'm in Toronto here at work.

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Hi there!

I'm from Winnipeg, MB.

I have a cousin who is Celiac from Halifax also.

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Toronto!

I are really annoyed about ontario not covering celiac testing. I think its just criminal.

If any of you have a good celiac friendly doc in Toronto (GI) please PM me.

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Back in 2000, when I was diagnosed, the blood tests were still very new and were not commonly done. I had the endoscopy and biopsy, which was covered by OHIP.

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Hi, Gerri!

I'm in Ottawa, and share the anger over OHIP not covering the blood panel cost. It cost me ninety dollars four years ago, and my dad had it done last fall for $120.00. Expensive, and at times meaningless, for my dad's results were "negative", and I continue to suspect they were false. :(:angry:

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Some of the test are oovered but not them all. I had to pay $180 for two test I believe out of 4. My tissue Transglutaminase (sp) came back low celiac, plus other health issues which are associated with Celiac, gave me my diagnoses of celiac. Get your doctor to order this test (tissue transglutaminase). If you have been off gluten for a while, it is my recommendation not to go for biopsy. Damage can be done in any area of the duoderum, and missed by the biopsy. You will know that your Celiac, by the way you feel off of gluten. To go back on Gluten, causes you to become very sick.

Hugs

Gerri

Toronto!

I are really annoyed about ontario not covering celiac testing. I think its just criminal.

If any of you have a good celiac friendly doc in Toronto (GI) please PM me.

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im in ottawa

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Hello from New Brunswick. I was diagnosed about 2 and 1/2 years ago. I am 52. I was completely thrown for a loop with the diagnosis. I am an ovarian cancer survivor (10 yrs. now) so I'm afraid to say I had been suffering for what seems like eons before I finally gave in and went to the doctor. (I was so afraid that I would be told I had cancer again...my reason for putting it off). I try very hard to watch what I eat but still seem to feel like the dickens most of the time. My GI specialist tells me to continue with the diet and that's all I can do. Seems like I should be doing more....any ideas? :)

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Hi There, I am from Kitchener,ON,CA.

I am new to the forum, and have not yet been tested but will and pretty well am am sure I have some form of gluten intolerance. I have been on a gluten free diet for almost 2 months now and symptoms have significantly improved.

I look forward to getting to know everyone and sharing my thoughts with people in the same situation as myself.

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I am new to Celiac (54 year old female), even though I have watched what I ate for many years. I had Gluten problems for many years. Always sick at Christmas, and holidays, acid reflux problems getting worse, vitamin D deficiency, vitamin B12 low, and a list of other health issues getting worse.

Last year my doctor at the time told me to go Gluten Free for the rest of my life. He hoped it would stop the progression of other autoimmune diseases. Since going gluten free my diabetes is controlled, and my sleep apnea's pressure is coming down. I have since been diagnosed with Celiac.

I am from Ontario Canada, and wonder if there are there are others from Canada here.

Hugs

Gerri

Hi Gerri,

you found another Canadian as well. I am in Northeast B.C. in a very remote community(ft nelson) but am learning to cope with whats going on with me. I was finally diagnosed in April this yr2009 and have been working on going gluten-free ever since. I have gone through my own personal hell like you did. The worst part of it was the family doctor I was using wouldn't refer me to a specialist until he had his turn at me.

This was the worst part of it as I kept getting sicker. But you must have courage I have met celiacs who by all appearances have returned to normal health, and that is what I am shooting for.

Best Wishes

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Hello from New Brunswick. I was diagnosed about 2 and 1/2 years ago. I am 52. I was completely thrown for a loop with the diagnosis. I am an ovarian cancer survivor (10 yrs. now) so I'm afraid to say I had been suffering for what seems like eons before I finally gave in and went to the doctor. (I was so afraid that I would be told I had cancer again...my reason for putting it off). I try very hard to watch what I eat but still seem to feel like the dickens most of the time. My GI specialist tells me to continue with the diet and that's all I can do. Seems like I should be doing more....any ideas? :)

Hi Debbie,

I am a brand new celiac(hahaha, april 2009) and have come to terms with the disease quite quickly. I realize that if I want to get healthy and stay healthy the only way to do it is to stick to the diet. I keep telling myself"no dammit I don't want to be sick anymore.

Best wishes

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Hi,

I'm from Alberta. I haven't been on here much lately. But hopefully I can get here more often.

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Victoria, BC here, moving to Toronto someday.

Forget the test if you are avoiding wheat now. The test looks for anitbodies and assumes you are eating a lot of wheat right now. If not, the test doesn't work.

Everyone should be screened for celiac - it would save your province an immense amount of health care dollars. So says Fasano himself:

Gut. 2003 Feb;52(2):168-9. [bELOW]

Comment in:

Gut. 2003 Feb;52(2):170-1.

Gut. 2004 Jan;53(1):154-5.

Gut. 2004 Oct;53(10):1545-6.

European and North American populations should be screened for coeliac disease.

Fasano A.

Division of Pediatric GI and Nutrition, Center for Celiac Research, University of Maryland School of Medicine, Baltimore, USA. afasano@peds.umaryland.edu

PMID: 12524393

http://www.ncbi.nlm.nih.gov/pubmed/12524393

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Hi Everyone! I'm Holly and I'm from a little town outside of Edmonton, AB! I'm 22 and was diagnosed in feb this year and am having a pretty hard time coping with the diet change...there's no one else in my family with celiac disease, although my little sister is being tested right now, we're waiting for her results :( we're hoping it's negative b/c this really sucks.... anyways i dont really know anyone else with the disease, so i guess i'm looking for some friends that know what i'm going through

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I'm from Halifax. =) Representing the east coast.

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Hi

i'm in Lethbridge, AB. Not sure if its celiac or gluten intollerant or ....??? but gluten free makes me feel so much better! I can sleep. I can eat. I can live!

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Hi,

I just moved to Dawson City, Yukon. I'm originally from Europe and to be honest, I have hard times adjusting to the canadian-style gluten free diet. :( If anyone of you have time and patience to answer my probably trivial questions, I'd be really grateful.

Have a great day everyone!

Pavla

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Hello, Pavla, and welcome to the board.

Living in Dawson City will pose some challenges. It is a lovely place, but is small and somewhat isolated. My wife and I visited in the summer of 1994, well before my gluten-free days. My brother and his wife spent three months in Dawson City in the summer of 2007.

If you are looking for specialty gluten-free items, you will probably need to order them online. But there are lots of mainstream products available in Canada that are gluten-free.

Here is a list of companies/brands that will always clearly disclose gluten if it is present in any of their products:

Arrowhead Mills, Aunt Nelly's, Balance, Baskin Robbins, Ben & Jerry, Bertoli, Betty Crocker, Blue Bunny, Breyers, Campbells, Cascadian Farms, Celestial Seasonings, ConAgra, Country Crock, Edy's, General Mills, Good Humor, Green Giant, Haagen Daz, Hellman's, Hormel, Hungry Jack, Jiffy, Knorr, Kozy Shack, Kraft, Lawry's, Libby's, Lipton, Martha White, Maxwell House, McCormick, Nabisco, Nestle, Old El Paso, Ortega, Pillsbury, Popsicle, Post, Progresso, Ragu, Russell Stover, Seneca Foods, Skippy, Zatarain's.

The list does not include every brand sold by the listed companies, but look closely at the label for the name of a large company such as Kraft or Unilever. Their brands can be trusted even if they are not on my list.

Soft drinks made by Pepsi and Coca-Cola are all gluten-free. Caramel colour in North America is safe, as is maltodextrin.

VH sauces are a ConAgra brand, and are only sold in Canada. Most (but not all) are gluten-free, and in particular, their soy sauce is widely sold in Canada and is gluten-free.

I've given you a start, but you will have many more questions. Ask away, we are all here to support you. :)

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didnt see anyone from Saskatchewan, but i am! straight from saskatoon!

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Hello Peter,

and thanks for your warm welcome.

If you visited Tasty Byte Internet caffe while in Dawson, you might even know me. I was working there in summer 2007. Plus I was goldpanning for the Czech team, (still have the gold). :-)

The list of companies is exactly what I needed, thank you a lot. As for the specialty gluten-free products, I haven't found any breakfast cereals or biscuits, but I can't eat any starchy or too sweet stuff anyway, so it doesn't really bother me. For those celiacs who want to come here, there are gluten-free tortillas, puffed-rice bread, spaghetti and lots of flours - all purpose, corn bread, muffins, pancakes, chocolate cake from Red Mill company.

I still have two more questions. First one - are there any gluten-free beef jerky you can recommend? I've seen some that don't have any gluten in their ingredients list, but just don't know if I can trust them. The second is not related to gluten-free diet. I tried to find sour cream and cottage cheese that are made from milk only but I had no luck so far, all of them contain at least corn starch and guar gum. Should I search more or is this just the "purest" form I can get in Canada? I honestly don't know.

Well, need to go back to work. Hope you have a great day.

Pavla

Hello, Pavla, and welcome to the board.

Living in Dawson City will pose some challenges. It is a lovely place, but is small and somewhat isolated. My wife and I visited in the summer of 1994, well before my gluten-free days. My brother and his wife spent three months in Dawson City in the summer of 2007.

If you are looking for specialty gluten-free items, you will probably need to order them online. But there are lots of mainstream products available in Canada that are gluten-free.

Here is a list of companies/brands that will always clearly disclose gluten if it is present in any of their products:

Arrowhead Mills, Aunt Nelly's, Balance, Baskin Robbins, Ben & Jerry, Bertoli, Betty Crocker, Blue Bunny, Breyers, Campbells, Cascadian Farms, Celestial Seasonings, ConAgra, Country Crock, Edy's, General Mills, Good Humor, Green Giant, Haagen Daz, Hellman's, Hormel, Hungry Jack, Jiffy, Knorr, Kozy Shack, Kraft, Lawry's, Libby's, Lipton, Martha White, Maxwell House, McCormick, Nabisco, Nestle, Old El Paso, Ortega, Pillsbury, Popsicle, Post, Progresso, Ragu, Russell Stover, Seneca Foods, Skippy, Zatarain's.

The list does not include every brand sold by the listed companies, but look closely at the label for the name of a large company such as Kraft or Unilever. Their brands can be trusted even if they are not on my list.

Soft drinks made by Pepsi and Coca-Cola are all gluten-free. Caramel colour in North America is safe, as is maltodextrin.

VH sauces are a ConAgra brand, and are only sold in Canada. Most (but not all) are gluten-free, and in particular, their soy sauce is widely sold in Canada and is gluten-free.

I've given you a start, but you will have many more questions. Ask away, we are all here to support you. :)

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Newly diagnosed (May 2009). 20 years old from Edmonton! :D

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HI, I'm from Vancouver Canada, and joined this site today. I got my world turned upsidedown just three days ago. I'm also blessed with a severe, severe dairy allergy, eggs, and sunflower seeds, just to name the most severe.

In the past three days I've come to understand that my carefree eating will now be very, very changed. Thank god I can have coffee still!!!!!!

I too will have a bunch of questions that will probably be repeats...like...I'm already confused...cornstarch is out as well? hmmm...is there a list of foods to avoid on here somwhere?

I think I'm very lucky. I live in a large city, so access to special diet items may be easier....and I work in a clinic with many fabulous professionals with great advice and experience with this. I guess life could be worse. lol

Anyone know how long it takes to start feeling relief from symptoms?

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opps double post...this forum and I are not getting along yet...sorry

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    • OK good to know. Thanks for the tip
    • This is an old thread but I just need to get this out of my system! I am just so fed up with how every caregiver has been dealing with me case. My enzymes have been abnormal and my doc continuously asks me if I'm binge drinking - I literally haven't had a sip of alcohol in 2 years. Never been a heavy drinker.  She also tells me that all of my troubling neurological symptoms - sensory hypersensitivity, tinnitus, jaw/pain, headaches, fatigue, teeth grinding, nightmares, and EPILEPSY are "all in my head." ??? When my GI symptoms first started, she tried pushing acid reflux medications on me, even though Ive never dealt with heartburn. She was confused and aggressively asked, "Then what do you want!???"... um, to figure out the root of my issues? Some diagnostics? Gosh... When I told her my symptoms had decreased on a low gluten diet and I was interested in being tested for celiac, she asked me "why bother? if you're feeling better, just eat less gluten" - not understanding the value of a formal diagnosis.   I just wish I had some other disease that was more medically recognized and understood. Its so demeaning, and I try to see my doctors as little as possible now. I do my own research on PubMED and google scholar. And I don't even think I've had it the worst- I'm totally appalled by all of the crap I've read on this thread. Anyways, I'm done ranting.
    • Has your Dr mention Microscopic Colitis at all.  You mentioned taking PPI's.  I took them for over a year - 2 morning and 2 night.  I think that's how I ended up with Microscopic Colitis.  I don't think I have Celiac disease but do think I am very sensitive to gluten.  My GI dr. told me to eat whatever I want , but have learned from research, partly from microscopiccolitis.org that almost everyone with MC is sensitive to gluten and most to dairy and some to soy.  I know some on this site don't agree with some of what is said on that site, but they are really good people who want to help.  Just said all that to say, maybe you should ask your GI if you could have MC.  Hope you get it all figured out.  I know the frustration.  It can take over your life.
    • Yeah their shreds raw are nasty but melted in recipes they are decent, they make 2 different shreds a cutting board super stretchy version and a plain, they also sell that mac and cheese sauce by itself for use in other recipes. https://store.veganessentials.com/daiya-deluxe-cheeze-sauces-p5079.aspx The company makes a decent cream cheese and cheese cake also if you can stomach the xantham gum.

      I am going to copy and paste something from another thread thread and link you a list of alternatives. " Violife...makes vegan Feta...I have been dying to try their cheeses and hear good reviews. They also make other cheeses.
      https://store.veganessentials.com/just-like-feta-by-violife-p5342.aspx
      Kite Hill makes great Ricotta, the truffle cheese from them....yeah you will eat the whole thing in one sitting stuff is addictive,  decent cream cheese if you can stomach xantham gum (only one they have that has it).
      
      Miyoko Creamery makes great mozzarella and even a smoked version I hear they make great cream cheese and wheels also but I have not gotten any. Leaf Cuisines makes the best smoked gouda, and a strong garlic and herb cheese

      Tree line Scallion is glorious, and their garlic and herb is milder then Leaf cuisines but decent flavor...the peppered is meh.

      Daiya Blocks flavor wise are better then the shreds, the jalapeno Havarti is one my my dads favorites and he loves their cheddar...again xantham gum so not for me. Their cream cheese is decent but noticeable artificial. Their shreds come in 2 formulations a high melt version (cutting block) and standard I they taste better cooked into recieps over raw.
      Daiya recently started offering cheese sauces...like the stuff they used to sell with their mac&cheese but just the sauce.

      Lissanatti makes the best "raw" shreds for cheddar and mozz.

      Parma makes great Parmesan sub...the better then bacon one is SUPER addicting.

      I heard good reviews on so delicious cheese....but corn makes makes me not even able to do a chew and spit taste without an allergic reaction.

      I recently found a creamery you can contact about getting cheeses...I found their sauce on a site and got it.....great Alfredo sauce.
      http://www.parmelacreamery.com/
      https://www.luckyvitamin.com/m-28232-parmela-creamery
        Dairy Free cheese products  NOTE CHECK FOR GLUTEN FREE ON THEM
      https://store.veganessentials.com/cheese-alternatives-c6.aspx

      Other gluten free options for everything else  
    • Dairy is dairy on a elimination diet, your trying to void all the proteins, lactose, whey, casein, and the enzymes, hormones, pus, etc that could be setting off issues. I would even say wait at first on the dairy free alts. IF anything go with the fewest ingredients ones without starches or gums like the plain kite hills, tree line, leaf cuisines and miyoko. And completely sideline the crazy ones like daiya, or the blends of more then 2-4 ingredients.
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