Curvey 0 Posted March 23, 2005 Report This Post (To report rule violations to admin) Share Posted March 23, 2005 Hi there, I am new to being a Celiac, and have been gluten-free over a month. Since going gluten-free, I've had occasional sudden sharp piercing pain in my left ear, followed by a migrane. Then, my husband and I had a miscommunication, and I used the grill without washing it after he grilled a sandwich in it. So I know I got glutenized, and then got the ear pain right after eating - that must be what I get, right? So, it's been going on for about 5 days now, off and on. I am worried that there is something wrong that isn't related to Celiac. Does anyone else get this ear pain. Man, this is frustrating!!! Thanks Link to post Share on other sites
Guest Leidenschaft Posted March 23, 2005 Report This Post (To report rule violations to admin) Share Posted March 23, 2005 I have had sharp, piercing pain in my ears before as well, although I've never associated them with Celiac, and never had headaches following an incident... However I have had what I've dubbed "my left temple pounders" for years and years. I would wake up with a dull throb in my left temple, or develope it through the day and many times go to bed with it. I would usually find that it was related to stiff neck and shoulder, however since being gluten-free for over a year, I think I've only had one or two! This probably doesn't help much, but I've not heard of anyone else having the ear pain before, so felt I should reply! It's quite excruciating when it happens, which fortunately for me is not often! I had many ear infections as a kid, and I'm such a baby about that kind of pain! I'd be interested to hear more views on this! Link to post Share on other sites
Curvey 0 Posted March 23, 2005 Author Report This Post (To report rule violations to admin) Share Posted March 23, 2005 Thank you so much for your response. I'm still looking for a link through the www, but haven't found anything. Hopefully something comes up in this forum take care Link to post Share on other sites
lovegrov 151 Posted March 23, 2005 Report This Post (To report rule violations to admin) Share Posted March 23, 2005 Never heard of this as a gluten reaction. richard, roanoke, va. Link to post Share on other sites
Curvey 0 Posted March 23, 2005 Author Report This Post (To report rule violations to admin) Share Posted March 23, 2005 I have been by a coworker that his wife loses her hearing when she has an attack. I'm wondering if there is a connection? Link to post Share on other sites
Lynne Billington 0 Posted March 23, 2005 Report This Post (To report rule violations to admin) Share Posted March 23, 2005 My husband who is GI has been diagnosed with trigeminal neuralgia which is a facial nerve that affects the ear, jaw, sinuses. I'm thinking this would fall into the peripheral neuropathy they attribute to celiac disease/GI. He takes an epilepsy medication to control it. Some days it's much worse than others. Some days it's non-existent. Typically trigeminal neuralgia comes and goes. His comes and stays and can be very severe. Hide your head under a pillow and pray it stops -- kind of like migraines. Hope this isn't what you're starting to experience because it's NO fun. But this whole celiac disease/GI thing isn't either. Lynne Link to post Share on other sites
judy05 0 Posted March 24, 2005 Report This Post (To report rule violations to admin) Share Posted March 24, 2005 Hi Lynne, My mother also had Trigeminal Neuralgia for many years. She died last month from heart failure. Hers would come and go, but she was pretty well controlled by taking Tegretol. She seemed to be bothered mostly by the change in seasons. Last October I took her out of the nursing home to stay with me but she suffered terribly because my house wasn't as warm as the nursing home and the doctor advised me to put her back. Mom didn't have celiac but did have a lot of digestive problems, she probably should have been tested. I agree that it is a terrible disease, when hers flared up she couldn't eat, wash her face or brush her teeth. I always had to make sure she got darvocet or vicodin to relieve the pain. I think it must be related to gluten but have yet to find any research about it. Tell your husband I wish him well and to stay gluten-free! The one resolution, which was in my mind long before it took the form of a resolution, is the key-note of my life. It is this,always to regard as mere impertinences of fate the handicaps which were placed on my life almost at the beginning. I resolved that they should not crush or dwarf my soul, but rather be made to blossom, like Aaron's rod, with flowers-Helen Keller Judy- Gluten Intolerant Link to post Share on other sites
judy05 0 Posted March 24, 2005 Report This Post (To report rule violations to admin) Share Posted March 24, 2005 Curvey, I have had pain in my ears and also on the side of my head. My allergist said they were caused by my sinuses. However a few nights ago my ear felt "weird". I couldn't stand to have the TV turned up, it was like being very sound sensitive. It only lasted about 15 minutes. I told my husband, but he didn't say much about it, he kind of goes along with whatever is wrong with me, doesn't get excited. The one resolution, which was in my mind long before it took the form of a resolution, is the key-note of my life. It is this,always to regard as mere impertinences of fate the handicaps which were placed on my life almost at the beginning. I resolved that they should not crush or dwarf my soul, but rather be made to blossom, like Aaron's rod, with flowers-Helen Keller Judy- Gluten Intolerant Link to post Share on other sites
jcgirl 0 Posted March 24, 2005 Report This Post (To report rule violations to admin) Share Posted March 24, 2005 I have had sharp pain in my ears and they constantly feel as though there is fluid in them. The doctor always says that there is no fluid in my ears and dismissing the earaches. I would too would get migraines and think that they were triggered by a sinus/ear infection. Sense being gluten-free I have not had a migraine but still have the ear thing going on. Although it does not sound as bad as you have experienced. Both the ear, nose, throut doctor and the dentist seem to believe that it is caused by TMJ. Link to post Share on other sites
Curvey 0 Posted March 24, 2005 Author Report This Post (To report rule violations to admin) Share Posted March 24, 2005 WOW! The feedback here has been increditable! Thank you so very much. I am now looking into this condition. I really appreciate it, you may have saved me from many doctors trip and testing Link to post Share on other sites
Lynne Billington 0 Posted March 24, 2005 Report This Post (To report rule violations to admin) Share Posted March 24, 2005 With the trigeminal neuralgia, he says his teeth often feel like they belong to somebody else. And as far as sinuses, he thought that's what his was. He's had four sinus surgeries in the past and his last one was six months previous to when the TN started. He went to her first and she scoped him and said there was NOTHING wrong with his sinuses or ears and she sent him on to a neurologist. But like I said, his is more a constant pain when it's bad. He uses Trileptal three times a day everyday and then hydrocodone for pain when it's bad. Hope all you members with the sharp ear pains can figure it out. Lynne Link to post Share on other sites
Guest BellyTimber Posted March 24, 2005 Report This Post (To report rule violations to admin) Share Posted March 24, 2005 Wow ... I get sharp pains in (mainly right) ear, dull pains in ears, temporary partial hearing loss, "turns" (mainly mornings), sensitive hearing. Before going largely gluten-free I had bad sinuses a lot. One year my head clicked every time I took a step, all year! Michael Link to post Share on other sites
Recommended Posts
Archived
This topic is now archived and is closed to further replies.