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Gluten Free Diet Not Working Help!


bonnarooski

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bonnarooski Newbie

Hello, my boyfriend was recently diagnosed with celiac disease and hes been extremely strict about keeping gluten out of his diet he even washed every dish in his house to make sure there was no gluten on a dirty dish. We have analyzed everything he is eating (most of the stuff he eats come from wegmans where they put a gluten free label on the package and guarantee that it is not cross contaminated) his symptoms were gone for the first few days of the diet but are now coming back and worsening....anyone have any ideas why this could be or are having the same problem?


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psawyer Proficient

Hello, and welcome.

You didn't say what his symptoms were, so I am guessing a bit here.

Lactose intolerance symptoms can be similar to some celiac symptoms. This can be temporary, as lactase, the enzyme to digest lactose, is produced in the villi. When the villi heal, lactase is again produced, but it may be useful to avoid most dairy products for the first few months.

The amount of damage to the body varies from person to person, and so does the time to heal and recover. During the early parts of the process, it can be like a roller coaster, with extreme ups and downs.

Gfresh404 Enthusiast

My guess is that he is having issues with other foods. I would start out by cutting out dairy, soy, and corn. When I initially went gluten free I felt amazing then I had some setbacks. I have found that for some reason corn bothers me. A lot of people have sensitivities. When going gluten-free you expose yourself to a lot of foods that you did not normally eat before, so you might have a sensitivity or intolerance that you're unaware of.

curlyfries Contributor

Is he eating gluten-free breads of any kind? Often the fragile digestive system can't handle it at first. He may need to eliminate those until he has had some time to heal.

ravenwoodglass Mentor

Another thought in addition to the great advice already given. You say he is your BF, to me that means you at least kiss. Have you made sure any lip products you use are gluten-free?

bonnarooski Newbie

Thanks everybody!! i have made sure that my lipgloss/makeup is gluten free so i think he is just gunna try to avoid lactose for the time being and maybe avoid soy like some of you have suggested

ANix Newbie

Here is a really good article I found for following a gluten free diet.

Open Original Shared Link

Also, often times people with gluten-intolerance also have dairy intolerance, yeast intolerance or other intolerances. I was wondering why I wasn't getting completely better until I discovered I also had dairy and yeast intolerances. My dairy intolerance is related to the casein in dairy, not the lactose.

Aana


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mushroom Proficient
Here is a really good article I found for following a gluten free diet.

Open Original Shared Link

Also, often times people with gluten-intolerance also have dairy intolerance, yeast intolerance or other intolerances. I was wondering why I wasn't getting completely better until I discovered I also had dairy and yeast intolerances. My dairy intolerance is related to the casein in dairy, not the lactose.

Aana

Hi Aana, and welcome.

That cdhnfsite is a winner for newbies who don't know where to start.

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    • Manaan2
      Hi Trents-Thanks for reading and sharing insight.  We need all the help we can get and it's super appreciated.  She is currently dairy, soy and oat free and those have mostly been completely excluded from her diet since the diagnosis (we tried going back on dairy and oats at different times for a bit, didn't see a significant difference but have now cut out again just to be extra safe since her issues are so persistent.  We did cut eggs out for about 3 months and didn't notice significant difference there, either.  The only one we haven't specifically cut out completely for any portion of time is corn, however, we've kept it minimal in all of our diets for a long time.  She definitely goes 3-4 weeks without any corn products at times and still has issues, but I'm guessing that's not long enough to confirm that it isn't causing issues.   We could definitely try to go longer just to double check.  Thanks again!   
    • Jordan23
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    • K6315
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    • trents
      Welcome to the forum, @Doris Barnes! You do realize don't you that the "gluten free" label does not mean the same thing as "free of gluten"? According to FDA regulations, using the "gluten free" label simply means the product does not contain gluten in excess of 20 ppm. "Certified Gluten Free" is labeling deployed by an independent testing group known as GFCO which means the product does not contain gluten in excess of 10 ppm. Either concentration of gluten can still cause a reaction in folks who fall into the more sensitive spectrum of the celiac community. 20 ppm is safe for most celiacs. Without knowing how sensitive you are to small amounts of gluten, I cannot speak to whether or not the Hu Kitechen chocolates are safe for you. But it sounds like they have taken sufficient precautions at their factory to ensure that this product will be safe for the large majority of celiacs.
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      Buying choclate, I recently boght a bar from Hu Kitchen (on your list of recommended candy. It says it is free of gluten. However on the same package in small print it says "please be aware that the product is produced using equipment that also processes nuts, soy, milk and wheat. Allergen cleans are made prior to production". So my question is can I trust that there is no cross contamination.  If the allergy clean is not done carefully it could cause gluten exposure. Does anyone know of a choclate brand that is made at a facility that does not also use wheat, a gluten free facility. Thank you.
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