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Tim86

Are Body Temperature Issues Related To Gluten Intolerance Or Celiac?

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I have problems at night with waking up really hot, and it is difficult to cool off. I'm fine when I go to sleep...I can't use lighter blankets, or I'll be too cold when I try to fall asleep. But I frequently wake up a few hours into the night feeling hot. It isn't night sweats, because I don't get sweaty. I just feel extremly warm.

Could this be a symptom related to gluten intolerance or celiac? Does anyone else have this problem, and how quickly did it go away when you went gluten-free?

I've been gluten-free for two weeks. I've noticed an improvement in "IBS" symptoms, but no other changes yet.

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I actually thought I was pre-menopausal because of this. I used to wake-up during the night and have to change my bedclothes. They were soaking wet! I have not had that happen to me in over a year. I'm not sure if it is because of celiac but, I hope the same happens for you when you are gluten-free for a while.

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I used to have night sweats, before gluten-free and for a while after, but they stopped a while back. I think they can be related to thyroid issues and possibly diabetes also. And fever of course.

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I have problems at night with waking up really hot, and it is difficult to cool off. I'm fine when I go to sleep...I can't use lighter blankets, or I'll be too cold when I try to fall asleep. But I frequently wake up a few hours into the night feeling hot. It isn't night sweats, because I don't get sweaty. I just feel extremly warm.

Could this be a symptom related to gluten intolerance or celiac? Does anyone else have this problem, and how quickly did it go away when you went gluten-free?

I've been gluten-free for two weeks. I've noticed an improvement in "IBS" symptoms, but no other changes yet.

I had random fevers for over a year, especially at night, and didn't usually sweat either. Now, I get bad chills anytime. I've had several minor infections that may or may not have caused them. I never did actually take my temp, so i don't know if they were true fevers or not. When my symptoms get bad, i go from chills to the fever again. A point, I am gluten free for two months, but have no diagnosis but IBS, gastritis, and peripheral neuropathy. the fever part seemed to diminish after being gluten free (the first time) for about six weeks.

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I have hot/cold issues as well. In doing more research and talking with my doc, he claims that mine is linked to my Hashimoto's Disease (Thyroid). Since, the thyroid actually is the regulator of body temp, if it doesn't work properly it can cause random cold or heat spells. Mine is usually cold, but I do get hot at random. I have ruled out menopause as I am only 30, so that wouldn't make a hole lota sense for me. :D

Good luck with it. Sucks, but hopefully over time when your body finds it's "happy" place it might adjust itself accordingly.

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I struggle with night temperatures too. For me it's thyroid and Lyme but I bet as you heal your body will readjust.

When I got diagnosed with celiac my average body temp was 93! Yet, I would be hot after as little as 10 minutes n bed.

It's really frustrating, but give it some time. If it doesn't get better see your doctor.

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I had to read this, as I have odd temperature issues in the last couple of years as well.

During the day, I am always too warm. I keep my house about 60 degrees and can finally wear a long-sleeved shirt, but in normal houses (70*) I need tank-tops.

However, at night I have to PILE on the blankets to the point that I can barely move, because otherwise I freeze. My alarm goes off in the morning, and I can lay there about 3 minutes before it's like someone turned on my thermostat and I have to kick off all of them. My normal body temperature is in the high 96* range, and is gradually getting lower every few months.

I never thought this could be related to celiac, and I have not yet gone gluten-free, so I can't tell you more. I have no confirmed diagnosis yet, but I'm pretty sure I'm heading down the gluten-free path.

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I've also heard it could be because of the thyroid. If you decide to get checked, ask them to check the Free T4 and Free T3 instead of just a TSH. For me, my TSH was slightly elevated, but my T3 was really low and the T4 low as well.

Some doctors will only check your TSH level which doesn't show the whole picture.

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I've also heard it could be because of the thyroid. If you decide to get checked, ask them to check the Free T4 and Free T3 instead of just a TSH. For me, my TSH was slightly elevated, but my T3 was really low and the T4 low as well.

Some doctors will only check your TSH level which doesn't show the whole picture.

i'm so glad i found this link. i'm struggling with my 3 kids who are gluten intolerant and i'm pretty darned sure they are temperature sensitive when it comes to sleeping well. when the weather gets warmer outside they sleep at 68... if they sleep at 69 degrees or even 70, all three wake up with the crankiest of all demeanors.... crying, whining, fighting (which they don't usually do if they sleep well). and at 70 they complain that it's too hot. it's very strange to me because both my husband and i sleep find with a range of temps including 70-72 with similar blankets.

does anyone recommend what to do? should i be going to get their thyroid levels checked? would it even help anything?

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It might be a good idea to have their thyroid checked. I think soy is another possible cause of heat imbalances. My body was really wacky when I was eating soy.

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I used to have night sweats. Now I'm having the opposite problem. I'm freezing to death. It's 81 degrees outside here and I'm sitting in front of a heater....and I'm still cold! According to my dr., I don't have Hashimoto's....I'm not so sure.

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7 hours ago, arcountrygirl75 said:

I used to have night sweats. Now I'm having the opposite problem. I'm freezing to death. It's 81 degrees outside here and I'm sitting in front of a heater....and I'm still cold! According to my dr., I don't have Hashimoto's....I'm not so sure.

Did your doctor check for thyroid antibodies?  You can have Hashimoto’s (hypo) or Graves (hyper) before the rest of your thyroid lab ranges go out of wack.  Make sure more than just TSH is measured.  

What about Raynaud’s disease?  Do you ever get blue fingers or toes?  Just being exposed to air conditioning can trigger this.  

Is your celiac disease flaring/active?    You should have an annual exam to measure antibodies to help determine  dietary compliance. This can also let you know if your celiac disease is active right now.  

Finally, it could be another autoimmune disorder, but best to rule out active celiac disease first.  Talk to your doctor.  

Edited by cyclinglady

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On 6/25/2019 at 5:52 PM, arcountrygirl75 said:

 I'm freezing to death.  

I used to be cold, always. With 80+ degrees inside I needed two thick blankets to be able to sleep. My body temperature was usually around 96,4-97,2. I was seldom allowed to touch people. I needed heat from warm baths or another body to reheat myself if it was too cold. 

Today my body temperature is around 98-98,5 and it only takes a few minutes to reheat if been cold outside. I love it. 

This change in body temperature is due to

1. extremely strict gluten free diet (no additives derived from cereals, this is difficult as it's not always labeled, but I'm hypersensitive, and learn by trial and error)

2. heaps of vitamins to boost, I quadrupled the dose of B9 (approximately 1000% rdi) and B12 (5mg/day), and some extra zinc.

(Zinc is actually a very common deficiency among people with celiac disease, one study claimed that nearly 70% of the newly diagnosed had zinc deficiency) 

I don't have iron deficiency myself. But I think this could cause freezing too due to anemia. B12 deficiency can also cause anemia, pernicious anemia. 

Try to check your vitamins and minerals, hopefully this is the cause because it's easy to adjust. 

I did eat my vitamins and B12 daily for over a decade, but it didn't help until I quadrupled my dose of the latter. 

(B12 is used in emergency if someone suffer cyanide poisoning, they inject up to 10 grams. Its also used in some countries to ease pain. It's extremely difficult to overdose, and there's no known side effects. B9 can mask b12 deficiency if overdosing, but this too has no other known side effects.) 

 

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