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Salax

By Salax
in Coping with Celiac Disease

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Salax Contributor
Salax
Posted

Hi all,

I am new to the forum. I was recently re-diagnosed with Celiac. Back in 2000 I was having major stomach issues. Nausea, stomach pain, everything that I ate seemed to upset my stomach, diarrhea, constipation and bloating. I did blood work and they told me I had tested positive for celiac. Doc told me to go gluten free. I did for about 6 months solid. We did a biopsy, which tested negative. So he told me that I wasn

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happygirl Collaborator
happygirl
Posted

Salax:

Welcome to the board - thank you for sharing your story - I'm sure that many others can relate.

The good news is you finally DO have an answer.

I hope you stick around and make yourself at home!

ang1e0251 Contributor
ang1e0251
Posted

Welcome to the Forum! Let us know how you continue to feel. So neat that your husband is that supportive. He's a Keeper!

GFinDC Veteran
GFinDC
Posted

Hi,

Welcome to the forum! Losing weight is a classic symptom of celiac. Then there are also people who gain weight. After I was gluten free for a several months, my appetite seemed to decrease. I think for me was because of improved absorption of nutrients, and of course taking more vitamins/minerals. I didn't really lose weight, just didn't eat as much, and wasn't as hungry. But everyone is different in how it affects them.

CeliacMom2008 Enthusiast
CeliacMom2008
Posted

Depending on what's included in your new gluten free diet, your weight loss may be a side affect - of healthier eating! We sort of went the opposite way at first - over compensating for what we were taking out of our son's diet (and thus ours because we have a gluten-free house) with things like candy bars, muffins, pancakes, baked goods galore, etc. Once we got over the initial "let's eat everything we can that's gluten-free" we went back to our more healthy diet of more fruits and veggies. If you skipped our binge phase, you may just be losing weight because you're eating better.

Or maybe you're eating less because you're having trouble finding foods you like. If that's the case, keep looking! There's lots out there!!

Good luck finding the cause and welcome to group!

Roda Rising Star
Roda
Posted
Depending on what's included in your new gluten free diet, your weight loss may be a side affect - of healthier eating! We sort of went the opposite way at first - over compensating for what we were taking out of our son's diet (and thus ours because we have a gluten-free house) with things like candy bars, muffins, pancakes, baked goods galore, etc. Once we got over the initial "let's eat everything we can that's gluten-free" we went back to our more healthy diet of more fruits and veggies. If you skipped our binge phase, you may just be losing weight because you're eating better.

Or maybe you're eating less because you're having trouble finding foods you like. If that's the case, keep looking! There's lots out there!!

Good luck finding the cause and welcome to group!

I lost 10lbs in the month before my biopsy. After I went gluten free in the end of Oct. '08, I also went on a binge on trying the gluten free stuff. I was baking so much that I gained back the 10lbs I lost. Now things have lost their novelty and am more cosistent and make healthier choices. I still bake but now it's more of a treat. I also started vitamin D supplements due to deficiency in Jan. That has made a big difference. I now have energy and have started to exercise. I think I am starting to loose some weight but it is now a more gradual and healthy weight loss. I still have around 25+ lbs to go.

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    • Rogol72
      Sainsbury's Free From White Sliced Bread - Now Egg Free - Completely Ruined It

      By Rogol72 · Posted

      @HAUS, I was at an event in the UK a few years back. I remember ringing the restaurant ahead to inquire about the gluten free options. All I wanted was a few gluten free sandwiches, which they provided and they were delicious. The gluten-free bread they used was Warbutons white bread and I remember mentioning it on this site before. No harm in trying it once. It's fortified with Calcium and Iron. https://www.warburtonsglutenfree.com/warbs_products/white-loaf/ The only other gluten-free bread that I've come across that is fortified is Schar with Iodized salt, nothing else.
    • Scott Adams
      Sainsbury's Free From White Sliced Bread - Now Egg Free - Completely Ruined It

      By Scott Adams · Posted

      In the U.S., most regular wheat breads are required to be enriched with certain B-vitamins and iron, but gluten-free breads are not required to be. Since many gluten-free products are not enriched, we usually encourage people with celiac disease to consider a multivitamin.  In the early 1900s, refined white flour replaced whole grains, and people began developing serious vitamin-deficiency diseases: Beriberi → caused by a lack of thiamin (vitamin B1) Pellagra → caused by a lack of niacin (vitamin B3) Anemia → linked to low iron and lack of folate By the 1930s–40s, these problems were common in the U.S., especially in poorer regions. Public-health officials responded by requiring wheat flour and the breads made from it to be “enriched” with thiamin, riboflavin, niacin, and iron. Folic acid was added later (1998) to prevent neural-tube birth defects. Why gluten-free bread isn’t required to be enriched? The U.S. enrichment standards were written specifically for wheat flour. Gluten-free breads use rice, tapioca, corn, sorghum, etc.—so they fall outside that rule—but they probably should be for the same reason wheat products are.
    • Scott Adams
      Inconclusive results

      By Scott Adams · Posted

      Keep in mind that there are drawbacks to a formal diagnosis, for example more expensive life and private health insurance, as well as possibly needing to disclose it on job applications. Normally I am in favor of the formal diagnosis process, but if you've already figured out that you can't tolerate gluten and will likely stay gluten-free anyway, I wanted to at least mention the possible negative sides of having a formal diagnosis. While I understand wanting a formal diagnosis, it sounds like she will likely remain gluten-free either way, even if she should test negative for celiac disease (Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If her symptoms go away on a gluten-free diet, it would likely signal NCGS).        
    • JoJo0611
      CT with contrast.

      By JoJo0611 · Posted

      Thank you. 
    • deanna1ynne
      Inconclusive results

      By deanna1ynne · Posted

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