Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Celiac's Disease In 3 Year Old


reneelt

Recommended Posts

reneelt Rookie

I am new to the forum and also to Celiac's Disease. My 3 year old son was tested 1 week ago by a blood draw. His tTG IGG and IGA were negative but his Glidian IGG and IGA were postive. The IGG was greater than 100 and the IGA was at 25. For both of these normal is 11-17. We are being referred out to a Pediatric GI. I have been pretty much told that the tTG is probably a false negative. Has anybody else been told this? What should I ask the Pediatric GI? What is usually the next step? If you have a child with Celiac's Disease is the whole family on a gluten free diet? I am also hoping to get into a dietitian. What should I ask the dietitian?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



JennyC Enthusiast

Welcome to the board! :) False negatives are common in children, and you are lucky to have knowledgeable doctors for your son. Many doctors seem to be severely uneducated when it comes to celiac disease. Most GI doctors will want to do a biopsy of the small intestine. For this procedure it is important that he continues to eat a gluten rich diet. There are different schools of thought regarding diagnosis via biopsy. It is the "official diagnosis," but it is possible to miss the damaged areas of the intestines during the biopsy, resulting in a false negative. Many believe a biopsy can only rule in celiac, not rule it out. Then there are other doctors who will not diagnose celiac without villus atrophy (flattening of the villi visible during biopsy). Just be sure to find a great GI. You might try to contact the Gluten Intolerance Group (GIG) for doctor recommendations in your area.

Open Original Shared Link

reneelt Rookie

Thank you for the response Jenny! The information was great. I feel like I am going in blinded and don't want to be side swiped by anything. I just hope to get a good doctor. We are going to the University of Michigan so I would hope to get a great doctor but I guess only time will tell. Thanks again. Any more information is very welcome!

mommida Enthusiast

Welcome to the board!

We have a lot of Michiganders here.

Kids with Celiac Disease by Danna Korn was a very helpfull book. It has some insightful suggestions to make life easier for your little one.

Great News... Piece O' Cake is in the Ann Arbor area! I don't want to get flagged for posting a website. Kinda pricey but VERY yummy gluten free goodies.

Five years ago the dietician cancelled the appointment. She told us to buy the book I mentioned and come to this site. I'm still here because this is where I find out about new gluten free foods, recipes, and just a great support system.

reneelt Rookie
Welcome to the board!

We have a lot of Michiganders here.

Kids with Celiac Disease by Danna Korn was a very helpfull book. It has some insightful suggestions to make life easier for your little one.

Great News... Piece O' Cake is in the Ann Arbor area! I don't want to get flagged for posting a website. Kinda pricey but VERY yummy gluten free goodies.

Five years ago the dietician cancelled the appointment. She told us to buy the book I mentioned and come to this site. I'm still here because this is where I find out about new gluten free foods, recipes, and just a great support system.

Thank you for the book suggestion! I will look up the Piece O' Cake. I will definitely be looking for the book. I am excited to be here and have support and get answers to questions. I will be on the look out for more Michiganders too.

mommida Enthusiast

I know I shouldn't have gone looking through the site. :rolleyes:

So now I can't stop thinking about gluten free Twinkies. <_<

NewGFMom Contributor

The TTG is certainly the most reliable of the blood tests for celiac. When that one is positive 99% of the time celiac is what you're looking at.

If it were my child, I would do the biopsy if the blood work was inconclusive.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Tallforagirl Rookie
...If you have a child with Celiac's Disease is the whole family on a gluten free diet?

You and your son's father, plus any siblings, should be tested for celiac disease as well. First degree relatives of someone with celiac disease have around a ten per cent chance of also having celiac disease, as opposed to one per cent in the general population.

If no-one else in the family has celiac disease, it's up to you whether you all go gluten-free. I find it much easier in my household of two, if there are no "suspect" items I could inadvertently pick up and eat, and I don't have to worry about checking labels at home. The only gluten thing currently in our house is a loaf of bread in the freezer for my gluten-eating BF.

...I am also hoping to get into a dietitian. What should I ask the dietitian?

I found it very worthwhile getting a dietician's advice when I was first diagnosed, especially with regard to deciphering labels. Make sure you find someone who is well educated about celiac disease and the gluten-free diet, as not all dieticians are.

jmjsmomma Apprentice

My 5 yo old is the only one in our family of five that has tested positive for Celiac. Our home is gluten free except for bread. My 2&4 yos still eat regular bread which is kept separate and away from my 5 yo who is not a bread eater even pre-diagnosis. It just worked out to be a natural transition.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      127,965
    • Most Online (within 30 mins)
      7,748

    Deema99
    Newest Member
    Deema99
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121k
    • Total Posts
      70.5k

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Jy11
      Well the conflicting results continue as the biopsy has come back negative. 😵‍💫 Waiting to discuss further but I really don’t know what to think now? Eight biopsy’s were taken from duodenum which surely should be sufficient if it was coeliac? 
    • Pasballard
      I have Celiacs and want you to be aware of the amount of weight you can potentially put on if you rely on gluten free snacks, bread etc.,they  are high in carbs.  I put on 25 lbs in a short amount of time.  Whole Foods are the best way to go but I struggle with this.  The cost of gluten free is also a problem.  I love black licorice but most have gluten.  My favorite chili seasoning as well.  The list is endless.  I take  Advil liquid gels and had no idea until I read this.  I hope you do better than I have done.  I feel I am destined to suffer daily no matter what.  My aunt didn’t take care of herself and died from complications.  I hope you can get on a good routine.
    • growlinhard1
      Thank you, I appreciate the response. I'm going to begin the gluten free diet and wait for the biopsy results. I feel fairly certain that it's the right thing for my well being. I will keep you posted.
    • Scott Adams
      The flu vaccine is indeed not 100% effective every year, as its effectiveness varies depending on how well the vaccine strains match the circulating flu viruses. However, even in years when the match is less than perfect, the flu vaccine still provides significant benefits. Studies consistently show that vaccinated individuals who contract the flu often experience milder symptoms, a lower risk of complications, and a reduced likelihood of hospitalization or death compared to those who are unvaccinated. For high-risk groups, such as the elderly, young children, and individuals with chronic health conditions, the flu vaccine remains a critical tool for reducing severe outcomes. Regarding the mention of risks associated with vaccines, it’s important to note that the flu vaccine is generally very safe for most people. Serious side effects are extremely rare, and the benefits of vaccination far outweigh the risks for the vast majority of individuals. If someone has specific concerns about vaccine safety due to medical conditions or allergies, they should consult their healthcare provider to discuss their options. As for alternative measures like a D Lamp (ultraviolet light disinfection), while these can be useful for reducing pathogens in the environment, they are not a substitute for vaccination. The flu virus spreads primarily through respiratory droplets, and personal protection measures like hand hygiene, masking, and improving indoor ventilation can complement vaccination but cannot replace its targeted immune protection.
    • trents
      Because you have already had the "gold standard" test done, and because you have some experiential evidence that removing gluten from your diet causes you to feel better, it would make sense to begin the gluten-free diet as you wait for biopsy results.
×
×
  • Create New...