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Speaker For Local Support Group.


coeliacinfostand

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This is one way I have obtained speakers for our local support group.

1. I make up a folder of recent articles on coeliac disease, that I have downloaded from medical journals, celiac.com, www.coeliacresearch.com, coeliac magazines etc.

2. I walk into a local medical centre in June, July, or August, and say I am looking for a speaker for the February meeting of the local coeliac support group. I insist on seeing a doctor (GP). Eventually one will come out and usually say "I don't know anything about celiac disease!"

I say "Good you are just the person we are looking for. You have six months to prepare, I can give you a lot of information. Can I leave this folder for you? I will call back in a week after you have had a look at it."

A week later they have always been keen to do the talk.

Over the next few months, whenever I see a new article or medical paper on the subject I drop it in to them.

They have been wonderful speakers. One gave a case history of his first diagnosis, which happened after I had first spoken to him. Another said that she had only ever looked for coeliac disease after all other possibilities had been exhausted. Now it is the first thing she considers.

Doctors usually only take their education from medical professionals, but this is one way lay people can force them into gaining knowledge. Each doctor you can convince means a steady stream of newly diagnosed coeliacs in your area, which in turn increases the demand for gluten free foods, which hopefully increases the range of foods available.

I have done this three times over the last three years, and am currently planning my attack on another medical centre.

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Celiac.com Sponsor (A8):

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Now that's spunk!!!!! :lol:

I like it!!!! ;)

Keep up the good work! :D

Karen

Karen

positive bloodwork, positive biopsy

Celiac, collagenous colitis, hypothyroidism

endometriosis (at age 20)

spinal stenosis (early 20's)

Biopsy August 2006 confirmed complete villous atrophy despite being gluten-free for years and bloodwork within range showing compliance with diet. Doctor has confirmed diagnosis of Refractory Celiac Sprue.

Endoscopy also showed numerous stomach ulcers, have started taking Losec.

Mother to Eileen 13 yrs

Rhiannon 8 yrs

Daniel & Connor 6 yr twin boys......

"Joyfulness keeps the heart and face young. A good laugh makes us better friends with ourselves and everybody around us."

Orison Swett Marden

Laughter is the shortest distance between two people.

-- Victor Borge

"An optimist laughs to forget. A pessimist forgets to laugh."

Tom Nansbury

"Doctor to patient: I have good news and bad news. The good news is that you are not a hypochondriac."

Unknown

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