Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Unexplained Ongoing Vomitting-need Advice


cookingmama

Recommended Posts

cookingmama Newbie

Hello- I am new to this site so thank you for your patience with me-I wil try to keep it brief.

I need help for my son. He is 14, has autism and has been Gluten-free Casein-free for 9 yrs and off soy and corn as well for 6 yrs. He has ongoing battles with candida. Until now, he has not been diagnosed celiac . . .

the new issue is this: he began vomitting in Oct and it is still happening. it started as once a week, has been as frequent as 2-3 times a week and as "infrequent" as every 3 weeks.

He had an upper endoscopy when it started that showed acid inflammation in stomach and s.i. and "blunt villi"--indicative of celiac but he's been gluten fre for 9 years !

I have kept a food, behavior, etc log and cannot find a pattern.

the dr wanted to do Prevacid and rescope but I feel like that isn't addressing the root problem-

I've heard of other celiacs needing to be off other grains-not just gluten

Any suggestions or direction would be appreciated.

I just want him to feel better~ thanks!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



mellajane Explorer
Hello- I am new to this site so thank you for your patience with me-I wil try to keep it brief.

I need help for my son. He is 14, has autism and has been Gluten-free Casein-free for 9 yrs and off soy and corn as well for 6 yrs. He has ongoing battles with candida. Until now, he has not been diagnosed celiac . . .

the new issue is this: he began vomitting in Oct and it is still happening. it started as once a week, has been as frequent as 2-3 times a week and as "infrequent" as every 3 weeks.

He had an upper endoscopy when it started that showed acid inflammation in stomach and s.i. and "blunt villi"--indicative of celiac but he's been gluten fre for 9 years !

I have kept a food, behavior, etc log and cannot find a pattern.

the dr wanted to do Prevacid and rescope but I feel like that isn't addressing the root problem-

I've heard of other celiacs needing to be off other grains-not just gluten

Any suggestions or direction would be appreciated.

I just want him to feel better~ thanks!

If he has not been tested for gastropersis have him tested. They will do gastric emptying scan. He can do it without the bread they do a liquid and solid test. Knowing is all it takes. Ive been sick for years off gluten and found out later the damage of being misdiagnosed so many years caused gastropersois look it up on internet and research.

Mtndog Collaborator

What are his other symptoms? I used to vomit when I ate gluten accidentally after going gluten-free. Trying to think. There are a lot of things that can cause vomiting. If he has blunt villi I'm assuming that means damage which would make him definitely celiac.

I would also ask the doctor about refractory sprue. I don't know what else could cause villi damage besides celiac. Hopefully others can help here. Either way, I hope you find out soon and your son gets better!

River* Contributor

One of my family members use to throw up a lot before diagnosed with Addison's disease.

Alternatively, he could be being exposed to flour in the air after baking has ended somewhere out of his home. Or cross contamination some how..do you have both gluten free and gluten items in the kitchen, type of dish soap or shampoo he uses. It's pretty easy to get shampoo in your mouth when you wash your hair... I just have a feeling that this kid is still getting gluten in him from something... Are any of the foods he eats ran on the same lines as other cereal grains? What toothpast is he using, has he switched his toothbrush after he was ever glutened?

What type of floss?

Has he had all his vitamins checked?

georgie Enthusiast

I was going to say check for Addisons Disease as well. Addisons can be fatal if not treated - so do not ignore symptoms like this. As it is a rare disease many Drs do not know the signs of Addisons. This site has a lot of good info. Not everyone gets the tan as a symptom.

Open Original Shared Link

climbmtwhitney Apprentice

Hi Cooking Mama,

Couple of thoughts.....my son (5 yrs) does this. He is also Gluten-free Casein-free. It was really bad last fall/winter. It usually happened in the early am, like 3 to 5 am. No fever ever. It was so bad at one point that we began testing his blood sugar. Then after a very scary blood sugar reading (very high) he was admitted to the children's hospital for every test know to man checking for type 1 diabetes. All negative. The specialists think it was a fluke. So we left it at that. Another month of on/off vomiting and his nutritionist said it might be a parasite. But, before we actually did the testing for that, he stopped having his "episodes". I think we struggled with this for about 2 to 3 months, ending in December. He did vomit once last week--same thing. It was 4 am and no fever. He was again fine by around 8 am. Hmmmm. But, this is the only time since last December. So, we're still not totally sure what this is. Interesting, his sister has done this in the past too. She was 7 I think. She vomited 1x/week for 5 weeks, no fever, then it too disappeared.

My other thought is exactly what the other poster said--check for gastroparesis. Is your son thin? Does he get full too quickly? I, too, suffered with gastroparesis before diagnosis last August. It would range in severity from nearly constant (a 9 month period when I lost 20 pounds & a size 2 was hanging off me. I'm 5'10".) to a few days a month.) Gastroparesis is when there is either damage to the muscles that control the expansion of your stomach -or- damage to the nerves that control the muscle expansion in your stomach. So, your stomach doesn't expand when you eat. It stays about the size of your fist, so it's very easy to get nauseous and vomit when eating. It's not all that common, so it's not the first thing doctors look for. The gastric emptying test is simple, it just takes a few hours.

I hope you figure it out soon. It's so hard to see your kids suffer. Best of luck!

Jillian

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Wheatwacked replied to BIg Nodge's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      Opinions on my test results/symptoms

    2. - Wheatwacked replied to Nicbent35's topic in Introduce Yourself / Share Stuff
      4

      3 year old gluten intolerance?

    3. - Wheatwacked replied to Nicbent35's topic in Introduce Yourself / Share Stuff
      4

      3 year old gluten intolerance?

    4. - knitty kitty replied to plumbago's topic in Related Issues & Disorders
      3

      Anyone else with very high HDL?

    5. - Nicbent35 replied to Nicbent35's topic in Introduce Yourself / Share Stuff
      4

      3 year old gluten intolerance?


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      127,890
    • Most Online (within 30 mins)
      7,748

    Barb Gray
    Newest Member
    Barb Gray
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121k
    • Total Posts
      70.5k

  • Celiac.com Sponsor (A22):




  • Who's Online (See full list)


  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Wheatwacked
      Many of the symptoms, there are over 200, associated with celiac disease and NCGS are vitamin and mineral deficiencies caused by small intestine damage in the case of celiac disease and food avoidance and the poor nutrittion of the Modern American Diet (MAD) I used to turn the heat on even at 78 degrees.  The 600 mcg of Liquid Iodine helped.  Also good for hair, nails, skin and brain fog.  Another good thing for brain fog is phosphatyl choline.  It is essentil for acetylcholine- a brain chemical. I have familial hyperlipdemia and instead of a statin I got a prescription for Nicotinic Acid, 2000 mg a day.  I was already taking 500 mg a day and was really surprised when my HDL when up to  44 and I began sleeping better and my legs and back are getting more flexible.  In addition after the first few doses of itchiness I get a warm fuzzy feeling Raising your vitamin D is crucial.  Low vitamin D allows the immune system to run amuck. intermittent bouts of fatigue, chills/cold intolerance, and shortness of breath/air hunger (sometimes feels like a hollowness in my chest, hard to describe).  Look at Thiamin deficiency. consistently ran hot, was always cranking the a/c, to someone who wears a down vest.  Any combination of deficiencies in B1, B2, B3, B5, choline and Iodine can cause this.  Likely all of them. After a lifetime of mouthbreathing GFD cleared my sinuses.  Post nasal drip is my first symptom of cross contamination nowaday.  
    • Wheatwacked
      If you mean continueing on Gluten Free my answer is yes.  She showed significant improvement in her behavior and that translates to a happy family.  Do get her tested as sooon as you can.  You might want to investigate genetic testing for Celiac Disease.  Children recover more quickly than adults.  It took my son about 6 months on Nutramigen before going to regular food, gluten free.  Blood tests are not always accurate in very young children. You may be advised to see a gastroenterologist instead of relying on blood tests results. Logic: She is better off gluten than before.  Wheat flour has no nutritional value and has an omega 6: omega 3 ratio of 22:1.  Our bodies do better at 3:1.  Omega 6 causes inflammation. When my son was diagnosed, back in 1976, his doctor recommended my wife and I also go gluten free.  We declined and lived to regret it.  I started GFD at 63 and have spent the last 10 years undoing the damage, some of my symptons went all the way back to my childhood and things I lived with all my life got better.
    • Wheatwacked
      Hi @Nicbent35,             When my son was diagnosed with Celiac Disease when he was weaned, so I understand your frustration.       With improvement so dramatic, it cannot be a coincedence. Get her to the doctor and tell the story and insist on testing.  In the meantime, though, continue on GFD.  Her health is more important than convincing a doctor.  Bring videos of her behaviors if you can.  Even if the blood tests and biopsy prove negative, that is part of the diagnosis process for NCGS and later when she is recovered you can always do a Gluten Challenge.      This is an important time in her developement.  Celiac Disease causes malabsorption syndrome, leading to malnutrition, regardles of what she eats.  Though NCGS may not cause malabsorption, it will affect food choices which can lead to malnutrition.  There may be benifits that an official diagnosis may have, but they don't trump a healthy child.      Get her healthy, then worry about validation later.  Celiac Disease is difficult to diagnosed, especially in children, because doctors look for antibodies in the blood and young children have immature immune systems.  Also you don't mention any gastrologic symtoms and celiac disease is traditionally considered gastrolic only.  Not true.  There are over 200 symptom that celiac disease and the accompaning malnutrion mimics or causes that often causes misdiagnosis and delay in recovery. While at the doctors, ask them about vitamin D deficiency and Iodine deficiency in particular. Milk being the primary source of iodine in the diet, but concerns exist regarding the lower iodine content in organic milk and reduced milk consumption in certain demographics.  Vitamin D deficiency is 40% of the industrialized population and a recent study in the Great Britain showed a wopping 60%, beaten only by some areas of Canada at 70%. And B1, B2, B3, B5 and B6.  Deficiencies in these are common in untreated Celiac Disease and they affect energy production. Are You Confused About Your Celiac Disease Lab Results?
    • knitty kitty
      @plumbago, Are you taking any folate with your B12?   Folate helps regulate HDL levels.  You may try taking a methylfolate supplement with your B12.   If there's a folate deficiency because you aren't absorbing sufficient folate, or have the MThF mutation causing a functional folate deficiency (methylfolate trap), you can have a functional B12 deficiency despite supplementing, resulting in HDL levels not getting regulated, but running high or low.   Pushing the envelope in explanations, too. P. S. Are you taking a B Complex?  Folate and B12 Cobalamine need enzymes made from B6 Pyridoxine's interaction with Thiamine, and B2 Riboflavin's interaction with Thiamine.  Is your Vitamin D low?
    • Nicbent35
      Thank you for all that helpful info, does that mean it’s not a good idea to do what I’m doing? Or since it’s only been a week should I see if I could get her tested now? Would it show up still since it hasn’t been long if they tested her?
×
×
  • Create New...