Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

How Long Could It Take To See A Reaction?


livingchronically

Recommended Posts

livingchronically Newbie

I'm completely new here. My daughter was diagnosed with Celiac last year from a biopsy. There are questions from the doctor as to whether or not this diagnosis was correct. So, my daughter was told to begin eating gluten again to see what happens. If there is no reaction, they will retest again in one month.

Here's my question: I know that you can feel the effects of gluten almost immediately, but how long CAN it take? Google is no help here. My daughter had half a bagel yesterday and the other half today along with two small pieces of pizza for lunch. We've seen no side effects up to this point. I'm wondering if there can be a delay in seeing the symptoms?

If you could fill me in, I would greatly appreciate it. Thanks!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



ravenwoodglass Mentor

Gluten reactions can be delayed. For some it takes 3 to 7 days for a reaction and in addition there are celiacs that are asymptomatic. Why is this doctor questioning the biopsy? Is he a new doctor? Is she still having issues? How has she done on the diet? Did issues she had resolve at all? If she has been off gluten she needs to be back on it for about 3 months for any chance of testing to come back positive. False negatives abound but false positives are really rare. Has this doctor said what benefit there is to making her sick again? I would understand the doctor wanting to test if she hadn't had the biopsy but why is he questioning what is considered the 'gold standard'?

rinne Apprentice

:o

I agree with the above poster, why is the doctor questioning the results of the biopsy?

I have had problems with wheat for over thirty years, in my younger years if I didn't eat wheat for a while I could eat it without any apparent problems for a brief time and then the problems would return. I wonder if this is the case for your daughter?

The reality is the biopsy looks for damage, from the past biopsy you were told she had damage, damage heals, now they are asking for her to damage herself again so they can look again!

livingchronically Newbie

Thanks for your reply and the great questions. This is our second doctor because we moved to another state. I think initially her symptoms were not as typical. She received the news (she was 15 at the time) about an upcoming move (stress trigger) and that week developed a fever, stomach cramps and vomiting 2-3 times daily. The other symptoms went away but the stomach grumbling and vomiting continued non-stop, usually happening at night. We went through all of the non-invasive testing and the ped. GI never considered celiac. After a couple of months we did the endoscopy and the pathology report came back consistant for celiac. They immediately put her on the gluten free diet and it took 3-5 months for the daily vomiting to end.

The first thing everyone considered was that it was stress and her body was reacting. I also know that stress can trigger celiac disease.

Here's another clincher, she tried Chick-fil-A chicken nuggets this past October and had absolutely no reaction. She remained gluten-free except for having the chicken nuggets maybe twice a month or so with no side effects. We just couldn't understand why she could eat something that clearly contains gluten without a reaction. The only time she has possibly been "glutened" (other than the chicken nuggets) was about a month ago and it would have had to be cross contamination. I bought a store-brand plain basmati rice and she got stomach cramps both times I prepared that brand of rice. That was her only symptom. She's not vomited since last year when we originally went gluten-free.

The doctor advised that if she does get sick, she should just quit eating the gluten and give him a call. He didn't encourage her to continue eating if she got sick. He did say that he felt that from the biopsy, it was celiac. But with a life-long diagnosis, it wouldn't hurt to be 100% sure since there were questions.

I appreciate any and all advise/opinions I can get. Thanks!

Gluten reactions can be delayed. For some it takes 3 to 7 days for a reaction and in addition there are celiacs that are asymptomatic. Why is this doctor questioning the biopsy? Is he a new doctor? Is she still having issues? How has she done on the diet? Did issues she had resolve at all? If she has been off gluten she needs to be back on it for about 3 months for any chance of testing to come back positive. False negatives abound but false positives are really rare. Has this doctor said what benefit there is to making her sick again? I would understand the doctor wanting to test if she hadn't had the biopsy but why is he questioning what is considered the 'gold standard'?
livingchronically Newbie

I forgot to add that the likelihood of this being in her system is pretty good because she was diagnosed with CFIDS/ME in 2006 and Neurally Mediated Hypotension this year - all in the autoimmune category.

Thanks for your reply and the great questions. This is our second doctor because we moved to another state. I think initially her symptoms were not as typical. She received the news (she was 15 at the time) about an upcoming move (stress trigger) and that week developed a fever, stomach cramps and vomiting 2-3 times daily. The other symptoms went away but the stomach grumbling and vomiting continued non-stop, usually happening at night. We went through all of the non-invasive testing and the ped. GI never considered celiac. After a couple of months we did the endoscopy and the pathology report came back consistant for celiac. They immediately put her on the gluten free diet and it took 3-5 months for the daily vomiting to end.

The first thing everyone considered was that it was stress and her body was reacting. I also know that stress can trigger celiac disease.

Here's another clincher, she tried Chick-fil-A chicken nuggets this past October and had absolutely no reaction. She remained gluten-free except for having the chicken nuggets maybe twice a month or so with no side effects. We just couldn't understand why she could eat something that clearly contains gluten without a reaction. The only time she has possibly been "glutened" (other than the chicken nuggets) was about a month ago and it would have had to be cross contamination. I bought a store-brand plain basmati rice and she got stomach cramps both times I prepared that brand of rice. That was her only symptom. She's not vomited since last year when we originally went gluten-free.

The doctor advised that if she does get sick, she should just quit eating the gluten and give him a call. He didn't encourage her to continue eating if she got sick. He did say that he felt that from the biopsy, it was celiac. But with a life-long diagnosis, it wouldn't hurt to be 100% sure since there were questions.

I appreciate any and all advise/opinions I can get. Thanks!

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      127,952
    • Most Online (within 30 mins)
      7,748

    Mcavoyaz
    Newest Member
    Mcavoyaz
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121k
    • Total Posts
      70.5k

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • growlinhard1
      I had the endoscopy with biopsy done. I have gastritis and duodenitis at this point. The biopsy should provide the cause of the inflammation findings. How common are these findings when Celiac is the ultimate culprit?
    • Wheatwacked
      Welcome to the forum @cookiesyum, I lasted on staton for about a month before getting so weak I had to stop.   Switched to Nicotinic Acid and I posted the results in a previous post.  Instead of getting sicker and weaker on the statin I feel I am improving day by day.  Nicotinic Acid was first used for cholesterol in 1955.  
    • Wheatwacked
      According to research, consuming gluten can potentially trigger sudden mood swings and increased irritability in children, particularly those with gluten sensitivity or celiac disease, making them more likely to have tantrums or display behavioral issues; this is because gluten can trigger an immune response in the body, potentially impacting brain function and neurotransmitter levels.  When my son was diagnosed in 1976 when he was weaned his doctor told us that at 5 years old his kindergarden teacher would beg us to put him on Ritalin.  And so it did happen.  My son was on Ritalin though high school.  In the morning he was a devil who could not put on his socks. Half an hour after the morning dose he was an angel wanting to help mom get ready.  Talk about Jekyll and Hyde! Dr Danel Amen could be a good resource for you.   
    • MommaBear82
      Yes, it certainly can! My daughter has a reaction from just playing with Playdough. She doesn't get GI symptoms at first, just psychological mostly. It can get really bad. It's like night/day behavior. My daughter is eight, but started showing signs around 6.
    • cookiesyum
      The easiest way to remember the difference between the cholesterol types is HDL;   H=healthy equals healthy (omega 3, 7, limit 6 & 9 MCFA'S =Medium Chain Fatty Acids. 3= coconut oil, 7= sunflower oil, avocado. The higher your HDL the healthier you are & less likely to experience strokes, clogged arteries Etc. You can even use cold expeller pressed coconut oil on your skin and that is the best kind of coconut oil to eat as well. You want your HDL much higher than your LDL, it will help you stay healthy.   LDL;    L=Lousy. Meat fats, processed fats.  The higher your LDL is the more likely you will have strokes, clogged artery is, heart disease, fatty liver.   Then there's lipids... they are the culprit to be blamed for many heart attacks and things like that they are very small round particles that transport fats. You can have a low overall cholesterol reading and most of it be healthy cholesterol and have a ton of lipids and there's nothing you can do to change the lipid count. High number of lipids is very dangerous.   I'm going on statins is extremely dangerous if you ask me it's just completely my opinion, because I have seen so many of my elderly friends bleed to death internally because of the statins. I mean you wouldn't take all the oil and grease out of your car or a motorcycle and then try to drive it that way would you? You see that's what statins do they remove all of your bodies fats and it doesn't matter whether it's healthy fats or a lousy fats. It removes all of them and then your body can't function properly. You have to have fats to keep your skin supple and to stay warm. Your body also needs fats to digest & process certain nutrients, amino acids & vitamins.   Your brain is composed of fat so is that something you really want to remove with a pill every morning and night?   The thing about statins is that they also make the blood vessels and capillaries permeable. So this is how my friends who were on cardiac medication for a long time and statins ended up bleeding internally to death.   If you want to make sure that your heart is healthy, take odorless garlic at night and magnesium, vitamin K & calcium.     
×
×
  • Create New...