0
gatewaytobeing

Anyone Relate To "hoping You Have It"?

Rate this topic

Recommended Posts

Hi,

I just had a blood draw yesterday for the celiac panel suggested by a member here in my other post (list of 4 things). I find myself almost hoping I have celiac. When you have been through a lifetime of unexplained misery, it would be nice to have an explanation for "why" and also something to actually DO that would help for a change. I even hope my son has it too, if I have it. Maybe he can experience a dramatic improvement in his issues as well.

Anyone relate? I imagine I'm not alone in this.

I need to browse the boards more, but my next question is - once diagnosed and gluten free, did you notice a huge improvement right away? Big changes within the first few weeks and months? Anything that couldn't be reversed with the diet?

Was it night and day for you? Maybe I should post this under the post-diagnosis category.

Kath~*

Share this post


Link to post
Share on other sites
Ads by Google:
Ads by Google:


I did not know what Celiac Disease was until I was diagnosed. But, I thought I was dying of Cancer or something equally as grave.

Yes, I am grateful for Celiac and the knowledge that I have gained along with my good health.

Share this post


Link to post
Share on other sites

I was so glad to have an explanation. Sometimes you just want to know.

Share this post


Link to post
Share on other sites
Hi,

I just had a blood draw yesterday for the celiac panel suggested by a member here in my other post (list of 4 things). I find myself almost hoping I have celiac. When you have been through a lifetime of unexplained misery, it would be nice to have an explanation for "why" and also something to actually DO that would help for a change. I even hope my son has it too, if I have it. Maybe he can experience a dramatic improvement in his issues as well.

Anyone relate? I imagine I'm not alone in this.

I need to browse the boards more, but my next question is - once diagnosed and gluten free, did you notice a huge improvement right away? Big changes within the first few weeks and months? Anything that couldn't be reversed with the diet?

Was it night and day for you? Maybe I should post this under the post-diagnosis category.

Kath~*

Kath,

Yes, I can totally relate. After nearly 25 years of symptoms, to finally find out what to do to relieve them was HUGE! (I was just a little bitter about the fact that over the previous 15 years I had asked several doctors - including a GI specialist - about celiac disease and been rebuffed...but what's past is past.) I'm now working on educating people about the disease, so others don't have to go through what I went through.

Kate

Share this post


Link to post
Share on other sites

I had my blood test results returned two weeks ago and they were inconclusive. The doctor could not confirm or deny that I had celiac--even though my differential pointed to it, and since going gluten free I feel like a new person.

Regardless of the results, I would try the gluten free diet to determine any effect it may have on your symptoms. I have been gluten free for two months now and happier, healthier than ever.

Even though my blood tests were not conclusive, I am convinced I have a strong allergy or that the testing methods used are not developed enough to detect it in my system.

Share this post


Link to post
Share on other sites
Ads by Google:


Kath,

Yes, I can totally relate. After nearly 25 years of symptoms, to finally find out what to do to relieve them was HUGE! (I was just a little bitter about the fact that over the previous 15 years I had asked several doctors - including a GI specialist - about celiac disease and been rebuffed...but what's past is past.) I'm now working on educating people about the disease, so others don't have to go through what I went through.

Kate

One week on gluten free diet=major life changes. One week.

Share this post


Link to post
Share on other sites

After being called a hypocondriac my whole life by doctors and family, it is nice to know I am not one.

Share this post


Link to post
Share on other sites
I did not know what Celiac Disease was until I was diagnosed. But, I thought I was dying of Cancer or something equally as grave.

Yes, I am grateful for Celiac and the knowledge that I have gained along with my good health.

Yes, I know the feeling. And if I do not have celiac, I will still be searching for the cause. What were the biggest improvements for you (symptoms) within 1 month of going gluten-free? Anything you haven't yet been able to reverse?

Share this post


Link to post
Share on other sites
Kath,

Yes, I can totally relate. After nearly 25 years of symptoms, to finally find out what to do to relieve them was HUGE! (I was just a little bitter about the fact that over the previous 15 years I had asked several doctors - including a GI specialist - about celiac disease and been rebuffed...but what's past is past.) I'm now working on educating people about the disease, so others don't have to go through what I went through.

Kate

Hi Kate,

I hope I get to have that experience! It's so frustrating not having an answer and feeling like you can't take much more meanwhile going from dr. to dr. and coming up with nothing definitive.

What were your first and most noticeable improvements once going on the diet?

Share this post


Link to post
Share on other sites
One week on gluten free diet=major life changes. One week.

Care to expand on that?

Share this post


Link to post
Share on other sites


Ads by Google:


I had my blood test results returned two weeks ago and they were inconclusive. The doctor could not confirm or deny that I had celiac--even though my differential pointed to it, and since going gluten free I feel like a new person.

Regardless of the results, I would try the gluten free diet to determine any effect it may have on your symptoms. I have been gluten free for two months now and happier, healthier than ever.

Even though my blood tests were not conclusive, I am convinced I have a strong allergy or that the testing methods used are not developed enough to detect it in my system.

Hi, if this happens for me I will also try the gluten free diet. But until then, they say keep eating the gluten as stopping it will affect test results. Did you have the intestinal biopsy or the genetic testing? Or just the standard celiac blood panel?

Share this post


Link to post
Share on other sites
Hi, if this happens for me I will also try the gluten free diet. But until then, they say keep eating the gluten as stopping it will affect test results. Did you have the intestinal biopsy or the genetic testing? Or just the standard celiac blood panel?

if you are going to have the biopsy then keep eating gluten as stopping could affect the results.

genetic or stool testing don't require the consumption of gluten, however these tests do not diagnose celiac.

genetic testing tells you whether you have the genes associated with celiac or gluten intolerance but do not tell you if you have it (search the board for "genetic testing", there's tons of results and discussion)

stool testing may be able to tell you whether you are having a reaction to the consumption of gluten (search the board for "enterolab" for discussion, just be aware the discussions are quite....lively)

as for inconclusive results, if you feel better when you don't eat gluten then do the gluten-free diet, no doctor's permission is required ;)

Share this post


Link to post
Share on other sites

I am sure you are aware by now that celiac is hereditary. It can be a very hard thing to deal with not to mention a life style change. I went my whole life suffering with ibs. Till I was diagnosed with celiac of this year at 28. After being sick for 2 weeks and starting to figure it might not be the flu, but a food allergy(same kind of symptoms or similar when I found out I was lactose intolerant) I cut all wheat out of my diet and within one to two days...I was seeing a huge change in my body! I am blessed to have such a supportive family, but it may be hard to make such a life style change but after doing so it will be easier to manage.

Share this post


Link to post
Share on other sites

My most noticeable symptom that completely disappeared was my constant gas. It was becoming a HUGE problem and was keeping me from many social situations. Also, my stomach would immediately start making rumbling/gurgling noises after eating, as if it just wasn't being digested properly. The gas stopped within 2 days...it was that quick. It came back here and there because it took me awhile to become completely gluten free, but the first few weeks, I ate very plainly and it definitely made such a big difference. Also, the big D has pretty much gone away. There were days where I went to the bathroom 10 times. Now, I usually go 2 or 3 times, which I guess might still be a lot for some people, but in comparison to before it is okay (and now it is not D). I've heard that it takes longer for symptoms to subside in some people; I think it depends on the amount of damage to the intestines. I caught mine relatively early, only having mild damage/malabsorption/inflammation of my intenstines so my recovery was quick. Good luck to you!

Oh and also, yes!!! I agree, I wanted to be diagnosed with Celiac! I was disappointed when I wasn't at first. Too many of my symptoms matched up, and I had finally thought I had my answer and I'd start to feel human again. My diagnosis was delayed a bit but came after I have been gluten free for awhile (I got a second opinion on my endoscopy biopsy- so even if your biopsy comes back "negative", there is a possibility whoever looked at it read it wrong). My advice -- when your testing is done, go gluten free. You have nothing to lose!

Share this post


Link to post
Share on other sites

I started to feel better within days. I could eat without running for a bathroom. I wasn't having stomach pains. It was like WOW.... :D I stopped after my doc did a blood test which came back negative. I had done alot of reading and when we talked I told him I thought it was Celiac. He told me to try gluten free and I couldn't believe how much better I felt. I then had a horrible reaction. I think I have dermatitis hereptaformis. I have horrible dihydrotic exzema on my hands. My arms, legs, face, and chest break out too. My doc then referred me to a GI. He scheduled a endoscopy and colonoscopy 4 weeks later. The GI told me to go back to eating gluten until the test. I made it from that Tues. to Friday. I was so broke out and all the stomach issues were back full force. Both docs said stop the gluten and they would find what they find. I know that I am so much better off gluten and that is how I intend to stay.

Tonight as I prepare for my scopes tomorrow I am laughing... Everyone complains about the prep...This is how I have spent my life!!LOL LOL. :P I am so happy that no matter what they find or do not find I am staying gluten free. It is funny tonigt to think about how this used to be my life...

I am anxious to get the results to make sure there is no other damage to my intestines. I have found that in the last few weeks an "official diagnosis" is not as important as it once was to me. I just wish my skin issues would clear. From what I have read it can take 6mos to a year or more. At least I am on the right path... gotta go..

Share this post


Link to post
Share on other sites
Hi Kate,

I hope I get to have that experience! It's so frustrating not having an answer and feeling like you can't take much more meanwhile going from dr. to dr. and coming up with nothing definitive.

What were your first and most noticeable improvements once going on the diet?

The constant, painful diarrhea which had been the norm since middle school went away within a few weeks. I had my first consecutive solid bowel movements in over 20 years. (Not exactly an improvement, but I had to urinate more often because all that liquid wasn't exiting through my bowel anymore.) My chronic fatigue went away, as did the "arthritis" in my shoulders and hips. People started telling me how much better I looked, because I had previously always looked kind of grey and sickly. No more sores in my mouth. My nails now grow 2-3 times faster than they did before.

Kate

Share this post


Link to post
Share on other sites
My most noticeable symptom that completely disappeared was my constant gas. It was becoming a HUGE problem and was keeping me from many social situations.

OMG, the gas, I forgot about the gas! That was also a huge problem for me, but it started clearing up as soon as I went gluten-free.

Kate

Share this post


Link to post
Share on other sites

i have been gluten-free for about four months now and feel a million times better. for the first time since i was a kid i have energy to do things i want to do. within the next few weeks i'm going to eat something with gluten (trying to decide what though.... i want to make it count!) to prove whether i really am gluten intolerant. it would explain SO MANY things..... and it makes them hopeful, because if they are due to gluten intolerance then i have finally found the solution. after being ragged on by my parents my whole life for being lazy and forgetting things and being grounded for sleeping through my alarm (yes i've done that on account of staying up til 4 am, but most recently it was that uncontrollable sleep and fatigue) to have an ANSWER will make me feel so much better. i'm not incompetent, just sick. but now i am making myself better. yep. i'm hoping i have it. :)

Share this post


Link to post
Share on other sites

As I read everyone's posts, this makes me feel a little better. I have been living with discomfort for several years now and finally went to the doctor to demand they do something (in the past, they passed it off as stress, not eating correctly, etc.) I had the celiac blood test which came back negative. I had the endoscopy biopsy which ALSO came back negative for celiac, but the doctor told me I has intra epithelial lmphyocytosis, which is found as a precurser to celiac in some cases.

So, I'm trying the gluten free diet. I don't feel better yet, but am hoping to God that something changes. It got to the point where I was praying it would come back positive for celiac so I had an answer.

Has anyone else had a similar experience?

Share this post


Link to post
Share on other sites
As I read everyone's posts, this makes me feel a little better. I have been living with discomfort for several years now and finally went to the doctor to demand they do something (in the past, they passed it off as stress, not eating correctly, etc.) I had the celiac blood test which came back negative. I had the endoscopy biopsy which ALSO came back negative for celiac, but the doctor told me I has intra epithelial lmphyocytosis, which is found as a precurser to celiac in some cases.

So, I'm trying the gluten free diet. I don't feel better yet, but am hoping to God that something changes. It got to the point where I was praying it would come back positive for celiac so I had an answer.

Has anyone else had a similar experience?

i think there's a chance you could have it anyway, even though the tests came back negative. perhaps you don't have celiac's but still have a gluten intolerance. at any rate, keep at the gluten-free diet, there's a good chance it could end up helping you a lot! sometimes it takes a bit before you notice a difference. how long have you been gluten-free?

Share this post


Link to post
Share on other sites


Ads by Google:


That's the tough thing-every time I think I'm gluten-free, I find something else that I'm eating that actually isn't gluten-free. I believe only two days or so, but am starting to worry that I don't have it and I'm wasting my time.

Share this post


Link to post
Share on other sites

Yes. I was so happy to find out I had Celiac that I cried. I had been searching for an answer for years and every time I thought I knew what it was, it wouldn't be it. I was so happy to have an answer and a way to make myself feel better.

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now
0

  • Who's Online   2 Members, 0 Anonymous, 318 Guests (See full list)

  • Top Posters +

  • Recent Articles

    Christina Kantzavelos
    Celiac.com 07/20/2018 - During my Vipassana retreat, I wasn’t left with much to eat during breakfast, at least in terms of gluten free options. Even with gluten free bread, the toasters weren’t separated to prevent cross contamination. All of my other options were full of sugar (cereals, fruits), which I try to avoid, especially for breakfast. I had to come up with something that did not have sugar, was tasty, salty, and gave me some form of protein. After about four days of mixing and matching, I was finally able to come up with the strangest concoction, that may not look the prettiest, but sure tastes delicious. Actually, if you squint your eyes just enough, it tastes like buttery popcorn. I now can’t stop eating it as a snack at home, and would like to share it with others who are looking for a yummy nutritious snack. 
    Ingredients:
    4 Rice cakes ⅓ cup of Olive oil  Mineral salt ½ cup Nutritional Yeast ⅓ cup of Sunflower Seeds  Intriguing list, right?...
    Directions (1.5 Servings):
    Crunch up the rice into small bite size pieces.  Throw a liberal amount of nutritional yeast onto the pieces, until you see more yellow than white.  Add salt to taste. For my POTS brothers and sisters, throw it on (we need an excess amount of salt to maintain a healthy BP).  Add olive oil  Liberally sprinkle sunflower seeds. This is what adds the protein and crunch, so the more, the tastier.  Buen Provecho, y Buen Camino! 

    Jefferson Adams
    Celiac.com 07/19/2018 - Maintaining a gluten-free diet can be an on-going challenge, especially when you factor in all the hidden or obscure gluten that can trip you up. In many cases, foods that are naturally gluten-free end up contain added gluten. Sometimes this can slip by us, and that when the suffering begins. To avoid suffering needlessly, be sure to keep a sharp eye on labels, and beware of added or hidden gluten, even in food labeled gluten-free.  Use Celiac.com's SAFE Gluten-Free Food List and UNSAFE Gluten-free Food List as a guide.
    Also, beware of these common mistakes that can ruin your gluten-free diet. Watch out for:
    Watch out for naturally gluten-free foods like rice and soy, that use gluten-based ingredients in processing. For example, many rice and soy beverages are made using barley enzymes, which can cause immune reactions in people with celiac disease. Be careful of bad advice from food store employees, who may be misinformed themselves. For example, many folks mistakenly believe that wheat-based grains like spelt or kamut are safe for celiacs. Be careful when taking advice. Beware of cross-contamination between food store bins selling raw flours and grains, often via the food scoops. Be careful to avoid wheat-bread crumbs in butter, jams, toaster, counter surface, etc. Watch out for hidden gluten in prescription drugs. Ask your pharmacist for help about anything you’re not sure about, or suspect might contain unwanted gluten. Watch out for hidden gluten in lotions, conditioners, shampoos, deodorants, creams and cosmetics, (primarily for those with dermatitis herpetaformis). Be mindful of stamps, envelopes or other gummed labels, as these can often contain wheat paste. Use a sponge to moisten such surfaces. Be careful about hidden gluten in toothpaste and mouthwash. Be careful about common cereal ingredients, such as malt flavoring, or other non-gluten-free ingredient. Be extra careful when considering packaged mixes and sauces, including soy sauce, fish sauce, catsup, mustard, mayonnaise, etc., as many of these can contain wheat or wheat by-product in their manufacture. Be especially careful about gravy mixes, packets & canned soups. Even some brands of rice paper can contain gluten, so be careful. Lastly, watch out for foods like ice cream and yogurt, which are often gluten-free, but can also often contain added ingredients that can make them unsuitable for anyone on a gluten-free diet. Eating Out? If you eat out, consider that many restaurants use a shared grill or shared cooking oil for regular and gluten-free foods, so be careful. Also, watch for flour in otherwise gluten-free spices, as per above. Ask questions, and stay vigilant.

    Jefferson Adams
    Celiac.com 07/18/2018 - Despite many studies on immune development in children, there still isn’t much good data on how a mother’s diet during pregnancy and infancy influences a child’s immune development.  A team of researchers recently set out to assess whether changes in maternal or infant diet might influence the risk of allergies or autoimmune disease.
    The team included Vanessa Garcia-Larsen, Despo Ierodiakonou, Katharine Jarrold, Sergio Cunha,  Jennifer Chivinge, Zoe Robinson, Natalie Geoghegan, Alisha Ruparelia, Pooja Devani, Marialena Trivella, Jo Leonardi-Bee, and Robert J. Boyle.
    They are variously associated with the Department of Undiagnosed Celiac Disease More Common in Women and Girls International Health, Johns Hopkins School of Public Health, Baltimore, Maryland, United States of America; the Respiratory Epidemiology, Occupational Medicine and Public Health, National Heart and Lung Institute, Imperial College London, London, United Kingdom; the Section of Paediatrics, Department of Medicine, Imperial College London, London, United Kingdom; the Centre for Statistics in Medicine, University of Oxford, Oxford, United Kingdom; the Division of Epidemiology and Public Health, University of Nottingham, Nottingham, United Kingdom; the Centre of Evidence Based Dermatology, University of Nottingham, Nottingham, United Kingdom; and Stanford University in the USA.
    Team members searched MEDLINE, Excerpta Medica dataBASE (EMBASE), Web of Science, Central Register of Controlled Trials (CENTRAL), and Literatura Latino Americana em Ciências da Saúde (LILACS) for observational studies conducted between January 1946 and July 2013, and interventional studies conducted through December 2017, that evaluated the relationship between diet during pregnancy, lactation, or the first year of life, and future risk of allergic or autoimmune disease. 
    They then selected studies, extracted data, and assessed bias risk. They evaluated data using the Grading of Recommendations Assessment, Development and Evaluation (GRADE). They found 260 original studies, covering 964,143 participants, of milk feeding, including 1 intervention trial of breastfeeding promotion, and 173 original studies, covering 542,672 participants, of other maternal or infant dietary exposures, including 80 trials of 26 maternal, 32 infant, or 22 combined interventions. 
    They found a high bias risk in nearly half of the more than 250 milk feeding studies and in about one-quarter of studies of other dietary exposures. Evidence from 19 intervention trials suggests that oral supplementation with probiotics during late pregnancy and lactation may reduce risk of eczema. 44 cases per 1,000; 95% CI 20–64), and 6 trials, suggest that fish oil supplementation during pregnancy and lactation may reduce risk of allergic sensitization to egg. GRADE certainty of these findings was moderate. 
    The team found less evidence, and low GRADE certainty, for claims that breastfeeding reduces eczema risk during infancy, that longer exclusive breastfeeding is associated with reduced type 1 diabetes mellitus, and that probiotics reduce risk of infants developing allergies to cow’s milk. 
    They found no evidence that dietary exposure to other factors, including prebiotic supplements, maternal allergenic food avoidance, and vitamin, mineral, fruit, and vegetable intake, influence risk of allergic or autoimmune disease. 
    Overall, the team’s findings support a connection between the mother’s diet and risk of immune-mediated diseases in the child. Maternal probiotic and fish oil supplementation may reduce risk of eczema and allergic sensitization to food, respectively.
    Stay tuned for more on diet during pregnancy and its role in celiac disease.
    Source:
    PLoS Med. 2018 Feb; 15(2): e1002507. doi:  10.1371/journal.pmed.1002507

    Jefferson Adams
    Celiac.com 07/17/2018 - What can fat soluble vitamin levels in newly diagnosed children tell us about celiac disease? A team of researchers recently assessed fat soluble vitamin levels in children diagnosed with newly celiac disease to determine whether vitamin levels needed to be assessed routinely in these patients during diagnosis.
    The researchers evaluated the symptoms of celiac patients in a newly diagnosed pediatric group and evaluated their fat soluble vitamin levels and intestinal biopsies, and then compared their vitamin levels with those of a healthy control group.
    The research team included Yavuz Tokgöz, Semiha Terlemez and Aslıhan Karul. They are variously affiliated with the Department of Pediatric Gastroenterology, Hepatology and Nutrition, the Department of Pediatrics, and the Department of Biochemistry at Adnan Menderes University Medical Faculty in Aydın, Turkey.
    The team evaluated 27 female, 25 male celiac patients, and an evenly divided group of 50 healthy control subjects. Patients averaged 9 years, and weighed 16.2 kg. The most common symptom in celiac patients was growth retardation, which was seen in 61.5%, with  abdominal pain next at 51.9%, and diarrhea, seen in 11.5%. Histological examination showed nearly half of the patients at grade Marsh 3B. 
    Vitamin A and vitamin D levels for celiac patients were significantly lower than the control group. Vitamin A and vitamin D deficiencies were significantly more common compared to healthy subjects. Nearly all of the celiac patients showed vitamin D insufficiency, while nearly 62% showed vitamin D deficiency. Nearly 33% of celiac patients showed vitamin A deficiency. 
    The team saw no deficiencies in vitamin E or vitamin K1 among celiac patients. In the healthy control group, vitamin D deficiency was seen in 2 (4%) patients, vitamin D insufficiency was determined in 9 (18%) patients. The team found normal levels of all other vitamins in the healthy group.
    Children with newly diagnosed celiac disease showed significantly reduced levels of vitamin D and A. The team recommends screening of vitamin A and D levels during diagnosis of these patients.
    Source:
    BMC Pediatrics

    Jefferson Adams
    Celiac.com 07/16/2018 - Did weak public oversight leave Arizonans ripe for Theranos’ faulty blood tests scam? Scandal-plagued blood-testing company Theranos deceived Arizona officials and patients by selling unproven, unreliable products that produced faulty medical results, according to a new book by Wall Street Journal reporter, whose in-depth, comprehensive investigation of the company uncovered deceit, abuse, and potential fraud.
    Moreover, Arizona government officials facilitated the deception by providing weak regulatory oversight that essentially left patients as guinea pigs, said the book’s author, investigative reporter John Carreyrou. 
    In the newly released "Bad Blood: Secrets and Lies in a Silicon Valley Startup," Carreyrou documents how Theranos and its upstart founder, Elizabeth Holmes, used overblown marketing claims and questionable sales tactics to push faulty products that resulted in consistently faulty blood tests results. Flawed results included tests for celiac disease and numerous other serious, and potentially life-threatening, conditions.
    According to Carreyrou, Theranos’ lies and deceit made Arizonans into guinea pigs in what amounted to a "big, unauthorized medical experiment.” Even though founder Elizabeth Holmes and Theranos duped numerous people, including seemingly savvy investors, Carreyrou points out that there were public facts available to elected officials back then, like a complete lack of clinical data on the company's testing and no approvals from the Food and Drug Administration for any of its tests.
    SEC recently charged the now disgraced Holmes with what it called a 'years-long fraud.’ The company’s value has plummeted, and it is now nearly worthless, and facing dozens, and possibly hundreds of lawsuits from angry investors. Meantime, Theranos will pay Arizona consumers $4.65 million under a consumer-fraud settlement Arizona Attorney General Mark Brnovich negotiated with the embattled blood-testing company.
    Both investors and Arizona officials, “could have picked up on those things or asked more questions or kicked the tires more," Carreyrou said. Unlike other states, such as New York, Arizona lacks robust laboratory oversight that would likely have prevented Theranos from operating in those places, he added.
    Stay tuned for more new on how the Theranos fraud story plays out.
    Read more at azcentral.com.

  • Forum Statistics

    • Total Topics
      110,490
    • Total Posts
      950,842
  • Member Statistics

    • Total Members
      81,089
    • Most Online
      4,125

    Newest Member
    njdino
    Joined
  • Popular Now

  • Topics

  • Posts

    • I just saw the ear doctor though and he didn't say anything  
    • I was diagnosed with Celiac in July of 2016. 

      I had an endoscopy in April of this year, the damage seemed to be very minimal (On a scale from 0 to 5, five being the worst and 0 being healthy, I was a 1.) and the doctor told me I'm healing.... If I'm still healing...why do I still hurt SO BAD? It doesn't matter what I eat, rice, rice pasta, fruits, vegetables, I'm always in major pain and I'm always EXTREMELY BLOATED, and I spend all day burping and in burning, uncomfortable pain.

      If I'm healing, why am I still sick? My gut hurts SO BAD and my life is a literal LIVING HELL, i can't even drink water without severe bloating and pain. I've been severely constipated for months now and the laxatives don't really seem to be working. The doctor wants my intestines to heal before he does anything else... so he's going to to do another endoscopy in a year.... I really don't want to wait around an entire YEAR before they do anything else, my gut hurts so bad I haven't even been able to look for a job, every day is a battle to live.

      Any suggestions on how to help this? I'm so sick and tired of living in severe pain.
    • Brandi1969, Carbs/Sugars as they break down ferment turning into gases causing your bloating quoting Ennistx verbatim and I agree! You can try going low CARB aka Keto or try taking some BetaineHCL to stoke up your digestive fires. I will provide some links that list simple home tests and one that provides doctor supervised testing. Bloating is common with Low Stomach acid. See this ChateLaine article. https://www.chatelaine.com/health/diet/bloated-low-stomach-acid-may-be-the-cause/ The easiest way to do this at home though least scientific way is the Baking Soda test to see if you burp from it. See this article that list 5 ways to test your stomach acid levels including medical tests to confirm what the baking soda tests indicates. https://drjockers.com/5-ways-test-stomach-acid-levels/ If you fail the baking soda test the easiest self testing is to try taking some BetaineHCL to see if it helps your bloating.  I suggest 3 or 4 BetaineHCL capsules with a glass or two of water (or tea/juice if you prefer) after you have begun eating.  It should not be soda because soda's will burp on their own from carbonation. 3 or 4 at  meal is not as high you think it might be. .. it tends to be in the goldilocks zone of not being too little . ..but not too much either. See this article about the simple test of using BetaineHCL for low stomach acid. http://hansacenter.com/simple-at-home-test-for-low-stomach-acid/ quoting read the whole article and these other links when you get a chance. . .but I am highlighting the high points. quoting below from the hansacenter "To perform this (baking soda) test: mix one quarter teaspoon of baking soda in eight ounces of cold water, first thing in the morning, before eating or drinking anything except water. Drink the baking soda solution. Time how long it takes to belch. Time up to five minutes. If you have not belched within five minutes stop timing anyway. If your stomach is producing adequate amounts of hydrochloric acid you should probably belch within two to three minutes. Early and repeated belching may be due to excessive stomach acid. Belching results from the acid and baking soda reacting to form carbon dioxide gas. The Heidelberg or Gastrocap tests can be employed for confirmation of the results of this test. I also look for signs and symptoms of low stomach acid. There are many laboratory test indicators of this condition. Some of these include deficiencies of amino acids, minerals, B vitamins, (My words Vitamin D, Magnesium, Iron, B-12 etc.) and, on digestive analysis, elevated levels of putrefactive short chain fatty acids in the stool. I like to have patients (clinician at hanasacenter) do a therapeutic trial with supplemental betaine HCL. (hydrochloric acid) If you take Betaine HCL after a meal and feel nothing, your stomach is probably not producing enough hydrochloric acid. A normal response to taking betaine HCL is a feeling of warmth in the stomach. For an individual whose hydrochloric acid levels are lacking, I have them gradually work up to supplementing as many as 5 Betaine HCL capsules after meals. Although this may sound like a lot, in response to a very big meal, a healthy stomach produces the equivalent of at least 14 betaine HCL capsules. For optimal results, the protein digesting enzyme, pepsin, should be part of the betaine HCL formulation." I hope this is helpful but It is  not medical advice. I used to take BetaineHCL capsules to improve my digestion because my stomach acid was not strong to digest carbs fast enough to keeep them from fermenting into gases causing severe bloating. If this works right you can taper off the BetaineHCL capsules after a few months. Here are two reference works on this topic.  Low stomach acid is known as Hypochloridia and NO stomach acid is known as Achloridia. https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4991651/ notice their figure one about how fast the patient felt better after beginning to take BeatineHCL capsules. https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4991651/figure/f1-49-53/?report=objectonly Also see this research theorizing why we develop low stomach acid in first place leading to severe bloating if left untreated. http://orthomolecular.org/library/jom/2001/articles/2001-v16n04-p225.shtml good luck on your continued journey. ***** Again this is not medical advice but I hope it is helpful. I only know it helped me. As always “Consider what I say; and the Lord give thee understanding in all things” 2 Timothy 2:7 this included. Posterboy by the grace of God,  
    • Has he had his vitamin and mineral levels checked?  We can be low vitamin D, B's, iron etc.  All those vitamin deficiencies add up to problems with the body healing and maintaining itself.  
    • Ok, I’ll try a probiotic. I already avoid dairy and soy. Hopefully it will help. Thanks!
  • Blog Entries

  • Upcoming Events