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Confusion Now Over.

Bethe444

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Bethe444 Newbie
Bethe444
Posted

Recently I posted regarding genetic testing results, which the nurse at my docs office said were negative. I went to the doctor today so he could explain the results, and I'm glad I did. The genetic tests were never done. It seems to be that here in Michigan -- atleast the part I live in (Suburbs) they do not have access to the test. I would love to have it done, but Im not sure if insurance would cover it -- I probobly should for my family. The funny thing is that when we went over the tests today. He said I did not test positive for sprue. However, in early April the Sprue, Iga, Igg -gliadin panel was high (ofcourse when I was not gluten free). The tests he read today were taken a month later -- gluten free. So now I know - especially being B12 anemic and feeling much better staying away from gluten. I just wanted to share, and if anyone has any idea on how I can get the genetic testing (at a reasonable cost -- not sure if my insurance covers it) I would love to know.

I'm just very thankful that I finally know that I'm not crazy and know what to avoid --- I will miss real chocolate cake though! :D

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mushroom Proficient
mushroom
Posted
Recently I posted regarding genetic testing results, which the nurse at my docs office said were negative. I went to the doctor today so he could explain the results, and I'm glad I did. The genetic tests were never done. It seems to be that here in Michigan -- atleast the part I live in (Suburbs) they do not have access to the test. I would love to have it done, but Im not sure if insurance would cover it -- I probobly should for my family. The funny thing is that when we went over the tests today. He said I did not test positive for sprue. However, in early April the Sprue, Iga, Igg -gliadin panel was high (ofcourse when I was not gluten free). The tests he read today were taken a month later -- gluten free. So now I know - especially being B12 anemic and feeling much better staying away from gluten. I just wanted to share, and if anyone has any idea on how I can get the genetic testing (at a reasonable cost -- not sure if my insurance covers it) I would love to know.

I'm just very thankful that I finally know that I'm not crazy and know what to avoid --- I will miss real chocolate cake though! :D

That nurse!!! Of course test results are negative if the tests are never done in the first place.

I'm glad the gluten free diet is having such a positive response for you. Hope your B12 goes up too--your are taking it, right?? You will feel so much better I am sure.

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Bethe444 Newbie
Bethe444
  • Author
Posted
That nurse!!! Of course test results are negative if the tests are never done in the first place.

I'm glad the gluten free diet is having such a positive response for you. Hope your B12 goes up too--your are taking it, right?? You will feel so much better I am sure.

Yes, I had my second B12 shot today. I'm waiting for it to kick in, I felt pretty good for the first 2 weeks with the last one. I'm now really addicted to the shot.... I can't remember feeling good like that.

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mushroom Proficient
mushroom
Posted
Yes, I had my second B12 shot today. I'm waiting for it to kick in, I felt pretty good for the first 2 weeks with the last one. I'm now really addicted to the shot.... I can't remember feeling good like that.

Yeah, it really does give you a burst/boost. I had three of them and that's all it took to get me to overflowing. Now I am only to have them every three months. :o

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lizard00 Enthusiast
lizard00
Posted

I'm sorry, but I'm confused as to why you can't get the test done. My labs were sent to California or somewhere on the west coast to Promethues labs for testing. I'm not sure if a lab around here does them, but my doc just uses Prometheus as his standard for celiac testing.

You could look into Enterolab for genetic testing.

I'm glad you're feeling better with the B12 though! That's some great stuff. :)

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happygirl Collaborator
happygirl
Posted

Your doctor can order, he's just not.

You can use Kimball Genetics, which is used by the University of Chicago's Celiac Center.

Open Original Shared Link

Ask your doctor if he'd be willing to use them.

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    • Bayb
      Trying to read my lab results

      By Bayb · Posted

      Hi Scott, yes I have had symptoms for years and this is the second GI I have seen and he could not believe I have never been tested. He called later today and I am scheduled for an endoscopy. Is there a way to tell how severe my potential celiac is from the results above? What are the chances I will have the biopsy and come back negative and we have to keep searching for a cause? 
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      Constant low back, abdominal and pelvic pain!

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      I agree christina, there is definitely many contributing factors! I have the pain today, my pelvis, hips and thighs ache! No idea why. But i have been sitting at work for 3 days so im thinking its my back. This disease is very mysterious (and frustrating) but not always to blame for every pain. 
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      "her stool study showed she had extreme reactions to everything achievement on it long course of microbials to treat that." The wording of this part of the sentence does not make any sense at all. I don't mean to insult you, but is English your first language? This part of the sentence sounds like it was generated by translation software.
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      Why?

      By mishyj · Posted

      Perhaps I should also have said that in addition to showing a very high response to gluten, her stool study showed that she had extreme reactions to everything achievement on it long course of microbials to treat that.
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