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The Miracle That Is The Gluten Free Diet!

inskababy

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inskababy Rookie
inskababy
Posted

I cannot believe what a difference this had made for my oldest son! My youngest son had a celiac crisis and was diagnosed last month. I started to suspect that my oldest son might have gluten issues as well...after doing lots of reading, I realized he had very mild GI symptoms that could be linked to intolerance. He is almost always sick...lots of diarrhea episodes that have gotten increasingly worse, to the point of not being able to hold it after a taste of pretzel. He's also a very late talker, and while very sweet tempered, has some pretty crazy tantrums from time to time...ones that last for hours.

I got him tested two weeks ago and took him off gluten immediately thereafter, and I swear a different child is living in my house. He's chattering away all day now, with 10-15 new words a day -- he's sleeping 12 solid hours at night when I was lucky before to get 4 before he was crying for me to come get him -- not a single time out for two weeks -- no diarrhea and his first truly solid poop in 2 years. First time it didn't float either! It took forever to potty train him because he hated getting diarrhea in his big boy pants. He chows his dinner every night and has lost most of his pickiness issues. He willingly went shoe shopping and got his haircut without flipping out for the first time ever. He's gained 1/2 lb in just two weeks. Oddly enough I had to take his pants in on elastic despite weight gain because apparently his tummy has lost some swelling.

His blood tests came back two days ago as negative for celiac disease, but he was anemic which the dr said was a red flag regardless of the test result. The doctor felt strongly that he would still benefit from a gluten free diet (umm, duh) and thinks he does have celiac disease, given that my husband and youngest have it and he's gotten so much better. When we went to go get tested, he was scared of her, wouldn't speak and cried during the blood draw. When we went back for results, he bounced in, jumped on her lap and just started chattering away all while letting her actually examine him. She was blown away.

This is AMAZING. I'm just in tears...both in gratitude for the fix and that I'm sad that I didn't realize sooner that he wasn't just "delicate" or "high needs" or "sensitive" -- he was sick. I would be cranky all the time if I never felt good too.

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MySuicidalTurtle Enthusiast
MySuicidalTurtle
Posted

Congratulations!

taweavmo3 Enthusiast
taweavmo3
Posted

I'm so happy for you! I too have one child that tested positive after being very, very sick for a long time. Not too long after that, I ended up putting all my kids on the diet even though their tests were negative. We saw such positive results, we haven't looked back since! Hope you continue to see improvement, it's great to see the progress happen so fast.

lizajane Rookie
lizajane
Posted

me, too!!!

i was diagnosed in March AND my father in law has it. so seeing some possible symptoms in my 4 year old was enough for me to try gluten free for him. We didn't even have him tested, just took him off gluten. he finally sleeps all night (i wish he slept past 6am, though!) and he is pleasant nearly all day every day. and the tummy is gone!

hooray for you and your family!!!

CeliacMom2008 Enthusiast
CeliacMom2008
Posted

Isn't it just amazing! We also saw dramatic improvements in so many areas of our son's life. And we too wished we'd known sooner. When I look back at all the Ibuprofen we gave him just so he could get some sleep at night (he'd complain of his ankles and legs hurting so much as a toddler), it breaks my heart to know that his little body needed Calcium to grow properly. Or how much of his little childhood he slept through, because "he's a sleeper, you know." And all the doctors that told us he wanted attention at night, his arches weren't formed yet, he might have juvenile arthritis so let's get him tested, his intestinal issues are because he eats so many fruits and veggies, etc...UGH!

He is soooo much healthier, happier, active, etc. I'm so glad your little guy is doing so well too!!

ang1e0251 Contributor
ang1e0251
Posted

I'm so glad you have found the solution for your little guy! A sick child is such a worry.

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    • Rogol72
      Sainsbury's Free From White Sliced Bread - Now Egg Free - Completely Ruined It

      By Rogol72 · Posted

      @HAUS, I was at an event in the UK a few years back. I remember ringing the restaurant ahead to inquire about the gluten free options. All I wanted was a few gluten free sandwiches, which they provided and they were delicious. The gluten-free bread they used was Warbutons white bread and I remember mentioning it on this site before. No harm in trying it once. It's fortified with Calcium and Iron. https://www.warburtonsglutenfree.com/warbs_products/white-loaf/ The only other gluten-free bread that I've come across that is fortified is Schar with Iodized salt, nothing else.
    • Scott Adams
      Sainsbury's Free From White Sliced Bread - Now Egg Free - Completely Ruined It

      By Scott Adams · Posted

      In the U.S., most regular wheat breads are required to be enriched with certain B-vitamins and iron, but gluten-free breads are not required to be. Since many gluten-free products are not enriched, we usually encourage people with celiac disease to consider a multivitamin.  In the early 1900s, refined white flour replaced whole grains, and people began developing serious vitamin-deficiency diseases: Beriberi → caused by a lack of thiamin (vitamin B1) Pellagra → caused by a lack of niacin (vitamin B3) Anemia → linked to low iron and lack of folate By the 1930s–40s, these problems were common in the U.S., especially in poorer regions. Public-health officials responded by requiring wheat flour and the breads made from it to be “enriched” with thiamin, riboflavin, niacin, and iron. Folic acid was added later (1998) to prevent neural-tube birth defects. Why gluten-free bread isn’t required to be enriched? The U.S. enrichment standards were written specifically for wheat flour. Gluten-free breads use rice, tapioca, corn, sorghum, etc.—so they fall outside that rule—but they probably should be for the same reason wheat products are.
    • Scott Adams
      Inconclusive results

      By Scott Adams · Posted

      Keep in mind that there are drawbacks to a formal diagnosis, for example more expensive life and private health insurance, as well as possibly needing to disclose it on job applications. Normally I am in favor of the formal diagnosis process, but if you've already figured out that you can't tolerate gluten and will likely stay gluten-free anyway, I wanted to at least mention the possible negative sides of having a formal diagnosis. While I understand wanting a formal diagnosis, it sounds like she will likely remain gluten-free either way, even if she should test negative for celiac disease (Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If her symptoms go away on a gluten-free diet, it would likely signal NCGS).        
    • JoJo0611
      CT with contrast.

      By JoJo0611 · Posted

      Thank you. 
    • deanna1ynne
      Inconclusive results

      By deanna1ynne · Posted

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