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Amyleigh0007

Ige Numbers Still Sky High After 14 Months Gluten Free

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My son had his one year re-test last week. I had the office mail me the results and I am confused. I also have his original test results so I can compare.

His original IgE was 3904 with a ref range <OR=280.

His test done last week had his IgE at 1579 with a ref range <OR=304.

Both numbers are considered "high" according to this report.

He also had a Transglutaminase IgA Antibody. His original result was 52 with a ref range <5. It is noted on the report that is "extremely high".

His test done last week had this test as a 3. It is noted as "normal"

My question is should I be concerned with the still high IgE test? Is that the Celiac test? Does that mean he is getting gluten from somewhere? Or, should I be happy with the re-test results (both numbers did come down signifigantly). It has been about 14 months since he went gluten free.


Amy

1989: I am diagnosed with IBS.

3/08: 8-year-old son diagnosed with Celiac (blood test and biopsy) and allergies to corn, egg whites, soy, peanuts, walnuts, wheat, and clam.

6/08: My Celiac test is negative.

7/08: I go completely gluten free despite negative test and NO MORE IBS SYMPTOMS!!

7/09: My Enterolab gluten sensitivity gene testing results indicate I have one Celiac gene and one gluten sensitivity gene.

8/09: I am diagnosed with Celiac based on gene testing results and positive response to diet.

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The total IgE test is not a Celiac test. None of the Celiac tests are even IgE based. You may want to ask your doctor for further explanation, but I don't think its Celiac related.

The best part is that you said, "He also had a Transglutaminase IgA Antibody. His original result was 52 with a ref range <5. It is noted on the report that is "extremely high".

His test done last week had this test as a 3. It is noted as "normal" -------- This is GREAT!!!!!!!

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What test would I request if I wanted to know if he was still getting gluten in his diet? Do you know what the IgE test tests for? Is it allergy related? I thought I was clear with my requests but I guess not. He does have many food allergies. I wonder if she tested him for that..... I will have to google IgE. Thanks for your reply. I knew I could count on the folks at celiac.com!


Amy

1989: I am diagnosed with IBS.

3/08: 8-year-old son diagnosed with Celiac (blood test and biopsy) and allergies to corn, egg whites, soy, peanuts, walnuts, wheat, and clam.

6/08: My Celiac test is negative.

7/08: I go completely gluten free despite negative test and NO MORE IBS SYMPTOMS!!

7/09: My Enterolab gluten sensitivity gene testing results indicate I have one Celiac gene and one gluten sensitivity gene.

8/09: I am diagnosed with Celiac based on gene testing results and positive response to diet.

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You want the tTG test to be negative - that indicates his damage is healing/healed. If his numbers there were still high, then I would be concerned about still getting gluten.

You had the right test done - http://www.celiacdisease.net/assets/pdf/celiac disease...lowUpTests7.pdf However, you may want to talk to them about the other tests mentioned in this file from the Univ. of Chicago Celiac Center.

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It's great that his tTG levels are normal, that's cause for celebration! :) His IgE is very high and I would speak to a doctor about this. IgE are related to "traditional" allergies, such as Hay fever or other food allergies, parasitic infections, and inflammatory responses. Does your son have environmental allergies or other food allergies? If it is other food allergies, he should have a reaction shortly after consuming the allergen. If he does not have any allergies that you are aware of, maybe an allergy test should be considered.

Allergy testing information:

http://labtestsonline.org/understanding/an...rgy/glance.html

There are many possible reasons for high IgE levels:

http://www.clinlabnavigator.com/Tests/ImmunoglobulinE.html


Jenny

Son 6 yrs old, Positive blood work, Outstanding dietary response, no biopsy.

Household mostly gluten free since 3/07

Me: HLA-DQ 02 & 0302 (DQ 08), which I ran & analyzed myself!Currently gluten lite, negative tTG, asymptomatic

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A high IgE indicates an allergic reaction taking place in the body - not related to Celiac.


Diagnosed Celiac in June 2008 by biopsy and blood tests.

DQ2.2 (HLA DQA1*0201:DQB1*0202) and DQ2.5trans (HLA DQA1*05) positive.

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