Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Now I Am Confused And Need Help!


Gobbie

Recommended Posts

Gobbie Apprentice

I have read so much stuff into this area and know that altough being gluten intolerant, only few are diagnosed with celiac disease, which is more serious than just being intolerant.

I was diagnosed with wheat intolerance and also given few lists of food to avoid.

Oh, and I already had few food sensitivies such as

-lactose intolerance

-nut allergy

-grain intoelrance (somewhat..found it hard to finish even half a bowl of it & didn'e like the taste)

-soy allergy

-coconut allergy

-weak metabolism / digestion in general

-bad with fizzy drinks

-not so good with potatoes or chestnuts either

-alcohol (even one sip would turn my face tomato red and found it impossible to even finish half a pint. + after drinking, I am stuck in the loo as alcohol seems to have doubled inside my tummy and all the water seemed to be coming out. Heart rate increase to the extreme that my body felt like a giant heart. Difficulty in breating which led to insomnia and fatigue. Even one sip would make me feel sleepy, not drunk but to a state of falling asleep, which somehow if ignored turns to insomnia)

I have been on a moderate gluten free diet for half a year and health did improve but being grain intolerant as well, from about April I began missing gluten foods.

The consequences are: -diarrhea, contispation, stomach cramp, insomnia, bloating, fatigue, depression, unable to concentrate, dehydration, mood swing..which lasts for up to a week. Usually I need to empty my stomach the next day as my stomach is in too much pain that even a touch of clothes hurts it.

Although I find wholemeal much less painful and easier to digest.

There was a night when I had a bad craving for it then I ended up having a wholemeal + oat and fruit muffin with stir fry noodle and some cocoa but funnily enough again, I had lost weight.

I don't know why I am craving gluten so much lately. Is this a symptom for celiac?

About a month ago, despite my dislike towards sweets (sugar junks or chocolate) I had a really bad craving for them and just had to have them. Though, funnily enough often I lost weight instead or maintained the same weight.

And now, I'm up for fatty foods especially gluten.. So I'm trying my best to find alternatives or oats.. but most alternatives have rice flour which I'm worse off with.

I have not had proper sleep cos of all this since April.

Mood swings have been bad as well.

Plus my appetite has gone out of the window :o

It's just random cravings for gluten and the bad consequences..

Any feedback would be well appreciated.

Oh, and I am going to get a thorough check out in around mind June but until then I need a general opinion from people... thank you.

PS: I live with unspportive family, who don't belive in food intolerances especially mine and force / strongly persuade me to have offender foods so healthy life is not so easy for me.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



tiggsy Newbie

Sounds a lot like celiac disease to me. Brain fog and so on are typical celiac symptoms when glutened.

Gluten is addictive to those who are intolerant, because only the first stage of digestion (resulting in a substance called an opioid peptide) takes place. In celiacs, gluten prevents the absorption of nutrients, which is probably why you lose weight when you eat it.

Celiac life expectancy is directly proportionate to how well a 100% gluten free diet is adhered to. You need to get tested, but keep eating gluten until after the tests, as they won't work otherwise.

Beer contains gluten, mostly, though there are gluten free beers. Lactose intolerance is a common side effect of ignored celiac disease, as the mechanism to digest it has been destroyed along with the villi in your intestine. You may find that you can eat dairy again if you follow a 100% gluten free diet for 18 months or so. If you are celiac, you will never be able to eat gluten again, even after healing has taken place, as it will just recur, taking you back to square 1.

Even if you test negative for celiac, from your symptoms, I would say you do have it, but there is a silent form which does not show up in tests.

This 5-question multiple choice quiz may also give you some more information about how likely it is that you are gluten intolerant: Open Original Shared Link

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      127,764
    • Most Online (within 30 mins)
      7,748

    Larry Hail
    Newest Member
    Larry Hail
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121k
    • Total Posts
      70.4k

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Bebee
      I am new here, I have been diagnosed with Microscopic Colitis (Lymphatic) years ago and have been gluten-free, DF since, but I still can have occasional bouts of diarrhea (still trying to figure that out).  I also have MS, Hypothyroid, Arthritis, Reynaud's and my rosacea has been acting up lately.  What treatment is suggested to help with rosacea?  I would like to know too if there is a test for celiac if you have been gluten-free?   Thank you, Barb    
    • bluebird2032
      Gluten free/ non dairy , low calorie pudding ideas please?
    • K6315
      Well, that's interesting. I am lactose intolerant and have been managing that for years. I'd be interested in seeing if that changes once I feel better from not eating gluten (one thing at a time for now, though). Helpful to hear about the avenin. I will do some digging and pose that to the dietitian. Grateful for your feedback.
    • kate g
      Recently my daughter ate in nandos harlow I rang in advance to speak about the celiac protocals and learned that childs portion chicken nandinos is cooked on the same grill as garlic bread even if they are celiac! Even if you clean it this is not good practise and will be making many children ill. I learnt adults butterfly chicken cooked on a grill purely for chicken.  This is fine and what we ordered however nandos need to take note of your practises for the safety of celiac children. my daughter has been ill from their nandinos chicken before and i emailed head office and they wouldnt accept responsibility 
    • Scott Adams
      I agree with @RMJ, you have multiple positive tests so celiac disease is likely.  This article might be helpful. It breaks down each type of test, and what a positive results means in terms of the probability that you might have celiac disease.     
×
×
  • Create New...