Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Celiac.com!
    eNewsletter
    Donate

My Daughter Has It - Do I?

3groovygirls

Recommended Posts

3groovygirls Contributor
3groovygirls
Posted

Hey everyone! My daughter is 2 and has Celiac. She has the HLA-DQ2 gene for it as well. I've never been tested but lately, b/c of her I've been eating a lot less gluten. gluten-free pasta, lasanga, corn tortilla's, cereals, etc.

Recently (Ok, don't laugh) we went to a concert and I had 4-5 "White" beers (the unfiltered wheat kind). My system has been off since that night!! Yes, it's a lot of beer, LOL, I realize that, but I don't mean a hangover. I mean I've had diarrhea EVER since! The first night it was HORRID, then after that it's just been every day and my stomach hurts a little.

Is it possible that I have Celiac as well but I never realized it and now that I've cut out gluten drinking so much of it really effected me? I really should get tested....I'm also 5'9" tall and only 115lbs or so. I just have never gotten tested b/c I don't have symptoms, but now I'm wondering if I do.

PS - I normally DON'T drink that much, LOL - it was a special occasion!

Link to comment
Share on other sites
Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


LDJofDenver Apprentice
LDJofDenver
Posted
Hey everyone! My daughter is 2 and has Celiac. She has the HLA-DQ2 gene for it as well. I've never been tested but lately, b/c of her I've been eating a lot less gluten. gluten-free pasta, lasanga, corn tortilla's, cereals, etc.

Recently (Ok, don't laugh) we went to a concert and I had 4-5 "White" beers (the unfiltered wheat kind). My system has been off since that night!! Yes, it's a lot of beer, LOL, I realize that, but I don't mean a hangover. I mean I've had diarrhea EVER since! The first night it was HORRID, then after that it's just been every day and my stomach hurts a little.

Is it possible that I have Celiac as well but I never realized it and now that I've cut out gluten drinking so much of it really effected me? I really should get tested....I'm also 5'9" tall and only 115lbs or so. I just have never gotten tested b/c I don't have symptoms, but now I'm wondering if I do.

PS - I normally DON'T drink that much, LOL - it was a special occasion!

Very possibly. I mean, she had to get it from one parent's side or the other, it is genetic.

My adult son was diagnosed about 11 years ago -- I'd never heard of it, and at the time none of the doctors said anything to us about testing parents or siblings. Eventually, after 10 years of asking my personal physician to test me for it, with all my ongoing gut and touchy bowel problems, weird rashes (which I now know to be dermatitis herpetiformis), migraines, etc, he finally ordered the test. And, yup, I belong to the club as well. Irks me to no end that I've probably had it at least all my adult life, and that it took them 10 years to test even when I was asking!

Didn't mean to go on! My point is definitely get tested. If you have it, the sooner you know the better, in terms of healing.

Link to comment
Share on other sites
nasalady Contributor
nasalady
Posted
Hey everyone! My daughter is 2 and has Celiac. She has the HLA-DQ2 gene for it as well. I've never been tested but lately, b/c of her I've been eating a lot less gluten. gluten-free pasta, lasanga, corn tortilla's, cereals, etc.

Recently (Ok, don't laugh) we went to a concert and I had 4-5 "White" beers (the unfiltered wheat kind). My system has been off since that night!! Yes, it's a lot of beer, LOL, I realize that, but I don't mean a hangover. I mean I've had diarrhea EVER since! The first night it was HORRID, then after that it's just been every day and my stomach hurts a little.

Is it possible that I have Celiac as well but I never realized it and now that I've cut out gluten drinking so much of it really effected me? I really should get tested....I'm also 5'9" tall and only 115lbs or so. I just have never gotten tested b/c I don't have symptoms, but now I'm wondering if I do.

PS - I normally DON'T drink that much, LOL - it was a special occasion!

Please see the following topic in the Dermatitis Herpetiformis forum:

https://www.celiac.com/gluten-free/index.php?showtopic=57093

My husband had NO IDEA that he had a gluten problem until he went gluten free with the rest of the family and then drank beer during the Superbowl weekend! Poor guy! He's still paying for it....

I'm betting you are the one that your daughter inherited the problem from.

Good luck!

JoAnn

Link to comment
Share on other sites
gfb1 Rookie
gfb1
Posted
My husband had NO IDEA that he had a gluten problem until he went gluten free with the rest of the family and then drank beer during the Superbowl weekend! Poor guy! He's still paying for it....

Open Original Shared Link

its really not that bad --- my brotherinlaw was beer-free for over a year when redbridge was released. he thought it was nectar of the gods...

however, it definitely WON'T help symptoms of consuming one-too-many...

:)

Link to comment
Share on other sites
OptimisticMom42 Apprentice
OptimisticMom42
Posted

A lot of us found out we were celiacs by going gluten free thanks to the atkins diet and then could not return to the normal American diet. For me it was my 2008 New Years resolution to lose 30lbs. I did really well. Then gave up in July, was sick for six months before going to the dr. Three dr's latter, I'm a celiac, my mom's a celiac, my son is a celiac. Whoooo hooo! Atkins for life plus Fruity Pebbles :P

Welcome aboard, you're one of us!

OptimisticMom42

Link to comment
Share on other sites

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. plumbago
      - plumbago replied to Suzi374's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      Lots of tests

      I'm also a nurse, but one who has worked in chronic care, and to some extent, it is more satisfying to see patients through to a diagnosis (as opposed to working in the ED), but an accurate diagnosis does not occur not as often as it should! Your posting presents a lot of information. But a couple of things I can respond to. One, celiac disease is diagnosed...
    2. trents
      - trents replied to Suzi374's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      Lots of tests

      Was a biopsy done when you had your gastroscopy? Concerning your anemia, are you B12 deficient? It's nearly impossible to get sufficient B12 if you are a vegetarian unless you take supplements.
    3. Suzi374
      - Suzi374 replied to Suzi374's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      Lots of tests

      And I’m anaemic, however I’m also female and vegetarian. I had an iron trans a couple of years ago however it’s starting to dwindle and taking supplements doesn’t seem to work. I can’t seem to absorb it.
    4. Suzi374
      - Suzi374 posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      Lots of tests

      Hi, I attended a neurologist appt last Tuesday, which I nearly cancelled, due to ongoing numbness and tingling in toes to mid foot. One of the first things he asked was ‘are you celiac’. I’m not. He thought all reflexes were ok but at the last minute decided on nerve conduction tests which were low normal. He was a little confused as he felt they should be be...
    5. Peace lily
      - Peace lily posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      0

      Would like to gain weight

      Im still not gaining weight I’m on a gluten free diet . And still having issues with constapation started priobiocs figured it would help been over two weeks . I guess it’s going to be a long road for me .
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      121,224
    • Most Online (within 30 mins)
      7,748
    Suzi374
    Newest Member
    Suzi374
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      120.3k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • plumbago
      Lots of tests

      By plumbago · Posted

      I'm also a nurse, but one who has worked in chronic care, and to some extent, it is more satisfying to see patients through to a diagnosis (as opposed to working in the ED), but an accurate diagnosis does not occur not as often as it should! Your posting presents a lot of information. But a couple of things I can respond to. One, celiac disease is diagnosed by endoscopy and biopsy of the duodenum. So, pathology will need to weigh in. It's not diagnosed on gastroscopy. (At least, not as far as I know). Two, did you get blood tests for celiac disease? You will need to be eating gluten in order for those to be accurate. Three, where was the CT angiogram (of what)? I could go on and on, but thought I'd start there.
    • trents
      Lots of tests

      By trents · Posted

      Was a biopsy done when you had your gastroscopy? Concerning your anemia, are you B12 deficient? It's nearly impossible to get sufficient B12 if you are a vegetarian unless you take supplements.
    • Suzi374
      Lots of tests

      By Suzi374 · Posted

      And I’m anaemic, however I’m also female and vegetarian. I had an iron trans a couple of years ago however it’s starting to dwindle and taking supplements doesn’t seem to work. I can’t seem to absorb it. 
    • Suzi374
      Lots of tests

      By Suzi374 · Posted

      Hi, I attended a neurologist appt last Tuesday, which I nearly cancelled, due to ongoing numbness and tingling in toes to mid foot. One of the first things he asked was ‘are you celiac’. I’m not. He thought all reflexes were ok but at the last minute decided on nerve conduction tests which were low normal. He was a little confused as he felt they should be better and tried a new set of probs, all the time, giving me multiple shocks which were not enjoyable lol. Anyway, he’s now ordered tests for myeloma, and all the vitaminy things that so many of you mention on here, also tests looking for autoimmune responses. I already have Hashimotos. Interestingly, to me, but maybe someone out there can relate or knows more than i do, although I was a nurse, but ED not ‘weird symptoms’  nurse. Anyway back to the interesting thing, I took duramine in 2013 to lose weight which caused a massive panic attack when I stopped taking it and half my hair fell out. I only took it for a week but it was horrible and I regret it. It triggered ongoing panic attacks which are horrendous. So I feel like I’m a bit crazy. Then in 2020 I had this sudden onset of horrible pain when trying to eat a cinnamon roll. It continued and I lost around 20 kgs. I had two gastroscopes and a colonoscopy and they were all normal. I scored a barium swallow and CT angiogram. All normal. The pain subsided a little but I was left with reflux and an awful feeling that I couldn’t get air when I ate some foods. This was not anxiety.  The anxiety was separate and I still maintain this. This was something to do with eating. It was like the air was thick but I wasn’t short of breath. I just had the sensation I was, then it triggered anxiety. Anyway, I had other weird things- couldn’t bend knees to shave legs in shower lol. Knees felt stiff and swollen but they weren’t. Knee WOUld swell up randomly but mri showed minimal issues. A bit of a meniscus degeneration but insignificant. Then the buzzing sensations in my head, the feeling like someone was stabbing me with something sharp. So now, I pre empted his tests, although I don’t think I’m celiac because it should have come up on gastroscopy, I’ve gone off gluten. Since Tuesday last week so 9 days. Since then I don’t appear to be as constipated, I realised I got through today without a nap and I’m not tired, maybe it’s just today and not related but I get very tired normally and sleep straight after work often, I can bend my knees and shave my legs lol, the buzzing vibrating has gone from my head, I had to call and ambulance as my heart decided we were off on a run, but we weren’t running and I’ve been a bit twitchy at bed time when trying to sleep, reflux is improving, I did get the weird suffocating feeling a bit when eating today but not as bad normall. Tingling and numbness still present and I felt like it moved up my legs a bit today but I’m a bit jittery. So I don’t know if it’s celiac disease or a gluten intolerance but I think, and it may be wishful thinking because my symptoms do make life a bit challenging, but maybe I’m feeling better. I don’t feel as cloudy. My thinking feels crisper. Like there’s no buzzing and I’m not fighting to break through the cloudiness now. I hope so much that this may help me feel a bit better moving forward. It would be a miracle as I really have struggled to work and parent and keep the house clean and I’m always anxious and exhausted.  If you get this far, please tell me if you you can relate to any of the above. Oh and tonsils out 5 years ago but before that antibiotics multiple times a year, sometimes intramuscular because they were so bad.  Op was meant to take 30 mins, it took 1.5 hours due to size of them. 
    • Peace lily
      Would like to gain weight

      By Peace lily · Posted

      Im still not gaining weight I’m on a gluten free diet . And still having issues with constapation started priobiocs figured it would help been over two weeks . I guess it’s going to be a long road for me .
×
×
  • Create New...