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Celiac Disease


toxictwinkie

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toxictwinkie Newbie

Hello I'm New Here

Basically, I am in the process of seeing if I do have Celiac Disease because I have been getting severe upper stomach pain that lasts for a 1 week. Its so bad I have to take a week off from TAFE and life basically; and no tablets relieve it. I have been to the doctors numerous times and stomach specialsts but they have no idea either. I am pretty much crippled with this pain to the point where I am crying and on the verge of screaming. I also lose my appetite during that time. I got this stomach problem in my teens.

However what I'm confused about is, that I can eat all the gluten and wheat products all year round with no symptoms or pain, but then every 6-12 months I suddenly get the severe upper stomach pain. I have a feeling that I get this pain from me eating gluten, wheat products and it builds up every 6- 12 months up to the point when I suddenly get this horrible severe upper stomach pain. Not sure though?

However when I look at the Symptomsof Celiacs Disease I do not display 95% of the Symptoms:

Gas, abdominal swelling, and bloating - NO, however I have upper stomach pain but no gas or swelling (5%)

"The Toilet One" - NO

Weight loss - NO

Fatigue and weakness - NO

Vomiting - NO

Frequent respiratory infections. - NO

Problems with memory and concentration. NO

Irritability in children. And adults may show signs of depression. - NO

So I have no idea if it is Celiac Disease or some other stomach disorder. Also when people have celiacs does the pain last all week or only when eating the wheat and gluten products and the pain subisdes after a few hours?. Any help will be greatly appreciated though =)

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GFinDC Veteran

Hi,

Celiacs have lots of different symptoms and reactions. So one person can react totally different from another person. We are not all the same. It seems unusual for the symptoms to only occur once a year. You could ask your doctor to do the blood antibody tests.

It sounds to me like a gastroenterologist might be good person to talk to about your symptoms. One of the tests they do for celiacs is an endoscopy, where they insert a tube down the throat and can examine the esophagus, stomach, and upper intestine condition.

You could always try the gluten-free diet also and see what happens. But if you really want a diagnosis you need to get tested before going gluten-free.

I don't see how the gluten would build up and then get flushed out once a year if you are still eating gluten all the time. Some testing might help.

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toxictwinkie Newbie

Wow thank you for the advice. :P

The annoying thing is I went to the doctors/hospitals numous times over the years and I had pretty much all the tests under the sun and they have no idea what it is. But I won't give up. I also had the endoscopy thing twice, and they found nothing wrong (I wasn't tested for celiac on those times, I don't think), however I think I may go again to the endoscopy place and be tested properly for celiac just to make sure.

Anyway, thanks for the reply ^-^

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GFinDC Veteran

Yeah, definitely don't give up. Many of us have gone years looking for a diagnosis. There have been a few people posting about gallbladder problems, that cause them a lot of pain. Maybe try a search on gallbladder? I seem to remember people saying they had intermittent pain with it.

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