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mom2blondes

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mom2blondes Rookie

Hi! I'm new here. Just got diagnosed by stool test last week. Had blood testing a couple years ago, but it was negative. I was gluten free at the time of blood tests, though and numbers were "borderline". (Nobody told me I had to eat gluten!)

I've had mulitple health issues over the last 5 years. I've had fatigue, brain fog, digestive issues, white spots on my brain (seen by MRI) and lastly... HIVES. The hives were the final straw. I canNOT live my live covered in spots. The MDs were NO help, as usual. I was told "this happens" and "we may never know why you have hives daily".

I ended up going a naturopath and she ordered my old blood tests. We discussed the borderline results and she suggested I try the enterolab stool test. It was overwhelmingly postive. The fecal fat score was over 1000! I think that shows my problem is in my gut.

I've been gluten free for 6 weeks. The fatigue and fog seem slightly better. The hives were almost gone, but came back w/ a vengenance since I got my diagnosis. I think it's emotions. I've been very ANGRY that it's taken this long to get an answer and I was dismissed SO many times by SO many doctors.

Luckily, I am getting closer to being at peace w/ it.

Well... there's my story. I look forward to getting to know all of you :)

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oceangirl Collaborator

Welcome. At least you are beginning the journey to health. Remember it can be a long and wily journey and other intolerances may rear their ugly heads, but, hopefully, feeling better is in your future. Keep a detailed food log with symptoms; it is invaluable. Mine is 4 years old now and it has been most helpful.

It only took 35 years for me to be diagnosed- I'm 51 now and feel MUCH better!

lisa

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ang1e0251 Contributor

Hey, I'm 52 and dx'd myself since my dr's alternately said there was nothing wrong with me or it was all in my head!

Welcome to you and hang in there. The rash could be some sneaky gluten so the food journal is a great idea.

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      Hi Scott, yes I have had symptoms for years and this is the second GI I have seen and he could not believe I have never been tested. He called later today and I am scheduled for an endoscopy. Is there a way to tell how severe my potential celiac is from the results above? What are the chances I will have the biopsy and come back negative and we have to keep searching for a cause? 
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      Perhaps I should also have said that in addition to showing a very high response to gluten, her stool study showed that she had extreme reactions to everything achievement on it long course of microbials to treat that.
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