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hi

am just new to this site i live in the uk

ive been losing weight and my appetite seems to have shrunk i get full up easily, bloated, alot of gas, some pain, my toilet (not being crude) seems normal apart from constipation sometimes and occassional diarrohea.

i have this itchy rash on my stomach for (yrs) that seems to get worse after eating certain foods. id get terrible chest pains if i eat brown bread especially.

i asked for a celiac/coliac blood test i think she only did 1x antibody test but ive heard theres more to test (Endomysial Antibody Test, Tissue Transglutaminase Antibody Test, Anti-Gliadin Antibody Test, and Total Serum Test)

it came back negative. so im not sure what to do now?

i havent been referred to a gastroenterologist or anyone. i would like to know if it is celiac/coliac disease

can any1 advse who would i be reffered to and whats the next action i should take? someone mentioned a colonoscopy, but i think as my toilet is more or less normal would the gastroentorologist not say there was no need for a colonoscopy. or should i ask for more blood tests?

i dont want to just exclude gluten until i know for sure that it was celiac/coliac disease

help plz?

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hi

am just new to this site i live in the uk

ive been losing weight and my appetite seems to have shrunk i get full up easily, bloated, alot of gas, some pain, my toilet (not being crude) seems normal apart from constipation sometimes and occassional diarrohea.

i have this itchy rash on my stomach for (yrs) that seems to get worse after eating certain foods. id get terrible chest pains if i eat brown bread especially.

i asked for a celiac/coliac blood test i think she only did 1x antibody test but ive heard theres more to test (Endomysial Antibody Test, Tissue Transglutaminase Antibody Test, Anti-Gliadin Antibody Test, and Total Serum Test)

it came back negative. so im not sure what to do now?

i havent been referred to a gastroenterologist or anyone. i would like to know if it is celiac/coliac disease

can any1 advse who would i be reffered to and whats the next action i should take? someone mentioned a colonoscopy, but i think as my toilet is more or less normal would the gastroentorologist not say there was no need for a colonoscopy. or should i ask for more blood tests?

i dont want to just exclude gluten until i know for sure that it was celiac/coliac disease

help plz?

Let's start with the skin. Dermatitis Herpetiformis (DH) http://www.merck.com/mmhe/sec18/ch209/ch209c.html is a comparatively common side effect of celiac (coeliac) disease. If the description at the link above sounds like what you're experiencing or if any of the following look like what you're experiencing http://images.google.com/images?hl=en&...tab=wi&um=1 you might want to visit a dermatologist first. On the bright side, the Merck Manual link does not mention outbreaks on the stomach. A friend of mine has a similar problem, especially in wintertime and during periods of stress. He has added Omega 3 to his diet (he's vegetarian); I think it's been helping him. Just something to think about.

The digestive symptoms you are describing could be celiac/coeliac, but could be a lot of other things as well. As you're in a country with free universal health care, I'd recommend following up until you get to the bottom of it. If you want to try the gluten-free diet, though, it's not really all that hard. If you try it for two weeks, you should be able to tell whether it's going to make a difference. As will be pointed out to you shortly, though, you can't get an official medical diagnosis via biopsy without continuing to eat gluten. (Apparently, somebody forgot the part of the Hippocratic Oath about first doing no harm.)

Oh, coeliac.org.uk: http://www.coeliac.org.uk/ This seems to be the most useful part: http://www.coeliac.org.uk/glutenfree_living/default.asp They do not appear to have a forum or discussion board.

Good luck, and I hope you find all your answers.

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