Jump to content
  • Join Our Community!

    Do you have questions about celiac disease or the gluten-free diet?

ConfusedNeuropathic

Can Celiac Disease Cause Weight Loss, Neuropathy, Widespread Itching Without Diarrhea?

Rate this topic

Recommended Posts

Hi everyone,

I'm new to the forum and just posted my first thread here (http://www.celiac.com/gluten-free/index.php?showtopic=59230&pid=541419&start=0&#entry541419). I have not been diagnosed with celiac disease yet, but am looking for a doctor to at least screen me.

In the meantime, I was wondering a few things. I know that diarrhea is one of the classic symptoms of celiac disease. But is it possible to be gluten intolerant WITHOUT consistent diarrhea?

My general symptoms consist of constant dizziness (although this one may be due to my deviated septum and chronic sinusitis), burning/prickly/tingling sensations in my extremities, and widespread itching, with some recent weight loss. While I do get some chest pains and abdominal discomfort at times (around the area of the colon), bowel movements alternate between constipation and diarrhea, but neither one happens consistently. I've had all manner of medical tests done and so far the only thing that's out of wack is I was low in serological vitamin D and B12 months ago (oral supplements of both haven't done anything for my symptoms so far).

My doctor is convinced it's all due to anxiety, which is frankly utter BS in my opinion, so now I'm seeking specialists on my own (I'm on a PPO health insurance plan). Just wondering if what I've described sounds enough like possible celiac disease to make visiting a GI specialist worthwhile (been racking up hefty medical bills lately and trying to keep it in check).

Thanks a lot for your input.

Share this post


Link to post
Share on other sites

I would first request a full celiac panel from your regular doctor. The doctors should be looking for the cause of the low B12 and D not just telling you to take pills. The fact that the sensations have not resolved with additional B12, (they did tell you to take the sublinguals, right?) and the constant dizzyness could mean that gluten is negatively impacting your brain. Many times this would be accompanied by periodic bouts of depression and/or anxiety. On and off GI symptoms are not unheard of especially in the early stages. Some will also have C for years and then develop D.

You also have the choice of simply trying the diet and seeing if it helps your problems. You would need to be strict and try it for a couple of months and then if you still have doubt go back on gluten and see what happens.

Please note being on the diet will give false negatives to all celiac testing so if you need a doctor derived diagnosis you need to keep eating gluten until all testing is complete.

Share this post


Link to post
Share on other sites
I would first request a full celiac panel from your regular doctor. The doctors should be looking for the cause of the low B12 and D not just telling you to take pills. The fact that the sensations have not resolved with additional B12, (they did tell you to take the sublinguals, right?) and the constant dizzyness could mean that gluten is negatively impacting your brain. Many times this would be accompanied by periodic bouts of depression and/or anxiety. On and off GI symptoms are not unheard of especially in the early stages. Some will also have C for years and then develop D.

You also have the choice of simply trying the diet and seeing if it helps your problems. You would need to be strict and try it for a couple of months and then if you still have doubt go back on gluten and see what happens.

Please note being on the diet will give false negatives to all celiac testing so if you need a doctor derived diagnosis you need to keep eating gluten until all testing is complete.

Hey there, thanks, I've done just that and am awaiting a response... My regular doctor has been very dismissive about the whole thing so I think maybe my first course of action should be to find a new doctor. His basic response is that I'm only 30, look fine, and have normal blood labs and x-rays so it can't be anything serious. My wife is expecting and he thinks everything is because I'm anxious about the upcoming baby, which frankly I'm not. I was excited about the baby until my body went berserk and now I'm depressed every day, I don't feel like I'm part of the world or society in general anymore and my wife is getting worried but I have no idea how to overcome it since I haven't felt normal in so long.

And yep I've been taking sublingual B12 supplements (several hundred MCG a day) for months now and things are only getting worse. I picked up some "nerve support formula" supplements with megadoses of the entire B vitamin complex this week and have been trying those just to make sure.

Anyhow I don't want to whine too much, but thanks, I appreciate the feedback. It sounds like gluten intolerance is at least something I should explore and try to rule out. I've had EKGs, chest x-rays, brain CT scans, brain and neck MRIs, complete blood panels, an anuscopy and sigmoidoscopy, a nerve conduction test, a HIV test, and various blood protein/sedimentation/autoimmune screens done all with no answers. Before the antibiotics I did frequently have diarrhea (although I've since quit drinking alcohol and coffee), and after taking them I've frequently had constipation, which makes me suspicious. I'll cover at least this base then, thanks for the insight and quick response, it is very much appreciated.

Share this post


Link to post
Share on other sites

Join the conversation

You can post now and register later. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.

Guest
Reply to this topic...

×   Pasted as rich text.   Paste as plain text instead

  Only 75 emoji are allowed.

×   Your link has been automatically embedded.   Display as a link instead

×   Your previous content has been restored.   Clear editor

×   You cannot paste images directly. Upload or insert images from URL.


  • Top Posters +

  • Upcoming Events

    • June 19, 2019 04:00 PM Until 08:00 AM
      0  
       
       
       
      Celiac Emotional Healing Support Group
       
       
       
      Again you are invited to join Johnny Patout, LCSW for Baton Rouge's first emotional healing support group meeting to assist those living with celiac disease manage the emotional challenges so many of us face. Most often the emotional disturbances include depression, disinterest in normal activities, insomnia, grief, mood changes, anxiety, inability to concentrate, extreme concern about managing a gluten-free lifestyle and other emotional and behavioral challenges.
       
      The professionals at Jamestown Avenue Counseling Center created the emotional healing support group to give us a safe place to begin to process our emotions and support each other as we heal emotionally while managing celiac disease and the resulting autoimmune disorders.
       
      The emotional healing support group meets every Thursday, 6:00-7:00pm, at the Jamestown Avenue Counseling Center of Baton Rouge. Jamestown Avenue Counseling Center is located at 4637 Jamestown Avenue, Baton Rouge, Suite B-1. Suite B-1 is upstairs.
       
      The support group is free and open everyone managing celiac disease. For more information: emotionalhealingforceliacs@hotmail.com
    • July 07, 2019 Until August 03, 2019
      0  
      For more information, visit www.kefss.com or call (407) 255-6550. info@kefss.com 

      KEF USA Summer Camps Announces the New KEF Gluten-Free Camp in Orlando, Florida for Youths with Celiac Disease.

      [Orlando, FL February 6, 2019]-KEF USA is excited to announce that we will offer a new 100% gluten-free camp program to give kids and teens with Celiac Disease a safe, exciting and healthy summer. KEF USA programs offer fun and unique experiences that can only be found in Orlando, Florida. Campers explore the theme parks and local attractions, make new friends, discover new interests and create memories that last a lifetime.


    • July 08, 2019 Until July 09, 2019
      0  
      14th Euro-Global Gastroenterology Conference happening in Zürich, Switzerland during July 08-09, 2019. We are expecting more than 300 attendees representing from more than 40 countries who would be sharing their experiences and expertise around the world Theme: “Future Perspectives and shaping trends in Gastroenterology”
      You may learn more about our congress by visiting our website: https://europegastroenterology.gastroconferences.com/
      Tracks
      Microbiota and diseases|Acid Related Diseases|Helicobacter Pylori Treatment|Therapeutics targeting Microbioma|Advanced Nutrition and Dietetics in Gastroenterology|Inflammatory Bowel Diseases|Clinical Advances in Liver Diseases|Gastrointestinal Disorders and Drug Delivery|Obesity and Treatments|Gastrointestinal Pathology|Neuro Gastroenterology and Motility disorders|Pediatric Gastroenterology, Hepatology and Nutrition|Gallbladder and biliary tract Diseases|Latest advances in Gastroenterology treatments|Endoscopic Innovations in Gastroenterology and surgery|Clinical and Radiographic Gastrointestinal Abnormalities|Functional GI Disorders|Changing Trends in Etiology of Liver diseases|Epigenetics of gastrointestinal diseases|Bariatric Surgery|Gastrointestinal Radiology and Imaging|Developing treatment for Viral Hepatitis and Fibrosis of Liver|Emerging Trends in Clinical Research of Liver diseases|Hepatitis B treatment Patterns|Therapies in Pancreatic cancer|Diabetes and hepatocellular carcinoma|Intestinal Metaproteomics and Type 1 Diabetes
      Conference Benefits
      ·         CME Credits  
      ·         CPD Credits
      ·         Research publication in proceeding book
      ·         Abstract publication in associated online journal
      ·         DOI by Cross-Ref
      ·         Online speaker webpage
      ·         Workshops and Symposium
      ·         Certificate for participation and attendance
      ·         Young Researchers Forum and Posters Award for Students
      ·         B2b and Networking meetings
       
      Program Director
      Sophia Williams
      Gastroenterology 2019 | Zürich | Switzerland
      conferenceseries.com https://europegastroenterology.gastroconferences.com/
      E-mail: williams.sophiaa@yandex.com
      Whatsapp us : +442382146717
×
×
  • Create New...