Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Seeing The Specialist Monday - Advice?


balmerhon

Recommended Posts

balmerhon Rookie

To recap quickly, my DS was seen at the Univ of Maryland for persistent diarrhea and failure to thrive. He is 3 years 3 months old and weighs 25lbs. His height is average and his BMI off the chart low.

Aside from being skinny with diarrhea, he is happy and energetic. No tummy pain, etc.

All his tests came back negative for celiac. He has not had a biopsy. They did allergy blood tests but I don't know what for as they have not provided me with a copy of any of the lab results yet. They did stool tests, too.

Meanwhile, he has lost 1/2lb since being weighed by his pediatrician on June 1 and gained 1/4 inch in height. He's had one tummy bug (vomiting, worse diarrhea, no appetite - lasted a day and a half) and one strange week-long episode of BAD diarrhea but was eating, playing and otherwise happy. :blink:

Naturally, we don't *want* anything to be wrong, but we can't help but think that something must be causing this.

We took him off gluten for 2 weeks. I know that's not a long time, but his diarrhea got worse and he ate less. :(

I think he is sensitive to acidic food, which is a problem as he loves fruit and tomato sauce based things like pizza and pasta. He is VERY picky so I'm running out of options when I eliminate anything.

From other posts and our pediatrician, I have had suggestions for other things to ask the specialist about. We see her this Monday:

fructose malabsorption

genetic testing for celiac

will he need a biopsy for celiac

eosinophilic gastroenteritis

other protein and sugar intolerances

Can you think of anything else I should ask about?

Thanks so much!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



LexsMama Newbie
To recap quickly, my DS was seen at the Univ of Maryland for persistent diarrhea and failure to thrive. He is 3 years 3 months old and weighs 25lbs. His height is average and his BMI off the chart low.

Aside from being skinny with diarrhea, he is happy and energetic. No tummy pain, etc.

All his tests came back negative for celiac. He has not had a biopsy. They did allergy blood tests but I don't know what for as they have not provided me with a copy of any of the lab results yet. They did stool tests, too.

Meanwhile, he has lost 1/2lb since being weighed by his pediatrician on June 1 and gained 1/4 inch in height. He's had one tummy bug (vomiting, worse diarrhea, no appetite - lasted a day and a half) and one strange week-long episode of BAD diarrhea but was eating, playing and otherwise happy. :blink:

Naturally, we don't *want* anything to be wrong, but we can't help but think that something must be causing this.

We took him off gluten for 2 weeks. I know that's not a long time, but his diarrhea got worse and he ate less. :(

I think he is sensitive to acidic food, which is a problem as he loves fruit and tomato sauce based things like pizza and pasta. He is VERY picky so I'm running out of options when I eliminate anything.

From other posts and our pediatrician, I have had suggestions for other things to ask the specialist about. We see her this Monday:

fructose malabsorption

genetic testing for celiac

will he need a biopsy for celiac

eosinophilic gastroenteritis

other protein and sugar intolerances

Can you think of anything else I should ask about?

Thanks so much!

not to freak you out but have the run a cystic fibrosis test? i also know Fructose issues can cause the same kind of symptoms as celiac. GL at the specialist

balmerhon Rookie
not to freak you out but have the run a cystic fibrosis test? i also know Fructose issues can cause the same kind of symptoms as celiac. GL at the specialist

It's ok. Yes, he's been tested for CF and it was negative. :)

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      127,731
    • Most Online (within 30 mins)
      7,748

    synjadanynja
    Newest Member
    synjadanynja
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121k
    • Total Posts
      70.4k

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
      @Steve-n-Portland, there is a difference in the requirements to use the label "Gluten Free" and the label "Certified Gluten Free". "Gluten Free" is governed by FDA regulations and has a ceiling of 20 ppm. "Certified Gluten Free" is a labeling convention used by the GFCO, an independent international third party certifying group that uses 10 ppm as its standard.
    • trents
      We have had numerous reports from forum participants experiencing gluten reactions from Trader Joe "gluten-free" products. It seems it's not a good place for the celiac/gluten sensitive community to shop.
    • Steve-n-Portland
      Also, a class action lawsuit was launched in 2024 against Trader Joe's re: their " gluten free" everything bagels. They tested at 269ppm. (Personally, I am not sure they will win. The FDA says that the *ingredients* have to be less than 20ppm for a company to label something "gluten-free."  In order to be certified as gluten-free by the GFCO, the *final product* needs to be less than 20ppm. That said, the lawsuit is arguing that most people read that label and assume the final product is safe for people with celiac. Thus, many people were made sick. And being sick can have costly consequences in regard to work or school, depending when one becomes ill.)
    • Steve-n-Portland
      Correction: My previous post refers to hickory products when I actually meant bakery products.
    • Steve-n-Portland
      Trader Joe's "gluten-free" hickory products are definitely not celiac safe. Their own website used to have a sidebar acknowledging this. Trader Joe's contracts out for their products, or obtains products elsewhere and puts their brand on it. Is Trader Joe's acknowledges, the facilities in which their products are made may change without notice, and ingredients or sources for ingredients may change without notice. Every time I tried Trader Joe's "gluten-free" muffins, breads, tortillas, etc, I had a reaction. The worst reactions were from the muffins (which are about 440 cals apiece, btw). 
×
×
  • Create New...