Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Please Help Me Help My Dad


liveNlearn

Recommended Posts

liveNlearn Newbie

I


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



DDD Newbie

Yup. All that happened to me after knee surgery except I was a mess mentally as well and couldn't sleep. This could have been to due the fact that I was so itchy. I scratched so hard I made myself bleed. The hives were on the bottom of my feet and some days I couldn't walk (not good for some one had physical therapy to do on a daily basis for knee surgery. ugh)

On some places the hives were like welts. It was so weird. My joints also hurt and my lips and throat swelled up. I had my first panic attack, which is what my friend said it was but I think it was because I ate a loaf of bread that morning and then ate sandwich and my throat swelled up so I couldn't breathe.

I went to the emergency room and they gave me steroids and told me to see a counselor (because they know how to cure hives?!?!?! still don't get that one!)

luckily my mom came up to school and was like heck no and took me back home to see my holistic doctor. she gave me some homeopathic medicine, put me on a Gluten-Free and casein free diet that i have been on ever since (after 6 weeks i tried to eat gluten again and broke out in hives). I also took a probiotic and an intestinal repair complex. eventually the hives became less itchy and went away in a couple months all together. when i get glutened however it flares up again and my skin gets super sensitive.

say what you want about holistic doctors and alternative medication but i believe that everyone is different and in this case it saved my life, of that i am sure. it takes some people 10 years or longer to get diagnosed with celiac and i did not have 10 years to spare in my condition.

either find an allergist, a doctor that is open to and familiar with celiac, gluten allergies and intolerances or find a trusted holistic, alternative or integrative doctor. some may be whackos but we have been going to mine for a very long time and she has helped me as well as everyone we have recommended to her.

remember, we are all unique and built different, a concept that don't like to teach in medical school.

liveNlearn Newbie

I

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      127,772
    • Most Online (within 30 mins)
      7,748

    Vicky jacobson
    Newest Member
    Vicky jacobson
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121k
    • Total Posts
      70.4k

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Bebee
      Thank you knitty kitty!!  I appreciate your help and knowledge!
    • knitty kitty
      Welcome to the forum, @Bebee, Yes, Celiac Disease has genetic commonalities with MS, hypothyroidism, arthritis, Reynaud, and rosacea.   Usually a gluten challenge is done before endoscopy with biopsies taken,  however I would not recommend a gluten challenge before endoscopy with biopsies for you since you have been gluten free for so long and have so many concurrent autoimmune diseases.   You can still have the endoscopy with biopsy samples taken now.  After several months with dietary changes, you can have another to compare results and check that intestinal health has improved.   You can get a genetic test for Celiac disease which shares genetics with other autoimmune diseases that you have.  Eating gluten is unnecessary for genetic tests. For the rosacea, get checked for SIBO (Small Intestinal Bacterial Overgrowth) that could be causing gastrointestinal symptoms as well as causing skin issues.  Our skin is a reflection of our gastrointestinal health.     Following the Autoimmune Protocol Diet has been helpful in keeping my own rosecea, eczema, and dermatitis herpetiformis and other autoimmune diseases in check.   Be sure to be checked for nutritional deficiencies that occur easily in gluten free and dairy free diets. Keep us posted on your progress! References: Clustering of autoimmune diseases in patients with rosacea https://pubmed.ncbi.nlm.nih.gov/26830864/ And... Celiac disease and risk of microscopic colitis: A nationwide population-based matched cohort study https://pubmed.ncbi.nlm.nih.gov/36939488/
    • Bebee
      I am new here, I have been diagnosed with Microscopic Colitis (Lymphatic) years ago and have been gluten-free, DF since, but I still can have occasional bouts of diarrhea (still trying to figure that out).  I also have MS, Hypothyroid, Arthritis, Reynaud's and my rosacea has been acting up lately.  What treatment is suggested to help with rosacea?  I would like to know too if there is a test for celiac if you have been gluten-free?   Thank you, Barb    
    • bluebird2032
      Gluten free/ non dairy , low calorie pudding ideas please?
    • K6315
      Well, that's interesting. I am lactose intolerant and have been managing that for years. I'd be interested in seeing if that changes once I feel better from not eating gluten (one thing at a time for now, though). Helpful to hear about the avenin. I will do some digging and pose that to the dietitian. Grateful for your feedback.
×
×
  • Create New...