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Karrin

Am I Glutening Myself?

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Tressemme does contain gluten, it's best you stop using it. I use Softsoap too, it's great. I can use Garnier Shampoo and Conditioner, yet my favorite is Pantene. St Ives has many lotions with wheat in them.

It is very difficult to read ingredients in these type of products.


Deb

Long Island, NY

Double DQ1, subtype 6

We urge all doctors to take time to listen to your patients.. don't "isolate" symptoms but look at the whole spectrum. If a patient tells you s/he feels as if s/he's falling apart and "nothing seems to be working properly", chances are s/he's right!

"The calm river of your life approaches the rocky chute of the rapids - flow on through. You are the same water. The rocks cannot hurt you. Remember, now and then, that you are the water and not the boat. Flow on!

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Optimistic Mom -- I just happened to catch your signature and noticed your food exclusions due to a mold allergy and I feel a bit silly! I was DX with Celiac earlier this month but DX with a mold allergy as a child. I have continued to use gluten-free vinegar and smoked meats (when I'm sure they're gluten-free) but I never realized that reactions might also be due to mold!

Those signatures sure are handy :) I happen to be seeing my gastroenterologist this afternoon and will ask him about that and also for a referral to a dietitian or nutritionist.

Cheers

I've had gluten like tummy troubles after using Lawry's on chicken breast and from an off brand chili powder we used to make taco seasoning. No trouble so far with McCormick's spices or The Vegetarian Express spices.

I also have my own PB and my own jelly. The Family likes grape. Blahhh, I like marmalade.


gluten-free since July 8, 2009!

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Karrin, If you do have an intolerance to nightshades, that would cut Lawry's and anything with paprika out of your diet...sad for me too! I react to the paprika that's in Lawry's & most pre-packaged gluten-free sausages & hotdogs. Just add it to the list - don't know about you, but my list is getting really long. I'm looking into the GAPS diet, but just don't know if I can go there yet though in the long run, it is probably the right thing to do.

Jana


self-diagnosed gluten intolerant May 2009

positive dietary response

gluten free since 5/13/2009

nightshade free since 5/16/2009

DQ2, DQ8 negative, Kimball Genetics 7/2009

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Karrin, If you do have an intolerance to nightshades, that would cut Lawry's and anything with paprika out of your diet...sad for me too! I react to the paprika that's in Lawry's & most pre-packaged gluten-free sausages & hotdogs. Just add it to the list - don't know about you, but my list is getting really long. I'm looking into the GAPS diet, but just don't know if I can go there yet though in the long run, it is probably the right thing to do.

Jana

I agree, I seem to have a problem with nightshades too. I feel horrible after eating some hot dogs that I know are gluten free. It's amazing how your body can turn on you. I use to be able to eat anything and never had an issue. Then after being diagnosed with Celiac Disease, I feel bad when I eat anything with milk ( casein), soy and nightshades. I'm looking into corn. It's been a long tough road though.

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Karrin, If you do have an intolerance to nightshades, that would cut Lawry's and anything with paprika out of your diet...sad for me too! I react to the paprika that's in Lawry's & most pre-packaged gluten-free sausages & hotdogs. Just add it to the list - don't know about you, but my list is getting really long. I'm looking into the GAPS diet, but just don't know if I can go there yet though in the long run, it is probably the right thing to do.

Jana

For paprika substitute, you can try the spice form of sumac - used in Turkey, especially for kabobs. Not at every grocery store, but I know that Penzeys carries it and I bet a lot of natural food stores do, too.


gluten-free (except unintentionally) from 7 Dec 2007

3 gluten-free cousins and counting (1 gold standard, 1 pos blood/no endo, 1 self/dietary diagnosed)

suspect mother was celiac (also, cousin suspects my mother's twin is celiac)

Feb 08 testing 'normal range' for gluten antibodies, IBD and food allergies

Staying off gluten - dietary reaction is compelling for me!

"Hi, I'm the gluten-free diner at your table."

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For paprika substitute, you can try the spice form of sumac - used in Turkey, especially for kabobs. Not at every grocery store, but I know that Penzeys carries it and I bet a lot of natural food stores do, too.

Babysteps - don't mean to hijack - but I was just exhausting myself looking for red/pink peppercorns that aren't in a mix...can't find any, so maybe powdered sumac will be easier to come by! YEA!!! I love Turkish foods, esp. the kebabs! thanks for the tip.


self-diagnosed gluten intolerant May 2009

positive dietary response

gluten free since 5/13/2009

nightshade free since 5/16/2009

DQ2, DQ8 negative, Kimball Genetics 7/2009

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Thanks for all the suggestions everyone. I might eventually look into some of them, but right now I find the nightshade family remote as being the culprit. I've had maybe one tomato the whole month of June and one hot dog - and its been awhile. My spices have been basic (salt & pepper - if any) and I've not had any eggplants etc. Right now nothing and everything seems at fault - that is, I have not had a single day of solid relief since the beginning. The changes I experience are so subtle that I'm forced to write most off as my old fluctuations (with exception of a few clear incidents - corn and my shampoo/lotion for one) - that is, the relief and bad days are quite in time with how I felt throughout a month pre-diagnosis. I've followed suggestions here from pots and pans to my own sugar/spices, eating simply, vitamins, cutting out certain items such as soy etc. The whole process is incredibly frustrating and I just can't pinpoint anything!! I just have to conclude for now that my body is healing and hopefully things will clear up. I've tried going back to that same diet of that first week to no effect. I'm really at a loss, but I'm holding out hope that time will help and right now my intestines are just upset with everything that goes in. I'm also exploring other autoimmune problems with my doctor, which might explain my still feeling so yucky - RA is at the top of the list, and my joints have been really swollen and achy this past 2 weeks - so much that I have a hard time standing up.

I sometimes also wonder if my monthly cycle has anything to do with how I'm feeling. I have endometriosis and my only relief from that is about 6 days after my period ends and a week before I ovulate.

At least my head fog is mostly gone and most my lower back pain. It's moved into my hands, wrists, pelvis and knees though! UGH! I'm terrified I'll wind up with twisted, unusable hands and legs.

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Thanks for all the suggestions everyone. I might eventually look into some of them, but right now I find the nightshade family remote as being the culprit. I've had maybe one tomato the whole month of June and one hot dog - and its been awhile. My spices have been basic (salt & pepper - if any) and I've not had any eggplants etc. Right now nothing and everything seems at fault - that is, I have not had a single day of solid relief since the beginning. The changes I experience are so subtle that I'm forced to write most off as my old fluctuations (with exception of a few clear incidents - corn and my shampoo/lotion for one) - that is, the relief and bad days are quite in time with how I felt throughout a month pre-diagnosis. I've followed suggestions here from pots and pans to my own sugar/spices, eating simply, vitamins, cutting out certain items such as soy etc. The whole process is incredibly frustrating and I just can't pinpoint anything!! I just have to conclude for now that my body is healing and hopefully things will clear up. I've tried going back to that same diet of that first week to no effect. I'm really at a loss, but I'm holding out hope that time will help and right now my intestines are just upset with everything that goes in. I'm also exploring other autoimmune problems with my doctor, which might explain my still feeling so yucky - RA is at the top of the list, and my joints have been really swollen and achy this past 2 weeks - so much that I have a hard time standing up.

I sometimes also wonder if my monthly cycle has anything to do with how I'm feeling. I have endometriosis and my only relief from that is about 6 days after my period ends and a week before I ovulate.

At least my head fog is mostly gone and most my lower back pain. It's moved into my hands, wrists, pelvis and knees though! UGH! I'm terrified I'll wind up with twisted, unusable hands and legs.

Karrin, take a look at the GAPS diet. www.gapsdiet.com It sounds like you might be a candidate for it. I'm in just preparing to start it next week.


Undiagnosed for 20 years since first symptoms.

March 2009 - Negative Blood work

April 24, 2009 - Gluten-free

April 29, 2009 - Notably positive response to gluten-free Diet.

May 2, 2009 Dairy Free

May 6, 2009, Soy Free

May 27, 2009 Enterolab Results: Positive Anti-gliadin IgA, tTG IgA, Casein, HLA DQ2.2, HLA DQ8

June 4, 2009 Refined sugar free (except Raw Honey, pure Maple syrup)

June 29, 2009, Dad diagnosed Celiac by GI specialist via blood work and dietary response.

July 2009, Dad's gene test: double DQ8! Thanks Dad - I'll try to get you something nice for Christmas! :)

August 8, 2009 Really Soy free this time - Thanks Blue Diamond for the soy lecithin in the almond milk! :(

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Karrin, take a look at the GAPS diet. www.gapsdiet.com It sounds like you might be a candidate for it. I'm in just preparing to start it next week.

I took a look and I actually eat very similar to the guidelines they have posted! :) Lots of fresh fruit for snacks and veggies and fresh meat like chicken for meals, natural decaff teas (I have a sensitivity to caffeine). It's a rare thing that I eat processed foods, especially after being diagnosed. I did have a little breakdown a week or two back and I got some gluten free chocolate donuts (also dairy and soy free, I believe they were made with tapioca flour?). They were from a dedicated gluten free company and I had no tummy issues with them thankfully - I really needed a bakery fix!

I'm hoping my continuing symptoms are just my body healing yet and will cool off within another month or two so I can actually tell if and what might be making me ill. So far the only noticeable items was an accidental glutening, roughly a month back now, and corn, which gives me instant tummy issues.

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I took a look and I actually eat very similar to the guidelines they have posted! :) Lots of fresh fruit for snacks and veggies and fresh meat like chicken for meals, natural decaff teas (I have a sensitivity to caffeine). It's a rare thing that I eat processed foods, especially after being diagnosed. I did have a little breakdown a week or two back and I got some gluten free chocolate donuts (also dairy and soy free, I believe they were made with tapioca flour?). They were from a dedicated gluten free company and I had no tummy issues with them thankfully - I really needed a bakery fix!

I'm hoping my continuing symptoms are just my body healing yet and will cool off within another month or two so I can actually tell if and what might be making me ill. So far the only noticeable items was an accidental glutening, roughly a month back now, and corn, which gives me instant tummy issues.

Oh good! Are you taking a good pro biotic? PB-8 Vegetarian is a good one and is reasonable priced if you get it on line.


Undiagnosed for 20 years since first symptoms.

March 2009 - Negative Blood work

April 24, 2009 - Gluten-free

April 29, 2009 - Notably positive response to gluten-free Diet.

May 2, 2009 Dairy Free

May 6, 2009, Soy Free

May 27, 2009 Enterolab Results: Positive Anti-gliadin IgA, tTG IgA, Casein, HLA DQ2.2, HLA DQ8

June 4, 2009 Refined sugar free (except Raw Honey, pure Maple syrup)

June 29, 2009, Dad diagnosed Celiac by GI specialist via blood work and dietary response.

July 2009, Dad's gene test: double DQ8! Thanks Dad - I'll try to get you something nice for Christmas! :)

August 8, 2009 Really Soy free this time - Thanks Blue Diamond for the soy lecithin in the almond milk! :(

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I had the same problem, I found I was intolerant to lots of foods, nightshades, dairy (mainly milk) cheeses and yoghurts seemed ok, soy.

I think I have posted a very similar post a couple of times.

I do see a great naturopath and its been 4 months now and I am feeling better, not 100 but definately on the road to recovery.

I am finding the other intolerances are settling down now, you can have such an inflamed gut for quite a while.

Try giving up some other foods for a while, apparently it takes at least 4 months for some cells to renew (my naturopath says) so give it time.

Keep doing what your doing, sounds like your been careful, just continue to check everything and avoid contamination, check all medications and you will see improvement eventually, everyone is so different.


Lisa :)

Me (30): Diagnosed with Celiac Disease by biopsy March 2009 - Multiple food intolerances, nightshades, egg, some fruits and many more.

DH (29): Type 1 Diabetic Diagnosed 2005

DD(5): Diagnosed with Celiac Disease by biopsy July 2009

DS (4) Positive Blood Test Aug 2010, awaiting biopsy

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