Jump to content
  • Sign Up
  • Join Our Community!

    Do you have questions about celiac disease or the gluten-free diet?

Mi55_E

Celiac Misdiagnosed As Depression?

Rate this topic

Recommended Posts

9 months ago I beganfeeling "off".. I became EXTREEMLY tired.. I could hardly get out of bed. At the same time my appatite increased and I never ever ever felt full. I gained 10 pounds in a month because I was contstantly shoving food in my mouth because of this insane hunger. Most of the time, after eating I would feel hungrier than I was before I ate!

I started suspecting that it was something i was eating... I kept a lof of what i was eating and realized that it seemed like any time I had carbs (cereal, bread, etc...) was when I felt worse.

My head was filled with fog, I could not concentrate at work, I felt like I was living in a "dream" world.. I felt like a zombie.. all I wanted to do was eat and sleep.

Other symptoms I had:

-Yellow ring around my mouth (I had blood work done for liver function, etc and that came back normal)

-My nails became brittal

-Irritability

-Fatigue and weakness (stopped being able to excersise)

-Jointpain

-Itchy rash (I developed this rash 10 years ago when I worked at a fast food place.. I had seen my doctor numerous times, and he constantly prescribed me different creams and nothing worked to get rid of it.) The rash went away on its own and seemed to have just disapered miracously! Not it's back.. I have it on my hands, elbows and my left knee. It is blistery, burns at times (especially after a workout)

-DH

-Abdominal cramping and pain

-Have not had my period in 8 months

-Rapid weight gain (6 pounds overnight!)

-I feel "crawlies" under my skin after eating certain things

-Rapid heart rate after eating certain foods

-depression

-crying for no reason

I went to the doctor and advised him of my suspicions that it was something I was eating.. he diagnosed me as being depressed and suspected I had an eating disorder...

I was offended at first, but decided to keep an opened mind (from what I read depression can have physical symptoms, and all I wanted in the world was to feel better!) So I took the Zoloft.. it seemed to help me feel a little happier, but things still were not right. I went back to the doctor and he assured me it was just depression and upped my dose...

That lead me to start trying to figure it out on my own.. I started googling my symptoms and immedietly had a huntch that it was a food sensitivity. Once I came accross Celiac diesease I had incredible suspicions that it was this (especially due to my mysterious rash).

I have cut gluten out for one week.. I immedietly started to feel better! My rash has cleared slightly, I can think clearly.. but I am still a bit fatigued and feel weak. My hunger seems more manageable, and my joint pain has improved termendously!

I'd appreciate any input you may have! :) Thanks

Share this post


Link to post
Share on other sites

I was on anti depressants when I was at my sickest from having celiac. I was told that it was just depression that was making me feel so sick. I knew I could be depressed but that was not the only thing that was going on.

I could sleep until 3pm daily and never feel rested. I was soo hungry that everyone around me suggested I get tested for a tape worm. I was going to the bathroom 5x a day and also throwing up. I was anemic, vitamin d defecient. I could never think properly and was always in a fog. I knew it had to be more than depression.

You know your body the best. If you still feel something is going on after being on anti depressants try a gluten free diet to see if you feel better.

Hope it works out!

Share this post


Link to post
Share on other sites

Me too, first Xanax, then Paxil, for years. It was misdiagnosed all the time, getting better though. People died because of misdiagnosing, and no one knows how many. People will be diagnosed, then they will remember someone in the family who died, and now they are sure that person was celiac too.

Share this post


Link to post
Share on other sites

A few months back I was suffering wild mood swings. I went to the endocrinologist (at the request of family, friends and coworkers) for the usual PCOS panel... not only had my rapidly shrinking DHEA sulfate levels barely budged, I hadn't gotten my period in 10 months...

She looked at me like I'm crazy and told me to go to my GP for anti-depressants.

I got in my car and began sobbing. There is no reason, at 25 years of age working out regularly and eating healthy I should be SO BROKEN. So I went home and did the math and realized the healthiest I've ever been was when I had consistently gone without wheat for several weeks last summer. I lost weight, felt great, and was happier than ever. Since then, I've kept little to none in my diet and am starting to feel better. My mood is back to the normal optimistic and driven standard. I even formed a support group for people in my area of town. Truth be told, I think it is the cause of the PCOS.

So... I recommend skipping the anti-Ds and going straight for the gluten-free diet but I'm not a doctor so take the recommendation as you like. Good luck!!

Shauna

Share this post


Link to post
Share on other sites

wait. in your list, you had DH. you mean you've been diagnosed with dermatitis herpetiformis? if so, then you are celiac; no additional testing needed.

Share this post


Link to post
Share on other sites
wait. in your list, you had DH. you mean you've been diagnosed with dermatitis herpetiformis? if so, then you are celiac; no additional testing needed.

I noticed that also. The descrition of the rash sounded so much like DH that I was going to suggest she get it biopsied until I saw that.

As stated a diagnosis of DH is a diagnosis of celiac.

As for depression, I think many of us have had antidepressants tossed at us repeatedly over the years. That is not to say I never had issues with clinical depression, I have, but the pills only made me worse. Once I was finally diagnosed the depressive episodes disappeared, unless I get glutened. Then they return full force for 24hrs and then lift. I just wish the other gluten symptoms went away that quickly after a gluten 'accident'.

Share this post


Link to post
Share on other sites
I got in my car and began sobbing. There is no reason, at 25 years of age working out regularly and eating healthy I should be SO BROKEN.

Shauna, I feel the same way... I'm 35 and would absolutely bore you to tears with all the crap that's wrong with me, and now it seems I've developed early onset of thoracic disc degeneration and cervical stenosis. And there is an undiagnosed but devastatingly debilitating problem in my right hip and L4/L5 area. I am being forced to practically live on the sofa because of the pain.

I'm so depressed... and wish that I could just find the culprit as to why.

Best, Jennifer

Share this post


Link to post
Share on other sites

Join the conversation

You can post now and register later. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.

Guest
Reply to this topic...

×   Pasted as rich text.   Paste as plain text instead

  Only 75 emoji are allowed.

×   Your link has been automatically embedded.   Display as a link instead

×   Your previous content has been restored.   Clear editor

×   You cannot paste images directly. Upload or insert images from URL.


  • Top Posters +

  • Upcoming Events

    • March 20, 2019 04:00 PM Until 08:00 AM
      0  
       
       
       
      Celiac Emotional Healing Support Group
       
       
       
      Again you are invited to join Johnny Patout, LCSW for Baton Rouge's first emotional healing support group meeting to assist those living with celiac disease manage the emotional challenges so many of us face. Most often the emotional disturbances include depression, disinterest in normal activities, insomnia, grief, mood changes, anxiety, inability to concentrate, extreme concern about managing a gluten-free lifestyle and other emotional and behavioral challenges.
       
      The professionals at Jamestown Avenue Counseling Center created the emotional healing support group to give us a safe place to begin to process our emotions and support each other as we heal emotionally while managing celiac disease and the resulting autoimmune disorders.
       
      The emotional healing support group meets every Thursday, 6:00-7:00pm, at the Jamestown Avenue Counseling Center of Baton Rouge. Jamestown Avenue Counseling Center is located at 4637 Jamestown Avenue, Baton Rouge, Suite B-1. Suite B-1 is upstairs.
       
      The support group is free and open everyone managing celiac disease. For more information: emotionalhealingforceliacs@hotmail.com
    • March 24, 2019 Until March 27, 2019
      0  
      NEW ORLEANS GOURMET GLUTEN-FREE mini GETAWAY    March 24 ~ 27, 2019   We have arranged a fun and Gluten-free food filled mini in the city known for it's food and fun.  We have arranged to eat many of the famous dishes that aren't usually Gluten-free at a few of the World Renown restaurants.   Staying at the Royal Sonesta Hotel on Bourbon Street in the center of the French Quarter, you'll be able to enjoy the ambiance of the city at all hours.   Our itinerary will include a Luxury Coach tour of the city and surrounding area - Admission to The National World War II Museum, including the Tom Hanks" 4D film "Beyond All Boundaries" - an exciting Airboat ride and tour through the Bayou.      This it the 3rd time we have visited New Orleans and it has always been well attended, so join us even if you've been there before.  Check out our website for the complete itinerary and cost.    Due to contractual obligations we must have 20 participants by October 31, 2018 to make this a go.      If you have any questions just give us a call at 410-939-3218.  Bob & Ruth info@bobandruths.com (410) 939-3218
    • March 30, 2019 Until March 31, 2019
      0  
      Nourished Festival is a family-friendly event with 10 locations across the US. Attendees will be able to sample food, health and beauty products, meet with companies, learn about the most current food lifestyles, receive coupons and attend educational sessions with industry experts. 
      Nourished Festival, managed by The Nourished Group and presented by Enjoy Life Foods, is the largest gluten-free, allergy-friendly and specialty diet event in the US, with 10 locations including.
      ABOUT THE NOURISHED FESTIVALS
      Managed by The Nourished Group, formerly The Gluten Free Media Group, The Nourished Festivals are the largest and fastest growing special diet consumer events in the United States. Started in 2007, the events have expanded from one to ten cities throughout the country. The festivals cater to anyone looking to lead a healthier lifestyle or those who follow a specialty diet due to autoimmune conditions, food sensitivities, allergies or intolerances. Offerings including Paleo, Keto, Plant-Based, Gluten-Free, Allergen-Friendly and Nut-Free products. The events provide the opportunity for attendees to sample and purchase new products, receive coupons, meet with brand ambassadors and attend educational classes with industry experts. For more information, visit http://www.nourishedfestival.com 
       
Yes, the photo link worked.  Again, DH is not diagnosed visually because it resembles so many other rashes.   Is it possible to get an appointment at the celiac center at Texas Children in Houston?  I do not know your insurance, but it might be possible to pay for a visit (cash) but get tests, etc. via your in-network insurance.  It would be worth a call.   https://www.texaschildrens.org/departments/celiac-disease-clinic I  do not understand why they think he is too young to devel
  • Blog Entries

  • ×
    ×
    • Create New...