Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

I Had My Endo Today,, Positve Blood But Was gluten-free Prior To Biopsy


eeskew7282

Recommended Posts

eeskew7282 Rookie

I had my biopsy for Celiac Disease today. The path won't be back for 10 days but the doctor said he saw two erosive areas in my stomach and biopsied but he tested for H plyloris. He also found alot of redness on the duodenum. He said he did not see indications on Celiac disease. I was only a strict gluten free diet for almost 4 weeks. Would it really show much if I have been compliant that long. My labs were high and with a position EMA. I was extremely sick when I was on gluten, so the MD left me off the gluten for the test. I still don't think MDs know enough about it because he said maybe we can do a trial of gluten later. I told him I would never touch it again. I thought the way I feel off the gluten and the positve antibodies and the high antigen will make the diagnosis???


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



leadmeastray88 Contributor

At this point, I would wait and see what the biopsy says. The doctor can't always tell if you have Celiac until they look at the slides from the samples. I'm not sure if 4 weeks was long enough to affect the intestine...I would think it depends on how much damage you had in the first place. But you're right - your doc should never have told you to go gluten free beforehand. Now if the biopsy is negative, you may always wonder "if only"...

If I were you, I would take the positive blood tests into extreme consideration. Because you tested positive for all of them is very telling, in my opinion. It's like being pregnant...you either are Celiac or you're not, you can't be just a little bit Celiac. If you're positive across the board then you're Celiac IMHO.

It's your decision whether to do a gluten challenge for another biopsy in the future...but you may only make yourself sicker and still not get a diagnosis.

My advice would be just to go gluten free regardless of what the biopsy says. We have people here who have repeatedly tested negative on biopsies but their lives have improved dramatically on the diet. It's really up to you though!

Good luck! :)

eeskew7282 Rookie

Yes I am staying gluten free. I feel like a different person without the gluten. He also said maybe one day you can be back on a regular diet, not a chance. I was diagnosed seronegative Rheumatoid arthritis 5 years ago. I think it was related to the Celiac disease because my RA is starting to improve. I think this was the cause of my poor health over the past 5 years

Gemini Experienced
I had my biopsy for Celiac Disease today. The path won't be back for 10 days but the doctor said he saw two erosive areas in my stomach and biopsied but he tested for H plyloris. He also found alot of redness on the duodenum. He said he did not see indications on Celiac disease. I was only a strict gluten free diet for almost 4 weeks. Would it really show much if I have been compliant that long. My labs were high and with a position EMA. I was extremely sick when I was on gluten, so the MD left me off the gluten for the test. I still don't think MDs know enough about it because he said maybe we can do a trial of gluten later. I told him I would never touch it again. I thought the way I feel off the gluten and the positve antibodies and the high antigen will make the diagnosis???

With positive blood work and a positive EMA, you have your diagnosis. The only reason to do an endo after positive blood work is to see what damage has been done. You cannot see indications of Celiac Disease with the naked eye, period. It has to be looked at microscopically. A doctor may see inflammation but to actually diagnose flattened villi, you need a microscope.

If the biopsy comes back negative, that could be for a number of reasons which do not mean you do not have celiac disease. However, there is absolutely no reason ever again, with what you have said in your post, to do a gluten challenge later on. You've also had a positive dietary response.

I hope you are feeling better soon!

eeskew7282 Rookie
With positive blood work and a positive EMA, you have your diagnosis. The only reason to do an endo after positive blood work is to see what damage has been done. You cannot see indications of Celiac Disease with the naked eye, period. It has to be looked at microscopically. A doctor may see inflammation but to actually diagnose flattened villi, you need a microscope.

If the biopsy comes back negative, that could be for a number of reasons which do not mean you do not have celiac disease. However, there is absolutely no reason ever again, with what you have said in your post, to do a gluten challenge later on. You've also had a positive dietary response.

I hope you are feeling better soon!

Thanks so much for your advice. I agree, I am much bette now and not going to risk it.. Thanks,

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      127,947
    • Most Online (within 30 mins)
      7,748

    cookiesyum
    Newest Member
    cookiesyum
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121k
    • Total Posts
      70.5k

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • pdm1981
      It's also a symptom of EPI.
    • Wheatwacked
      Yes.  Proportionately a small piece to a toddler is like a whole slice to an adult.  This is an important clue.  She was doing well, accidentally ate gluten and later the old behavior returned. I remember reading posts here of people reacting to a kiss from someone who had just eaten gluten. Recent research indicates that 40% of first degree relatives of someone with Celiac have undiagnosed Celiac Disease.  Father, mother, siblings.  There is a whole list of symtoms of "silent celiac".  Here is an article of symptoms possibly mistaken for other causes than Celiac Disease.  When I finally stopped gluten at 63 years old, I counted 19 things that improved, including lifelong mouthbreathing.  I never smelled bad things, so I as a kid, I learned to respond to the other kid's response in order to not seem weird. I really recommend you pursue testing for all the family if you can, and the whole family following GFD.  It is difficult at first, but the benefits will be worth it.  
    • Visionaerie
      I get these but where we are, they are called chicken potstickers. I would obviously suggest that it is the ginger in the product that is causing a stimulative digestive effect! So you might want to do what I do, just cook one of them with the rest of your meal so you don't have the same effect. I love the Feel Good products but they are on the expensive side. (I also drink Reed's ginger brew so in general, ginger is a friend of mine..when delivered at the right dose). Hope this helps and have a warm healthy week!
    • ognam
      Has anyone had Steatorrhea (oily/fatty poop) as a temporary glutening symptom or should I be concerned I've introduced chronic gluten somewhere (like in meds)? I haven't gotten Steatorrhea since before I went gluten free. However, I moved in the past few weeks and haven't been as careful - I've eaten at restauraunts with cross contamination but only experienced minor symptoms like headache. The past week, I ate only gluten free food at home except I went to Red Robin and got fries (told them gluten-free; allergy). The next day I had Steatorrhea and the day after that.   I know it's a symptom of malabsorption so I was wondering if it was the kind of thing that could be caused by one event or if it was due to a more chronic issue. Of course I will speak to a GI but I recently moved and need to find one.   Thank you for any info
    • plumbago
      A relative has opened another door for me on this issue -- the possibility of menopause raising HDL. Most studies suggest that menopause decreases HDL-C, however, one study found that often it's increased. "Surprisingly, HDL cholesterol was higher (p < 0.001) in postmenopausal women by 11%. Further, the number of women who had low HDL cholesterol was higher in pre vs. postmenopausal women. The range of ages were 26–49 years for pre-menopausal and 51–74 years for postmenopausal women. "This interesting finding has also been observed by other investigators. It is possible that the observed increase in HDL-C in postmenopausal women could be due to a protective mechanism to counterbalance the deleterious effects of biomarkers associated with menopause. However, further studies are needed to confirm this theory. And to the point raised earlier about functionality: "...some patients with elevated HDL-C concentrations could remain at risk for coronary events if HDL is not functional and some authors have suggested that this could be the case for menopausal women." Postmenopausal Women Have Higher HDL and Decreased Incidence of Low HDL than Premenopausal Women with Metabolic Syndrome. By no means to I think this is definitive, rather food for thought.
×
×
  • Create New...