Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Think Its Finally Getting Thru To Mom


jasonD2

Recommended Posts

jasonD2 Experienced

I think my mother is finally coming to terms with the fact that i might have celiac and that it might run in our family. In the past whenever i brought it up she would get defensive and say "im fine, it doesnt run in our family, im 65 years old and im just gonna live my life"

I had a heart to heart with her the other day and explained it all in very general terms and I think she's finally going to get tested and recommend that other family members get tested as well.

She said she will talk with her regular physician about it but i would rather she go to her GI doctor. I guess im also afraid that the doctors might talk her out of it along with my aunt (her sister) who thinks the answer to everything is a pill.

Anything else i can do or say at this point?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



tarnalberry Community Regular

I would praise her (compliment her, thank her, support her) "for doing everything you can to make yourself as healthy as possible and stick around for as long as possible". If you get on her case for "doing it wrong" (my words, I know they're not yours), she may balk. Help her feel that it isn't an overwhelming burden to eat gluten free (just by setting a good example) and you'll break down one more barrier for her.

mushroom Proficient

Tiffany, couldn't have said it better myself. Jason, congrats for finally getting through to her!

ang1e0251 Contributor

Jason, want to have a talk with my sister?

ranger Enthusiast

And my daughter?

ravenwoodglass Mentor

Fantastic!!!!!! She may be noticing the improvement in your health and well being, sometimes that is what really makes a believer out of famly members. :) I hope she is feeling like a new person soon.

  • 2 weeks later...
merry0709 Newbie
I would praise her (compliment her, thank her, support her) "for doing everything you can to make yourself as healthy as possible and stick around for as long as possible". If you get on her case for "doing it wrong" (my words, I know they're not yours), she may balk. Help her feel that it isn't an overwhelming burden to eat gluten free (just by setting a good example) and you'll break down one more barrier for her.

I have the same deal with my mom. I`ve been gluten-free for 5 years. She has every symptom in the book and the docs just keep upping the dosages on all her pills. She is really really a cookie monster, really addicted, but it is killing her. Now her health is really going down the drain. Her RLS is getting to the point of being unmanageable, and she is taking so many pills, they are starting to react with eachother, she can`t travel, passes out , is in alot of body pain. I`ve been bugging her for years. So I am going on an extended stay with her and am going to put her on a gluten-free diet while I am there. I will need plenty of prayers. But I am really a good cook. So hopefully she will improve. I guess really, until they are sick enough, and sick of being sick, they are too stubborn to listen. But I have a hard time not being angry at the MD`s. My gosh, her symptoms are so fricking apparent. We are in the 21st century. Some doctors don`t even believe in it. Unbelievable.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



lmvrbaby Newbie

Hey I hear all of you. I have been gluten free for about 3 1/2 years. I tried to have my mother tested and she says no. I have a son age 23, who is celiac and also diabetic type 1. He was just recently hospitalized due to the celiac being so out of whack in his system that the diabeties is killing him. So now I am trying to get him eating gluten free and not just blowing it off, as well as keeping his diabeties in check. I have bought foods for him cause I have read labels and gone through this. My mom buys cornflakes, because it is made of corn she figured it was ok. I have to keep reminding her that she needs to read the labels. I am also going to write down the words for her: Gluten Free, NO WHEAT, NO RYE, NO BARLEY, AND NO MALT. Maybe now she will do better but I have to check all foods before she takes it to my son. My son has a learning disability and doesn't comprehend and will eat anything that is bought for him. I dont want to keep racking my head against the wall, but I have to, to make sure he has the proper foods. Thanks for letting me vent. :angry:

momxyz Contributor

glad to hear the message is getting thru!

We are new on this journey of the gluten free diet - 2 1/2 weeks. My daughter has had a few downfalls. One of the problems is the food that grandma cooks and sends over to us. She is a great cook, and cooking for us gives her a purpose. (She is recently widowed).

Her daughter is a nurse, and she has had conversations with her about gluten intolerance. And my sister in law fed her appropriate information. But guess what. Grandma is still sending over gluten laden foods.

My daughter is doing fairly well at making appropriate choices but this just makes it harder.

oy vay.

getting buyin from other family members is my next task. In the meantime I feel like I have to erect my gluten force field.

celiac-horn Newbie

My dad is 51 years old and has had food intolerance issues his whole life. As a child he was told not to eat caramel color, peanut butter and chocolate, but guess what? His favorite things to snack on are Reese's cups and Dr. Pepper. My mom has tried to make him healthy lunches, but as a contractor always on the run he feels he has to eat drive thru food and pastries and when she finds her chicken salads in his truck uneaten, she gives up. We all have an active sweet tooth, but he seems to have it worst. I've tried to tell him to get tested for Celiac, he's been on detoxes, dx'ed with IBS, etc. but he just blows it off. He doesn't "have time." I don't want to be up in his face like, can you make time for intestinal cancer? but it seems like that is better than not saying anything. What else can I do to get through?

------------------------------------------

Erin

inconclusive blood tests, positive diet response

diagnosed celiac - 8/08

Dr. Joshua Purses of Hartford Family Medicine -

wonderful, supportive and celiac-educated

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,017
    • Most Online (within 30 mins)
      7,748

    Sjcucinotta
    Newest Member
    Sjcucinotta
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • sleuth
      He is not just a psychiatrist.  He is also a neuroscientist.  And yes, I have already read those studies.   I agree with benfotiamine.  This is short term while glutened/inflammation occurs.  As I had already mentioned, these symptoms no longer exist when this phase passes.  And yes, I know that celiac is a disease of malnutrition.  We are working with a naturopath.
    • knitty kitty
      Please do more research before you settle on nicotine. Dr. Paul New house is a psychiatrist.  His latest study involves the effect of nicotine patches on Late Life Depression which has reached no long term conclusions about the benefits.   Effects of open-label transdermal nicotine antidepressant augmentation on affective symptoms and executive function in late-life depression https://pubmed.ncbi.nlm.nih.gov/39009312/   I'm approaching the subject from the Microbiologist's point of view which shows nicotine blocks Thiamine B1 uptake and usage:   Chronic Nicotine Exposure In Vivo and In Vitro Inhibits Vitamin B1 (Thiamin) Uptake by Pancreatic Acinar Cells https://pubmed.ncbi.nlm.nih.gov/26633299/   While supplementation with thiamine in the form Benfotiamine can protect from damage done by  nicotine: Benfotiamine attenuates nicotine and uric acid-induced vascular endothelial dysfunction in the rat https://pubmed.ncbi.nlm.nih.gov/18951979/   I suggest you study the beneficial effects of Thiamine (Benfotiamine and TTFD) on the body and mental health done by Dr. Derrick Lonsdale and Dr. Chandler Marrs.  Dr. Lonsdale had studied thiamine over fifty years.   Hiding in Plain Sight: Modern Thiamine Deficiency https://pmc.ncbi.nlm.nih.gov/articles/PMC8533683/ I suggest you read their book Thiamine Deficiency Disease, Dysautonomia, and High Calorie Malnutrition.     Celiac Disease is a disease of malabsorption causing malnutrition.  Thiamine and benfotiamine: Focus on their therapeutic potential https://pmc.ncbi.nlm.nih.gov/articles/PMC10682628/
    • sleuth
      Thanks for your response.  Everything you mentioned he is and has been doing.  Tobacco is not the same as nicotine.  Nicotine, in the form of a patch, does not cause gastrointestinal irritation.  Smoking does. He is not smoking.  Please do your research before stating false information. Dr. Paul Newhouse has been doing research on nicotine the last 40 years at Vanderbilt University Medical Center.  
    • Jmartes71
      Im so frustrated and still getting the run around trying to reprove my celiac disease which my past primary ignored for 25 years.I understand that theres a ray of medical that doctors are limited too but not listening and telling the patient ( me) that im not as sensitive as I think and NOT celiac!Correction Mr white coat its not what I think but for cause and affect and past test that are not sticking in my medical records.I get sick violently with foods consumed, not eating the foods will show Im fabulous. After many blood draws and going through doctors I have the HLA- DQ2 positive which I read in a study that Iran conducted that the severity in celiac is in that gene.Im glutenfree and dealing with related issues which core issue of celiac isn't addressed. My skin, right eye, left leg diagestive issues affected. I have high blood pressure because im in pain.Im waisting my time on trying to reprove that Im celiac which is not a disease I want, but unfortunately have.It  has taken over my life personally and professionally. How do I stop getting medically gaslight and get the help needed to bounce back if I ever do bounce back to normal? I thought I was in good care with " celiac specialist " but in her eyes Im good.Im NOT.Sibo positive, IBS, Chronic Fatigue just to name a few and its all related to what I like to call a ghost disease ( celiac) since doctors don't seem to take it seriously. 
    • trents
      @Martha Mitchell, your reaction to the lens implant with gluten sounds like it could be an allergic reaction rather than a celiac reaction. It is possible for a celiac to be also allergic to gluten as it is a protein component in wheat, barley and rye.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.