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hippo33

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i was wondering if caffein can affect anything ive been on the gluten-free diet 2 weeks now and i still flare up with the dh im woundering if the caffean in the energy drinks can be doing something to me is it possible?

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It is very possible that you are still getting traces of gluten in your diet. You have to read all the lables. Caffine will not cause DH outbreaks. But be aware that it can take months for your outbreaks to get completely under control. Just 2 weeks into the diet you still have antibodies deposited under the skin and they will continue to erupt (though it will deminish) untill they are depleated.

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Do you use iodized salt? That can cause a DH breakout. It can take up to 2 years for all the antibodies to leave the skin and even small amounts of gluten can activate them and cause a breakout. You also should check all your personal care products like shampoo, conditioner, lotions, makeup etc for gluten statis. Be assured though that eventually the breakouts will stop as long as you are gluten free. I had DH since childhood and at first when I went gluten free I would have an outbreak within hours of a glutening. Within a year the outbreak would be later and by the time I was gluten free for 2 years even with a severe glutening I just get a couple tiny blisters. I know it is hard to be patient but you will heal in time.

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    Why....why would your doctor not follow the standard of care for testing celiac disease?  I think you need to think about  finding another doctor.  If you are in the US, you can “walk” into a lab and order the test and pay cash: https://labtestsonline.org/tests/celiac-disease-antibody-tests No, your result does not significantly lower your odds of getting a celiac disease diagnosis.  She ordered the LEAST commonly used test, especially since she only ordered that one alone.  I think she thinks you do not have celiac disease, but that you may have a gluten sensitivity.  But that is wrong!  There is no test for gluten sensitivity.  http://www.cureceliacdisease.org/screening/ https://www.mayocliniclabs.com/it-mmfiles/Celiac_Disease_Diagnostic_Testing_Algorithm.pdf https://celiac.org/about-celiac-disease/screening-and-diagnosis/screening/ https://www.verywellhealth.com/celiac-disease-blood-tests-562694 https://www.niddk.nih.gov/health-information/diagnostic-tests/celiac-disease-health-care-professionals I am not a doctor though.  Perhaps, you can ask her why she did not order the complete panel or at least the screening tests most often ordered for celiac disease. Know that some celiacs are asymptomatic (no symptoms) Some just have one symptom.  Some have classic symptoms.  I presented with only anemia and no GI symptoms with only a positive on the DGP IgA.    I hope this helps.  
    Got the result today, and it is indeed the IgG only, and it is "negative" with a result of: <10.0 Units I have sent a message to my doctor requesting that she at least also order the TTG IGA test. However, I'm assuming that this result does at least significantly lower the likelihood that I have celiac? This is all just a shot in the dark anyhow... but after 8 years of unsatisfactorily diagnosed mystery joint pain, I don't want to only half-explore an option and then abandon it without a reasonably definitive result.
    It sounds like you were not given the full celiac panel. The full celiac panel includes: TTG IGA
    TTG IGG
    DGP IGA
    DGP IGG
    EMA
    IGA You have to be eating gluten daily for 12 weeks before the blood test. A positive on any one blood test should lead to a gastroenterologist doing an endoscopy /biopsies to confirm a celiac diagnosis.    
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