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littletsunshine

Frustrated, Hungry And Need Help Super Sensitive People Please Respond

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I have been attempting gluten-free for 2 weeks now. Some days go really well and others not so good. I dont have instant reaction to anything gluten but eventually end up with symptoms. Food diarys dont do any good cause I cant possibly tell when something is affecting me when it came from. Ive read every lable and millions of posts, replies from companies you name it but I am at the end of my rope.

I know I am allergic(epi-pen worthy) to Sulfites. So that is out!

I know Im lactose Intolerant have been dealing with that for 20 years(100%lactose free skim milk and I get along)

And Now dr said Celiac so gluten free. Yey easier said than done!

I dread eating now cause I can never find anything safe. I live in Montana and we have one store that is slightly usefull if you happen to have 5X the grocery money you used to have.(Montana groceries are outragous already, my mom freaked when she heard the prices here) We almost never get anything fresh except what is grown here(which isnt a whole lot unless you eat grass hay and even that has shortages)

So here it is. I need to know your totally failsafe foods. Preferably mainstream cause otherwise....chances are it doesnt exist here. I do have a supposed gluten free list from "the good food store" but I can only afford limited number of items there. For example Annies mac and cheese at walmart(our absolute cheapest store) was 1.28 last i checked Its almost $4 at Good food store. (Just imagine what specialty foods are like there ouch) yey so I know we cant have mac and cheese but it was just a price I knew of the top of my head. The Albertsons if they carried it would be about 2.50 cause well they all suck here, just walmart controls prices better/national chain etc) And if you say eat basic food like meat etc, know that literally almost every form of meat here has been processed or frozen somewhere else. Thus the failsafe list. Im tired, hungry and gettting no where.

HELP!

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I have found that the prices of those specialty items don't differ between Walmart and more upscale stores such as Whole Foods. So, price comparing is kind of a waste of time. THe biggest problem is supply. I have found that the same prices are found ONLINE also but you can find amazing things you'll never see in the few stores here/there. I think the people that live in the major metro areas are probably the most fortunate to actually find the items in their stores and having the specialty stores. Look on www.(Company Name Removed - They Spammed This Forum and are Banned) and look for gluten-free foods under grocery. There are also ads on this board of other websites that offer foods you can order. Look for the links on all the websites to find more. As for foods......I find it easiest to stay away (for the most part) from processed things and simply eat whole, real foods. Meats, veggies, fruits and grains that you may need to learn more about. I cannot do the dairies also or rice or beans. Rice and beans are often the base to alternative gluten-free items, so I'm screwed. Yes, you miss some of the things you are used to loving, but after awhile, all the pain and suffering you go thru to have these items, its just not worth it anymore. Best wishes! I envy you living in Montana......the beauty has got to be worth SOME of the higher prices. : )

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Get things that you can wash carefully before eating. Fresh is best, but not necessary, if you can wash canned. I can't eat very many of the specialty items. Especially ones containing grains. They are all out. Once you get healthy, you will be able to see which things you can add back into your diet. Don't they even have bananas there?

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I am very sensitive too -- and have discovered that I needed to go off all grains as well as all fruit except for lemons and of course no sugary anything (I use stevia instead; you could order it online and/or grow it). I also avoid all nuts--and sesame. I eat a lot of sunflower seeds instead. I avoid tomatoes, potatoes and green peppers--the nightshade family. I eat meat (lots of chicken--frozen is OK) and lots of green vegetables. I use roots and squash as my carbohydrates. Its actually pretty cheap to eat this way. I grow summer squash in summer.

I eat a lot of nonfat organic yogurt. Some say its best to make yogurt yourself--something you could do in Montana or wherever.

For a while I ate the various alternative grains (quinoa, teff, amaranth, buckwheat etc.) and did a bunch of baking, but -- though better-- I still suffered from eczema, tiredness and bloating even though I ate no gluten.

So, basically, doing it backwards as it seems I often do, I have arrived at the Specific Carbohydrate Diet overall. You might want to check into it. It seems many of the "sensitives" here have found success with it when all else fails. Its also a great way to clean out when you first go on the no gluten diet or happen to get CC'd (cross contaminated from gluten). Plus further its very inexpensive to buy basic food that you prepare for yourself from scratch this way and readily available most anywhere one could live. Just make a bunch at once and freeze the rest in various meal sized containers.

I will say I now feel healthier than I have ever felt.

So--good luck with your new adventure!

Bea

PS--in Montana can't you have your own chickens?

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As others have noted, your best bet is to buy whole foods and cook from scratch. Most of the super sensitives on here seem to eat relatively close to the Specific Carbohydrate diet- no substitute grains. I would think you could find some meats out in Montana? Buy whole cuts, chicken and any fresh fish? Butternut squash, acorn, zucchini, summer squash- all very good. Bananas are good. Some of us eat nuts- I eat Planter's almonds, cashews and macadamias, but you may need to wait 'til you heal a bit. Sweet potatoes are very good. I avoid most nightshade vegetables (white potatoes, eggplant- look up in web) I also can eat no rice or legumes.

I would avoid all "replacement foods" as they generally don't work for supersensitives. 4 years in I have added dairy back in the form of Greek plain yogurt and Cabot cheddar cheese- you may need to cut out dairy at first.

Cook yourself some plain chicken and squash first. All veggies will be good eventually but you may find cooking helps at first. (cooked spinach, swiss chard, squash...)

Take it slow and easy, one new food at a time and keep a detailed food log with symptoms- it's invaluable. I've done this for nearly five years and it's second nature to me now and it takes no time- and that's while raising two teenagers, working full-time teaching Special education to emotionally disabled teens and being in graduate school all at the same time, so- you can do it! It has helped solve mysteries MANY times!

Good luck and good health to you! Keep reading here- it helps.

lisa

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What did you find out about your daughter ? My son is 6 and has used the exact same sentence!! He feels like there is a bubble in his throat. He has been complaining on and off for the last year and recently it seems he complains more Ans Wants me to make a doctor appt. he had reflux bad as a baby until about 2.5 and allergies to fomula Ans my milk but since then I thought that all went away. 
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