Jump to content
Celiac Disease FAQ | This site uses cookies GDPR notice. Read more... ×
  • Sign Up

Rate this topic

Recommended Posts

My son has had diarrhea for months. We tried various things including taking him off juice, dairy, and giving him probiotics before I decided to take him off gluten. When I tried a gluten free diet the diarrhea almost completely cleared up within the first day or two. He had an appt. with his allergist anyway so I suggested testing him for celiac with the blood test. I understand that it is very unlikely to come back positive in a 2 year old but, my husband is not very supportive without scientific evidence. When the test came back negative my husband strongly suggested putting him back on gluten. I did this hoping the return of diarrhea would convince my husband. He had been gluten free for about two weeks and of course the diarrhea returned immediately. After torturing my son for about a week my husband was starting to come around and agreed to once again take him off gluten. Now is where I become confused. Now that he is again gluten free his diarrhea did not go away as expected. He has been gluten free (time #2) for a week or so. I don't understand. If anyone has any ideas please share.

Thanks

Share this post


Link to post
Share on other sites

I'm nowhere near a qualified professional and am new to this as well (3 weeks gluten-free). What came to mind for me was that in the time you had your son off gluten his digestive system may have started to heal so that when he ate gluten again his sensitivity was heightened (he could be absorbing more now that the lining of his small bowel has begun to heal?) so it may take longer to see results the second time around. When you put him back on gluten, did you also put him back on dairy? Dairy may also be causing him stomach upset. Did any allergies show up on the test? Good luck!

My son has had diarrhea for months. We tried various things including taking him off juice, dairy, and giving him probiotics before I decided to take him off gluten. When I tried a gluten free diet the diarrhea almost completely cleared up within the first day or two. He had an appt. with his allergist anyway so I suggested testing him for celiac with the blood test. I understand that it is very unlikely to come back positive in a 2 year old but, my husband is not very supportive without scientific evidence. When the test came back negative my husband strongly suggested putting him back on gluten. I did this hoping the return of diarrhea would convince my husband. He had been gluten free for about two weeks and of course the diarrhea returned immediately. After torturing my son for about a week my husband was starting to come around and agreed to once again take him off gluten. Now is where I become confused. Now that he is again gluten free his diarrhea did not go away as expected. He has been gluten free (time #2) for a week or so. I don't understand. If anyone has any ideas please share.

Thanks

Share this post


Link to post
Share on other sites
I'm nowhere near a qualified professional and am new to this as well (3 weeks gluten-free). What came to mind for me was that in the time you had your son off gluten his digestive system may have started to heal so that when he ate gluten again his sensitivity was heightened (he could be absorbing more now that the lining of his small bowel has begun to heal?) so it may take longer to see results the second time around. When you put him back on gluten, did you also put him back on dairy? Dairy may also be causing him stomach upset. Did any allergies show up on the test? Good luck!

He is on dairy right now but, he was eating dairy the first time around and was fine. No allergies showed up. He used to have an egg allergy that he has apparently grown out of. I requested testing for myself since I have symptoms as well, but have not gotten the results back yet. I'm hoping if it's positive that my husband will take this all a little more seriously. I am also getting my DNA tested since it is covered under my insurance. I plan on getting my son's DNA tested as well but time is of the essence with an unsupportive family.

Share this post


Link to post
Share on other sites

Lori and Keiran, so sorry to hear your son is feeling unwell. Apparently I was a very fussy eater when cereals were introduced and have not been a big bread eater my entire life. I developed autoimmune thyroiditis in my teens. A first degree relative has just been diagnosed and I am preparing for further testing in myself. Scientific evidence may be the course for you now. That your son has any sign of feeling unwell is cause for investigation, not just a gastrointestinal one. Looking back, I would have had no problem avoiding gluten in my diet if it had meant better health for my future.

Share this post


Link to post
Share on other sites

Here is a link which may be helpful celiaccenter.ucsd.edu and sees children.

Share this post


Link to post
Share on other sites
My son has had diarrhea for months. We tried various things including taking him off juice, dairy, and giving him probiotics before I decided to take him off gluten. When I tried a gluten free diet the diarrhea almost completely cleared up within the first day or two. He had an appt. with his allergist anyway so I suggested testing him for celiac with the blood test. I understand that it is very unlikely to come back positive in a 2 year old but, my husband is not very supportive without scientific evidence. When the test came back negative my husband strongly suggested putting him back on gluten. I did this hoping the return of diarrhea would convince my husband. He had been gluten free for about two weeks and of course the diarrhea returned immediately. After torturing my son for about a week my husband was starting to come around and agreed to once again take him off gluten. Now is where I become confused. Now that he is again gluten free his diarrhea did not go away as expected. He has been gluten free (time #2) for a week or so. I don't understand. If anyone has any ideas please share.

Thanks

The problem that laboratory studies were made after removing gluten from the diet, so it is very likely to have yielded negative results. Therefore it is recommended that no gluten is removed before any test ... Try again, thus feeding a "normal" prior to sampling ...

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now
0

  • Top Posters +

  • Upcoming Events

    • February 27, 2019 04:00 PM Until 08:00 AM
      0  
       
       
       
      Celiac Emotional Healing Support Group
       
       
       
      Again you are invited to join Johnny Patout, LCSW for Baton Rouge's first emotional healing support group meeting to assist those living with celiac disease manage the emotional challenges so many of us face. Most often the emotional disturbances include depression, disinterest in normal activities, insomnia, grief, mood changes, anxiety, inability to concentrate, extreme concern about managing a gluten-free lifestyle and other emotional and behavioral challenges.
       
      The professionals at Jamestown Avenue Counseling Center created the emotional healing support group to give us a safe place to begin to process our emotions and support each other as we heal emotionally while managing celiac disease and the resulting autoimmune disorders.
       
      The emotional healing support group meets every Thursday, 6:00-7:00pm, at the Jamestown Avenue Counseling Center of Baton Rouge. Jamestown Avenue Counseling Center is located at 4637 Jamestown Avenue, Baton Rouge, Suite B-1. Suite B-1 is upstairs.
       
      The support group is free and open everyone managing celiac disease. For more information: emotionalhealingforceliacs@hotmail.com
    • March 24, 2019 Until March 27, 2019
      0  
      NEW ORLEANS GOURMET GLUTEN-FREE mini GETAWAY    March 24 ~ 27, 2019   We have arranged a fun and Gluten-free food filled mini in the city known for it's food and fun.  We have arranged to eat many of the famous dishes that aren't usually Gluten-free at a few of the World Renown restaurants.   Staying at the Royal Sonesta Hotel on Bourbon Street in the center of the French Quarter, you'll be able to enjoy the ambiance of the city at all hours.   Our itinerary will include a Luxury Coach tour of the city and surrounding area - Admission to The National World War II Museum, including the Tom Hanks" 4D film "Beyond All Boundaries" - an exciting Airboat ride and tour through the Bayou.      This it the 3rd time we have visited New Orleans and it has always been well attended, so join us even if you've been there before.  Check out our website for the complete itinerary and cost.    Due to contractual obligations we must have 20 participants by October 31, 2018 to make this a go.      If you have any questions just give us a call at 410-939-3218.  Bob & Ruth info@bobandruths.com (410) 939-3218
    • March 30, 2019 Until March 31, 2019
      0  
      Nourished Festival is a family-friendly event with 10 locations across the US. Attendees will be able to sample food, health and beauty products, meet with companies, learn about the most current food lifestyles, receive coupons and attend educational sessions with industry experts. 
      Nourished Festival, managed by The Nourished Group and presented by Enjoy Life Foods, is the largest gluten-free, allergy-friendly and specialty diet event in the US, with 10 locations including.
      ABOUT THE NOURISHED FESTIVALS
      Managed by The Nourished Group, formerly The Gluten Free Media Group, The Nourished Festivals are the largest and fastest growing special diet consumer events in the United States. Started in 2007, the events have expanded from one to ten cities throughout the country. The festivals cater to anyone looking to lead a healthier lifestyle or those who follow a specialty diet due to autoimmune conditions, food sensitivities, allergies or intolerances. Offerings including Paleo, Keto, Plant-Based, Gluten-Free, Allergen-Friendly and Nut-Free products. The events provide the opportunity for attendees to sample and purchase new products, receive coupons, meet with brand ambassadors and attend educational classes with industry experts. For more information, visit http://www.nourishedfestival.com 
       
×