Jump to content
Celiac Disease FAQ | This site uses cookies GDPR notice. Read more... ×
  • Sign Up
0
tmikuckis

Should I See A Doctor? Possible Celiac Disease

Rate this topic

Recommended Posts

Hello,

I'm a 17 year old male and I have a lot of random health problems that I think may be connected to Celiac's disease. None of my symptoms are to bad, or unbearable; and I've seen the doctor for some of them individually (with no solutions). So I'm just going to throw out any possible things I think could be related to Celiac's disease; and any advice / responses would be appreciated!

1-at my last physical exam, my doctor told I weighed a few pounds less, even though I had grown a little bit(since last year). He said this was worrisome, especially if I lost any more weight. I think its important to say that I eat a lot, and I eat good nutritious food. I don't really eat much junkfood except for a little desert after dinner, but I've always eaten healthy stuff so I don't know why my weight would be going down...

2-My digestion has never seemed to be perfect. Sometimes lots of gas / sometimes its hard to go to the bathroom / sometimes I have these random stomach aches. (definately could be normal just trying to throw every possible symptom out there).

3-I'm about three inches shorter than my two brothers. Since I was small my dad would always measure me and mark my height in a closet just for fun. I thought I had finished growing beacause every time my dad measured me over the course of the last year I hadn't grown at all. I just came back from a one month long trip to Lithuania and when I got back I discovered I had grown atleast half an inch in that one month! (my diet was much different while I was there...). One year without growth in California, one month in Lithuania and I grow half an inch; just doesn't seem normal...

4-Maybe I just want to blame my lack of working out on some disease, but my muscles seem to be pretty undeveloped for my age. In addition to my skinny arms, my stomach has always seemed to be a little bloated. I'm not fat, but my stomach does seem to puff out a little more than regular.

5-About 9 months ago I started to get a lot of "brain fogginess", and my grades dropped a little in school for one semester. I eventually found that working out in the morning cleared up my head (After running or jumprope, I would feel my head thumping really hard for like a minute and my head would seem to clear up. This also went away while I was on my trip to Lithuania and has come back within the last week of being back home.)

6-Within the last year I've also become very forgetfull and have developed very bad memory.

-With this I've also had some random nervousness / anxiety at times (not bad at all and only occasional)

7-My immune system seems to be really weak. When school started this last year I seemed to get sick almost every month for like four months in a row.

8-I've had tons of swollen lymph nodes for probably a year and 3 months now. A ton of them are swollen in my groin area, also under my jaw, and one or two the back of my head (but no pain). My doctor couldn't explain this, he said it was probably from sickness (Even though the swollen lymph nodes never seem to go away when I'm not sick...)

9-Acne. I have a ton around my mouth area, and its been like that for a few years. I was reading on an acne forum about people who learned that they had celiac's disease, and when they stopped eating gluten their acne went away (This is how I learned about Celiac's disease)

10-Foot pain. This probably has nothing to do with it but I thought I'd throw it in. Probably for the last 6 or 7 years I've had foot pain. I have custom orthodics, but I'm always getting inflammation in my heel or other parts of the foot.

11- Finally, I had stopped drinking milk / eating a lot of dairy for a month or two. When I got back home I ate a lot of ice cream and milk chocolate for the first time in a long time. I developed severe diarrhea for 3/4 days, and the doctor told me it was probably stomach flu (it probably is, but I read that Lactose intolerance is frequently a side effect of celiac disease, so thought i'd just throw it out there). Also, I ate some pancakes this morning with a huge dallop of whipped cream on top, and my stomach seems fine (except for a lot of gas).

Wow, that ended up being a lot of stuff! Although none of these symptoms are severe, it would be nice if it would all go away from something as simple as not eating gluten. I can definately live with all these things, but if anyone has some advice / an opinion on whether i should be tested for celiac's disease; it would be very much appreciated. Thanks!

Share this post


Link to post
Share on other sites

Some of these could be realated to celiac disease, just as you thought. It wouldn't hurt to get blood panel drawn by your dr for celiac disease. That would be a start. Did you not eat gluten on your trip? You mentioned dairy but not gluten.

Keep eating normally until you get tested or the tests will be thrown off.

Share this post


Link to post
Share on other sites
Some of these could be realated to celiac disease, just as you thought. It wouldn't hurt to get blood panel drawn by your dr for celiac disease. That would be a start. Did you not eat gluten on your trip? You mentioned dairy but not gluten.

Keep eating normally until you get tested or the tests will be thrown off.

I continued eating gluten... but i didn't eat much, if any wheat (all the bread i ate was rye). Maybe wheat intolerance has symptoms similar to mine? Is wheat intolerance tested for with the same blood tests? Also, if I get these blood tests done, will they tell me if i'm intolerant to other foods (such as dairy)?

thanks again (especially for reading and replying to such a long post!)

Share this post


Link to post
Share on other sites

There are three different conditions a person can experience with wheat. You can have celiac disease in which your body creates antibodies that attack and damage parts of your body when you ingest gluten; wheat, rye, & barley. You could be gluten intolerant where you still react to gluten but theorectically do not damage your internal organs (there is debate about this). Or you could have an allergy to wheat which is a histamine reaction to wheat but doesn't necesarily cause an allergy to barley or rye.

If you have celiac disease, you should have reacted to the rye also. It doesn't mean you don't have it but it is puzzling. You should have the test to see where you stand. For gluten intolerance, there is no test. In other words, you could have the various tests for celiac disease and come out negative but still be gluten intolerant. At that point you just have to try the gluten-free diet to see if you have a positive dietary response. As for a wheat allergy, that would be testing with an allergist. It's a skin prick test and that could reveal other sensitivities as well.

I think you would benefit from testing but remember to keep eating gluten so your test has the best chance of being accurate.

Share this post


Link to post
Share on other sites
Hello,

I'm a 17 year old male and I have a lot of random health problems that I think may be connected to Celiac's disease. None of my symptoms are to bad, or unbearable; and I've seen the doctor for some of them individually (with no solutions). So I'm just going to throw out any possible things I think could be related to Celiac's disease; and any advice / responses would be appreciated!

1-at my last physical exam, my doctor told I weighed a few pounds less, even though I had grown a little bit(since last year). He said this was worrisome, especially if I lost any more weight. I think its important to say that I eat a lot, and I eat good nutritious food. I don't really eat much junkfood except for a little desert after dinner, but I've always eaten healthy stuff so I don't know why my weight would be going down...

2-My digestion has never seemed to be perfect. Sometimes lots of gas / sometimes its hard to go to the bathroom / sometimes I have these random stomach aches. (definately could be normal just trying to throw every possible symptom out there).

3-I'm about three inches shorter than my two brothers. Since I was small my dad would always measure me and mark my height in a closet just for fun. I thought I had finished growing beacause every time my dad measured me over the course of the last year I hadn't grown at all. I just came back from a one month long trip to Lithuania and when I got back I discovered I had grown atleast half an inch in that one month! (my diet was much different while I was there...). One year without growth in California, one month in Lithuania and I grow half an inch; just doesn't seem normal...

4-Maybe I just want to blame my lack of working out on some disease, but my muscles seem to be pretty undeveloped for my age. In addition to my skinny arms, my stomach has always seemed to be a little bloated. I'm not fat, but my stomach does seem to puff out a little more than regular.

5-About 9 months ago I started to get a lot of "brain fogginess", and my grades dropped a little in school for one semester. I eventually found that working out in the morning cleared up my head (After running or jumprope, I would feel my head thumping really hard for like a minute and my head would seem to clear up. This also went away while I was on my trip to Lithuania and has come back within the last week of being back home.)

6-Within the last year I've also become very forgetfull and have developed very bad memory.

-With this I've also had some random nervousness / anxiety at times (not bad at all and only occasional)

7-My immune system seems to be really weak. When school started this last year I seemed to get sick almost every month for like four months in a row.

8-I've had tons of swollen lymph nodes for probably a year and 3 months now. A ton of them are swollen in my groin area, also under my jaw, and one or two the back of my head (but no pain). My doctor couldn't explain this, he said it was probably from sickness (Even though the swollen lymph nodes never seem to go away when I'm not sick...)

9-Acne. I have a ton around my mouth area, and its been like that for a few years. I was reading on an acne forum about people who learned that they had celiac's disease, and when they stopped eating gluten their acne went away (This is how I learned about Celiac's disease)

10-Foot pain. This probably has nothing to do with it but I thought I'd throw it in. Probably for the last 6 or 7 years I've had foot pain. I have custom orthodics, but I'm always getting inflammation in my heel or other parts of the foot.

11- Finally, I had stopped drinking milk / eating a lot of dairy for a month or two. When I got back home I ate a lot of ice cream and milk chocolate for the first time in a long time. I developed severe diarrhea for 3/4 days, and the doctor told me it was probably stomach flu (it probably is, but I read that Lactose intolerance is frequently a side effect of celiac disease, so thought i'd just throw it out there). Also, I ate some pancakes this morning with a huge dallop of whipped cream on top, and my stomach seems fine (except for a lot of gas).

Wow, that ended up being a lot of stuff! Although none of these symptoms are severe, it would be nice if it would all go away from something as simple as not eating gluten. I can definately live with all these things, but if anyone has some advice / an opinion on whether i should be tested for celiac's disease; it would be very much appreciated. Thanks!

I'm also 17 years old. I have some symptoms related to you ( such as swollen lymph node on back of head and acne.... bad case of clog pores), and others ( some were very server until I removed gluten). I think you could possibly be gluten intolerance, if your doctors don't come around on time ( since school is starting back, I doubt you would want to return sick) you can try the diet for a few weeks. The lump on my head doesn't really change shape often ( really enlarged when I consumed a bagel... eventually will explain the reason), though I think I did have swollen lymph nodes on my back ( didn't really notice it was) but it has now gone away. I was told by my doctor once ( or twice) that I was underweight, though since removing gluten it actually looks like I lost weight ( considering my face bloating is going down, along with stomach) but I gain a few pounds. To make a long story short ( I mean really short... much complications I've had with doctors and family) I was also able to conclude that I'm yeast intolerance, from there my rash and other symptoms really is starting to vanish. I did more research, did a candida spit test and was able to conclude I also have candida. I question on whether me being celiac ( or gluten intolerance) gave rise to candida... or something else resulted to all of this.

[Left computer and now forgot what else I was going to type]

Well my other health concerns along with being gluten and yeast intolerance, and candida are: thyroid, pre-diabetes, malnutrition

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now
0

  • Top Posters +

  • Upcoming Events

    • February 27, 2019 04:00 PM Until 08:00 AM
      0  
       
       
       
      Celiac Emotional Healing Support Group
       
       
       
      Again you are invited to join Johnny Patout, LCSW for Baton Rouge's first emotional healing support group meeting to assist those living with celiac disease manage the emotional challenges so many of us face. Most often the emotional disturbances include depression, disinterest in normal activities, insomnia, grief, mood changes, anxiety, inability to concentrate, extreme concern about managing a gluten-free lifestyle and other emotional and behavioral challenges.
       
      The professionals at Jamestown Avenue Counseling Center created the emotional healing support group to give us a safe place to begin to process our emotions and support each other as we heal emotionally while managing celiac disease and the resulting autoimmune disorders.
       
      The emotional healing support group meets every Thursday, 6:00-7:00pm, at the Jamestown Avenue Counseling Center of Baton Rouge. Jamestown Avenue Counseling Center is located at 4637 Jamestown Avenue, Baton Rouge, Suite B-1. Suite B-1 is upstairs.
       
      The support group is free and open everyone managing celiac disease. For more information: emotionalhealingforceliacs@hotmail.com
    • March 24, 2019 Until March 27, 2019
      0  
      NEW ORLEANS GOURMET GLUTEN-FREE mini GETAWAY    March 24 ~ 27, 2019   We have arranged a fun and Gluten-free food filled mini in the city known for it's food and fun.  We have arranged to eat many of the famous dishes that aren't usually Gluten-free at a few of the World Renown restaurants.   Staying at the Royal Sonesta Hotel on Bourbon Street in the center of the French Quarter, you'll be able to enjoy the ambiance of the city at all hours.   Our itinerary will include a Luxury Coach tour of the city and surrounding area - Admission to The National World War II Museum, including the Tom Hanks" 4D film "Beyond All Boundaries" - an exciting Airboat ride and tour through the Bayou.      This it the 3rd time we have visited New Orleans and it has always been well attended, so join us even if you've been there before.  Check out our website for the complete itinerary and cost.    Due to contractual obligations we must have 20 participants by October 31, 2018 to make this a go.      If you have any questions just give us a call at 410-939-3218.  Bob & Ruth info@bobandruths.com (410) 939-3218
    • March 30, 2019 Until March 31, 2019
      0  
      Nourished Festival is a family-friendly event with 10 locations across the US. Attendees will be able to sample food, health and beauty products, meet with companies, learn about the most current food lifestyles, receive coupons and attend educational sessions with industry experts. 
      Nourished Festival, managed by The Nourished Group and presented by Enjoy Life Foods, is the largest gluten-free, allergy-friendly and specialty diet event in the US, with 10 locations including.
      ABOUT THE NOURISHED FESTIVALS
      Managed by The Nourished Group, formerly The Gluten Free Media Group, The Nourished Festivals are the largest and fastest growing special diet consumer events in the United States. Started in 2007, the events have expanded from one to ten cities throughout the country. The festivals cater to anyone looking to lead a healthier lifestyle or those who follow a specialty diet due to autoimmune conditions, food sensitivities, allergies or intolerances. Offerings including Paleo, Keto, Plant-Based, Gluten-Free, Allergen-Friendly and Nut-Free products. The events provide the opportunity for attendees to sample and purchase new products, receive coupons, meet with brand ambassadors and attend educational classes with industry experts. For more information, visit http://www.nourishedfestival.com 
       
  • Member Statistics

    • Total Members
      86,544
    • Most Online
      4,125

    Newest Member
    AlyssaAnn22
    Joined
  • Forum Statistics

    • Total Topics
      111,815
    • Total Posts
      955,908
  • Who's Online (See full list)

  • Forum Discussions

    Thank you GFinDC. Question. When you say, "quick rinse", can you define what is safe for us to use when washing our fruits and veggies? I know that might sound like something I should know but I am seriously taking no chances (at least not on purpose). I've been buying organic produce because I was told I needed to. Do you find that to be true or do I need to find a new nutritionist? 😉
    Hi Wade, You areright, there are lots of little gotchas out there in the gluten-filled world.  That's why it is easier/safer to stick with whole foods at the beginning of the gluten-free diet.  The list of ingredients on an apple or an orange or a steak is usually real short.  So you can get out of the grocery store quicker by eating whole foods like those.  Plain frozen veggies or canned are usually safe too.  And fresh produce as long as you give it a quick rinse.
    Why....why would your doctor not follow the standard of care for testing celiac disease?  I think you need to think about  finding another doctor.  If you are in the US, you can “walk” into a lab and order the test and pay cash: https://labtestsonline.org/tests/celiac-disease-antibody-tests No, your result does not significantly lower your odds of getting a celiac disease diagnosis.  She ordered the LEAST commonly used test, especially since she only ordered that one alone.  I think she thinks you do not have celiac disease, but that you may have a gluten sensitivity.  But that is wrong!  There is no test for gluten sensitivity.  http://www.cureceliacdisease.org/screening/ https://www.mayocliniclabs.com/it-mmfiles/Celiac_Disease_Diagnostic_Testing_Algorithm.pdf https://celiac.org/about-celiac-disease/screening-and-diagnosis/screening/ https://www.verywellhealth.com/celiac-disease-blood-tests-562694 https://www.niddk.nih.gov/health-information/diagnostic-tests/celiac-disease-health-care-professionals I am not a doctor though.  Perhaps, you can ask her why she did not order the complete panel or at least the screening tests most often ordered for celiac disease. Know that some celiacs are asymptomatic (no symptoms) Some just have one symptom.  Some have classic symptoms.  I presented with only anemia and no GI symptoms with only a positive on the DGP IgA.    I hope this helps.  
  • Blog Entries

  • Blog Statistics

    • Total Blogs
      1,158
    • Total Entries
      2,010
×